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Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
9 months ago
New to Peginterferon - Any suggestions to help with bowel cramps?
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
Lyndjs
in
MPN Voice
8 months ago
Tinnutus Suddenly
So a year ago I had a virus that bought on tinnitus it seemed to go after a couple of months, though I think it was still there at some very low level and forgot about it I also have vertigo randomly for a few seconds if I roll over in bed or sit up fast and if I bend over and look under a desk say
So a year ago I had a virus that bought on tinnitus it seemed to go after a couple of months, though I think it was still there at some very low level and forgot about it I also have vertigo randomly for a few seconds if I roll over in bed or sit up fast and if I bend over and look under a desk say
Downup24
in
Tinnitus UK
5 months ago
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The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, [i][b] also developing for neuroendocrine prostate cancer[/b][/i]
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, which will now carry the brand name Imdelltra, for the treatment of extensive-stage small lung cancer in patients with disease progression on or after platinum chemotherapy. Imdelltra is approved under the regulator’s accelerated
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, which will now carry the brand name Imdelltra, for the treatment of extensive-stage small lung cancer in patients with disease progression on or after platinum chemotherapy. Imdelltra is approved under the regulator’s accelerated
Scout4answers
in
Advanced Prostate Cancer
2 months ago
Sjogren's Syndrome
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Bothan
in
PMRGCAuk
5 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
4 months ago
Anyone experienced HbA1c increasing after starting T3, and increasing more when Levo reduced, does it settle , is it temporary
hoping to find out, if it will eventually right itself when thyroid issues are treated optimally. I think/hope it might but would be good if others have any experience references that could back up my intuition. I was px venlafaxine early 2019, had never had any blood glucose issues before that. Lipids
hoping to find out, if it will eventually right itself when thyroid issues are treated optimally. I think/hope it might but would be good if others have any experience references that could back up my intuition. I was px venlafaxine early 2019, had never had any blood glucose issues before that. Lipids
Polo22
in
Thyroid UK
5 months ago
disinhibition?
my son had a head injury 25 years ago .. has struggled since with work, relationships , mental health issues though outwardly to the world seems unaffected. In the early years alcohol was an escape route for him and he lost many friends and got himself in difficult situations … because he said outrageous
my son had a head injury 25 years ago .. has struggled since with work, relationships , mental health issues though outwardly to the world seems unaffected. In the early years alcohol was an escape route for him and he lost many friends and got himself in difficult situations … because he said outrageous
Mummily
in
Headway
5 months ago
My Latest Bladder Cancer Update.
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
Ern007
in
Lung Conditions Community Forum
2 months ago
Eye pressure advice
Hello again, I’ve not posted for a while thank goodness! But I have a quick query that I would like some advice on. I had my 3 month follow up check on Friday. November 2023 Stopped Cosopt a month before appointment pressure’s back up to 29 and 36. Back on
Hello again, I’ve not posted for a while thank goodness! But I have a quick query that I would like some advice on. I had my 3 month follow up check on Friday. November 2023 Stopped Cosopt a month before appointment pressure’s back up to 29 and 36. Back on
KBIOW
in
Glaucoma UK
5 months ago
Irritation from eye drops
I've had glaucoma for many years and always insist on preservative free drops to reduce pressure. Recently my eyes are constantly irritating although I use preservative free moisturising drops. Has anyone else had problems with Trusopt or Fixapost after using them for some time?
I've had glaucoma for many years and always insist on preservative free drops to reduce pressure. Recently my eyes are constantly irritating although I use preservative free moisturising drops. Has anyone else had problems with Trusopt or Fixapost after using them for some time?
Tequilasunrise
in
Glaucoma UK
5 months ago
Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
domforr
in
Acoustic Neuroma Support
2 months ago
Anyone has treatment addressing Genomic ATM Mutations?
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Weird
I'm watching an old movie. On the tv it's night and there's diesel motor running and instantly I smell diesel fumes. 40 years ago I worked in the oilfields and often worked the night-shift loading and unloading oil pipe to be transported to cargo boats. The smell of diesel exhaust has remained
I'm watching an old movie. On the tv it's night and there's diesel motor running and instantly I smell diesel fumes. 40 years ago I worked in the oilfields and often worked the night-shift loading and unloading oil pipe to be transported to cargo boats. The smell of diesel exhaust has remained
kaypeeoh
in
Cure Parkinson's
5 months ago
Cholesterol question
I happened to be at a cardiologist appt the other day. I read an article there about cholesterol. Hope you can access an article in the Journal of the American College of Cardiology- November issue by Dr. Leslie Cho. I did ask the NP about a largely elevated HDL ( good cholesterol). She had bever heard
I happened to be at a cardiologist appt the other day. I read an article there about cholesterol. Hope you can access an article in the Journal of the American College of Cardiology- November issue by Dr. Leslie Cho. I did ask the NP about a largely elevated HDL ( good cholesterol). She had bever heard
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Do I have glaucoma or cataracts?
I wake up with blurry eyes and I see halo around the lights.After using artificial tears my eyes has comeback to normal.Do I have glaucoma or cataracts? I'm just 17
I wake up with blurry eyes and I see halo around the lights.After using artificial tears my eyes has comeback to normal.Do I have glaucoma or cataracts? I'm just 17
Our-poor-guys
in
Glaucoma UK
5 months ago
Had my 13-YRO T-Tube grommet removed and new one put in put in last week, still feel nauseous/ill...is this normal or to be expected?
[i]
Is this normal to still be in pain / feeling like this a 9 days after?
[/i] Last Wednesday I had my old T-bar Grommet removed from my ear and another new T-bar Grommet inserted straight after. I was awake and was done with a general anaesthetic injection in the affected ear. The ear was
[i]
Is this normal to still be in pain / feeling like this a 9 days after?
[/i] Last Wednesday I had my old T-bar Grommet removed from my ear and another new T-bar Grommet inserted straight after. I was awake and was done with a general anaesthetic injection in the affected ear. The ear was
accidentalglixch
in
deafPLUS
5 months ago
Dental treatment
Hello friends,I have 3 mild leaky valves and will be having minor gum surgery to clean underneath my gums as I have gum disease. The surgery is tomorrow. I have to take 4 amoxillin antibiotics tablets an hour before the surgery to prevent infection from my gum going through my body. Because I have heart
Hello friends,I have 3 mild leaky valves and will be having minor gum surgery to clean underneath my gums as I have gum disease. The surgery is tomorrow. I have to take 4 amoxillin antibiotics tablets an hour before the surgery to prevent infection from my gum going through my body. Because I have heart
Mariathas
in
British Heart Foundation
9 months ago
Chemo Side Effects
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
Joeym1040
in
Advanced Prostate Cancer
2 months ago
wax treatments
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
Clangerscat
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
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