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Age 52. T3bN2M1b with two bone mets. PSA only 5.45. Confused, scared, father of two, need some support and encouragement.
Hello everyone. You can probably remember your first time discovering this website and your very first post. Perhaps a lot like mine. I'm 52 and recently diagnosed with metastatic prostate cancer. I had no symptoms. My doctor was tracking my PSA (3.58 in 2022 rising to 5.46 in 2024). Here's the problem
Hello everyone. You can probably remember your first time discovering this website and your very first post. Perhaps a lot like mine. I'm 52 and recently diagnosed with metastatic prostate cancer. I had no symptoms. My doctor was tracking my PSA (3.58 in 2022 rising to 5.46 in 2024). Here's the problem
KMY28
in
Advanced Prostate Cancer
21 days ago
chemotherapy or something better?
hello. so I just had one week of radiation on my pelvic bone. And one day on my shoulder. From the MRI it shows the prostate cancer in the prostate isn’t spreading and actually getting smaller while the prostate cancer in my bones is actively spreading. On the CT scan it showed a new tumor unsure if
hello. so I just had one week of radiation on my pelvic bone. And one day on my shoulder. From the MRI it shows the prostate cancer in the prostate isn’t spreading and actually getting smaller while the prostate cancer in my bones is actively spreading. On the CT scan it showed a new tumor unsure if
BonnieKlyde
in
Advanced Prostate Cancer
21 days ago
after being fast tracked ABD-147 was designed orphan drug for the Treatment of Neuroendocrine Carcinoma (prostate included)
DLL3 is expressed by neuroendocrine cancers, including prostate cancer! They plan to start a phase 1 trial by the end of 2024 (on lung cancer, but it’s worth to keep an eye on it). “ABD-147 is a next-generation precision radiopharmaceutical biologic therapy designed to deliver Actinium-225 (225Ac)
DLL3 is expressed by neuroendocrine cancers, including prostate cancer! They plan to start a phase 1 trial by the end of 2024 (on lung cancer, but it’s worth to keep an eye on it). “ABD-147 is a next-generation precision radiopharmaceutical biologic therapy designed to deliver Actinium-225 (225Ac)
Maxone73
in
Advanced Prostate Cancer
21 days ago
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Is there a difference between Barrett’s tongue and barretts oesophagus ?
I have been trying to research this since my endoscopy showed “possible Barrett’s tongue” Biopsy has been taken to rule this out which I hope is a positive sign , but does anyone have experience of this term? I understand that it is associated with hiatal hernia although my reflux issues aren’t too
I have been trying to research this since my endoscopy showed “possible Barrett’s tongue” Biopsy has been taken to rule this out which I hope is a positive sign , but does anyone have experience of this term? I understand that it is associated with hiatal hernia although my reflux issues aren’t too
gillsky8
in
Oesophageal & Gastric Cancer
7 months ago
switch from peg interferon to Jakavi due to shortage, anyone doing the same?
Hello friends, I’ve PV jak 2 for 4 years now. Been on peg interferon 45mg weekly for the last year. My bloods have been good(platelets down to 350 from 1100) but my thyroid playing up and I’m on eltroxin for that 100mg a day. I just had a call with my haematologist and MPN specialist in Dublin and
Hello friends, I’ve PV jak 2 for 4 years now. Been on peg interferon 45mg weekly for the last year. My bloods have been good(platelets down to 350 from 1100) but my thyroid playing up and I’m on eltroxin for that 100mg a day. I just had a call with my haematologist and MPN specialist in Dublin and
Deevie1
in
MPN Voice
21 days ago
lung cancer not pc
not sure how to take this: 1.) the cancer spreading in my lungs is an adenocarcinoma but is not from the prostrate but a separate cancer. 2.) the cancer in the prostrate gleason9, and idc has not yet spread beyond the prostrate, per all the scans, etc. I am unsure how to take this. been told it
not sure how to take this: 1.) the cancer spreading in my lungs is an adenocarcinoma but is not from the prostrate but a separate cancer. 2.) the cancer in the prostrate gleason9, and idc has not yet spread beyond the prostrate, per all the scans, etc. I am unsure how to take this. been told it
Cp014
in
Advanced Prostate Cancer
21 days ago
Breast cancer bra and prosthesis
Hello, We are manufacturer of braest cancer bra, Cotton Prosthesis, silicon prosthesis, hand belts, chest belts, hand globs etc,. All products available which is needed post postactemy... We are available 24/7 and 7 days, All india supply thru courier... Kindly contact on above no. 7509634843 Kamal
Hello, We are manufacturer of braest cancer bra, Cotton Prosthesis, silicon prosthesis, hand belts, chest belts, hand globs etc,. All products available which is needed post postactemy... We are available 24/7 and 7 days, All india supply thru courier... Kindly contact on above no. 7509634843 Kamal
Kamalkumar
in
Breast Cancer India
21 days ago
Desensitization protocol
Hello ladies, After switching to docetaxel due to a strong reaction to taxol, I had a similar reaction although milder to the second docetaxel infusion. So now my doctor wants me to try nab paclitaxel. I know it’s supposed to be less allergenic but the risk is not 0 even with this one. I have a preexisting
Hello ladies, After switching to docetaxel due to a strong reaction to taxol, I had a similar reaction although milder to the second docetaxel infusion. So now my doctor wants me to try nab paclitaxel. I know it’s supposed to be less allergenic but the risk is not 0 even with this one. I have a preexisting
Lara1
in
My Ovacome
22 days ago
Cancer blood test concepts may be based on flawed science: WSJ, Becker's Hospital Review, 09/03/24
I do not know if this affects any of the CTC or other blood tests in use for PCa, but it is reason to investigate further if you are considering using one in developing a treatment strategy. Another example that the use of highly-touted large-learning models [i](AI)[/i] does not in any way guarantee
I do not know if this affects any of the CTC or other blood tests in use for PCa, but it is reason to investigate further if you are considering using one in developing a treatment strategy. Another example that the use of highly-touted large-learning models [i](AI)[/i] does not in any way guarantee
cujoe
in
Fight Prostate Cancer
22 days ago
A heavy heart at the loss of my dog, Stevie
She was my light. She was my life. She was my time waster. She was my reason for going for a walk and I think she was my reason for living.. My little girl Stevie died on Monday at noon after getting ill on Sunday morning I rushed her to the vet. They kept me waiting for four hours. They took her in
She was my light. She was my life. She was my time waster. She was my reason for going for a walk and I think she was my reason for living.. My little girl Stevie died on Monday at noon after getting ill on Sunday morning I rushed her to the vet. They kept me waiting for four hours. They took her in
Timtam56
in
SHARE Metastatic Breast Cancer
22 days ago
Liquid Biopsy
My mom's onco is suggesting liquid biopsy as she does not have good site for tissue and lately not responding to treatment regimen. Her cancer shed lot of cancer cell leading to very high level of CA125 on other hand. Does anybody have experience with liquid biopsy and have a suggestion for a good lab
My mom's onco is suggesting liquid biopsy as she does not have good site for tissue and lately not responding to treatment regimen. Her cancer shed lot of cancer cell leading to very high level of CA125 on other hand. Does anybody have experience with liquid biopsy and have a suggestion for a good lab
msuspartan
in
My Ovacome
23 days ago
Seeking Advice for Long-term Dyshidrotic Eczema Turned Dry and Cracked
Hello everyone, I’m looking for some advice or personal experiences that might help me manage my eczema. A few years ago, I developed dyshidrotic eczema on my hands. At one point, the blisters broke open, and I accidentally got some dirt on them while moving things. Since then, my eczema seems to
Hello everyone, I’m looking for some advice or personal experiences that might help me manage my eczema. A few years ago, I developed dyshidrotic eczema on my hands. At one point, the blisters broke open, and I accidentally got some dirt on them while moving things. Since then, my eczema seems to
MaxPei
in
Eczema Association of Australasia Inc
23 days ago
New to this…just saw my PSMA
Howdy all. Let me give you a little back ground. I was having some “back” and stomach issues in June and all of July into August. Blood work looked fine, a mass was seen in CT scan near my rectum and lymph nodes in back were swollen. I work in Europe some and traveled for work. My PSA came back at 166
Howdy all. Let me give you a little back ground. I was having some “back” and stomach issues in June and all of July into August. Blood work looked fine, a mass was seen in CT scan near my rectum and lymph nodes in back were swollen. I work in Europe some and traveled for work. My PSA came back at 166
ChickenWrangler
in
Advanced Prostate Cancer
23 days ago
Female Hormone Blood Tests and Testosterone Gel Question.
I've been weighing up the merits of asking for some testosterone gel on NHS. I didnt want to proceed without knowing my female hormone status so I carried out a Randox health home test last week. I already take HRT in tablet form, my results seem ok. My testosterone is in range but looks low, ditto
I've been weighing up the merits of asking for some testosterone gel on NHS. I didnt want to proceed without knowing my female hormone status so I carried out a Randox health home test last week. I already take HRT in tablet form, my results seem ok. My testosterone is in range but looks low, ditto
Sparklingsunshine
in
Thyroid UK
23 days ago
Mindblowing (and hopefully actionable soon): Innovative In-Vivo Reprogramming to Transform Cancer Therapy
it could work also in the context of cold tumors like prostate cancer! The bad part, they think they will be ready for clinical trials in 2 years. A new immuno-oncology approach is being developed to reprogram tumor cells into dendritic cells directly within the patient, bypassing traditional cell therapy
it could work also in the context of cold tumors like prostate cancer! The bad part, they think they will be ready for clinical trials in 2 years. A new immuno-oncology approach is being developed to reprogram tumor cells into dendritic cells directly within the patient, bypassing traditional cell therapy
Maxone73
in
Advanced Prostate Cancer
24 days ago
Back, neck and shoulder massage
Hello ladies. Im panicking again. I recently got diagnosed with stage 1 low grade ovarian cancer. I had all of my pelvic/par-aortic lymph nodes removed, none of them had cancer cells in them. My oncologist said a massage is fine. But I am worried about the missing lymph nodes. Not from the point
Hello ladies. Im panicking again. I recently got diagnosed with stage 1 low grade ovarian cancer. I had all of my pelvic/par-aortic lymph nodes removed, none of them had cancer cells in them. My oncologist said a massage is fine. But I am worried about the missing lymph nodes. Not from the point
Worrywart2000
in
My Ovacome
24 days ago
ACTOv clinical trial
Hello All We've been asked to share the following information regarding a clinical trial: ACTOv is a clinical trial investigating a new personalised treatment approach to treat ovarian cancer that has relapsed (returned after previously receiving platinum chemotherapy treatment). The new treatment
Hello All We've been asked to share the following information regarding a clinical trial: ACTOv is a clinical trial investigating a new personalised treatment approach to treat ovarian cancer that has relapsed (returned after previously receiving platinum chemotherapy treatment). The new treatment
OvacomeSupport
My Ovacome Team
in
My Ovacome
24 days ago
Aussies will save us all: from Oz, a molecule that can (could) treat resistant prostate cancer
They will need some time still...but... "CDKI-73 is currently being investigated in Phase 2 clinical trials in patients with relapsed and therapy-resistant acute myeloid leukaemia, an aggressive blood cancer." Which means that at least we would not have to wait for a phase 1 to tell us the therapeutic
They will need some time still...but... "CDKI-73 is currently being investigated in Phase 2 clinical trials in patients with relapsed and therapy-resistant acute myeloid leukaemia, an aggressive blood cancer." Which means that at least we would not have to wait for a phase 1 to tell us the therapeutic
Maxone73
in
Advanced Prostate Cancer
25 days ago
Proton or Photon
Hi all, my wife and I are trying to determine the best choice for my prostate cancer. The biopsy/pet scan showed advanced prostate cancer with spreading to the right seminal vessel and involvement of one lymph node. We have had our first consult, locally, with a radiation (x-ray/photon) Dr. who suggested
Hi all, my wife and I are trying to determine the best choice for my prostate cancer. The biopsy/pet scan showed advanced prostate cancer with spreading to the right seminal vessel and involvement of one lymph node. We have had our first consult, locally, with a radiation (x-ray/photon) Dr. who suggested
Garfield-_1234
in
Advanced Prostate Cancer
26 days ago
Constant uptightness and lightheadedness
Since i was like 9 i always felt very uptight and inhibited. Iam 23 now. This doesnt affect my athletic capabilities,but much more so my mental state. This goes to the point where i now can't ever think clearly. Iam consntantly tired and never well-rested after waking up.I dont feel myself as much
Since i was like 9 i always felt very uptight and inhibited. Iam 23 now. This doesnt affect my athletic capabilities,but much more so my mental state. This goes to the point where i now can't ever think clearly. Iam consntantly tired and never well-rested after waking up.I dont feel myself as much
harryford01
in
Men's Health Forum
27 days ago
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