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anemia
I have been on watch and wait for three years, I mostly had SLL, with alot of lymph node involvement. The last couple of months my hemoglobin and hematocrit are going down, has anyone else had this problem? What does this mean?
I have been on watch and wait for three years, I mostly had SLL, with alot of lymph node involvement. The last couple of months my hemoglobin and hematocrit are going down, has anyone else had this problem? What does this mean?
Gino23
in
CLL Support
2 months ago
Is carvedilol making you cold?
I recently had my Carvedilol increased to 6.25mg twice a day. Lately, I am freezing to the bone. I turn my heating up and up and am still cold when everyone else says its like a sauna. I just wondered if anyone else has this? It could also be my recent addition of diabetes medication, Sitagliptin. Never
I recently had my Carvedilol increased to 6.25mg twice a day. Lately, I am freezing to the bone. I turn my heating up and up and am still cold when everyone else says its like a sauna. I just wondered if anyone else has this? It could also be my recent addition of diabetes medication, Sitagliptin. Never
Erish
in
British Liver Trust
2 months ago
Just having a bad day
April hasn't been a good month for me and synotoms. Been on only 50mcg levo since end of September. Only JUST this week got an increase to 75 thanks to the private bloods I did due to recommendations on this site. First I caught a sinus cold at the start of Easter break, which triggered a flare up
April hasn't been a good month for me and synotoms. Been on only 50mcg levo since end of September. Only JUST this week got an increase to 75 thanks to the private bloods I did due to recommendations on this site. First I caught a sinus cold at the start of Easter break, which triggered a flare up
Obsdian
in
Thyroid UK
2 months ago
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Increased my ferritin levels
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Pippins2
in
Restless Legs Syndrome
2 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
2 months ago
A victory with my NHS GP! 🥳
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
ClaireWF1346
in
Pernicious Anaemia Society
2 months ago
UPDATE on Iron and Vitamin D
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
Batty1
in
Thyroid UK
2 months ago
Iron Supplement
Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the worst stomach acid. I have now stopped the iron supplements. Does anyone have any advice on what my next step should be. I have not spoken to
Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the worst stomach acid. I have now stopped the iron supplements. Does anyone have any advice on what my next step should be. I have not spoken to
Thebarber
in
Restless Legs Syndrome
2 months ago
Elevated liver enzymes
Hi, my daughter has Graves and her latest blood test shows elevated liver enzymes, is this because she's on carbimazole. Prior to taking carbimazole her liver function was normal.
Hi, my daughter has Graves and her latest blood test shows elevated liver enzymes, is this because she's on carbimazole. Prior to taking carbimazole her liver function was normal.
AngelicUpstart
in
Thyroid UK
2 months ago
Advice needed on iron/ferritin levels please
I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January
I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January
Claire_lc
in
Restless Legs Syndrome
2 months ago
B12 Def + Porphyria possible connection!
Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the
Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the
GracePV
in
Pernicious Anaemia Society
2 months ago
Anaemia and R.Arthritis
I wonder if anyone else has experienced, a)
anaemia
and b) have had any symptoms of bowel disease, whilst being treated for RA?
I wonder if anyone else has experienced, a)
anaemia
and b) have had any symptoms of bowel disease, whilst being treated for RA?
Cutes
in
NRAS
9 months ago
Vitamin B12—Multifaceted In Vivo Functions and In Vitro Applications
Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]
Vitamin B12—Multifaceted In Vivo Functions
Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]
Vitamin B12—Multifaceted In Vivo Functions
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Milk thistle
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Hidden
in
British Liver Trust
3 months ago
Bad RLS.
Hi all, I've been hovering around these boards for a couple of years now but this is my first post. I am a 39 year old male. As a child and adult sometimes after walking a lot during the day I would have the urge to move my legs when I was in bed trying to sleep, it would feel like I had excess
Hi all, I've been hovering around these boards for a couple of years now but this is my first post. I am a 39 year old male. As a child and adult sometimes after walking a lot during the day I would have the urge to move my legs when I was in bed trying to sleep, it would feel like I had excess
Wintermute
in
Restless Legs Syndrome
3 months ago
Lansoprazole /Prolia
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
Purplegloss
in
PMRGCAuk
3 months ago
any advice on 6ug/L serum ferritin
hello , I’ve not been diagnosed with pernicious anemia but wondered if anyone could offer some hep I’ve been complaining to the doctors for ages bout tiredness, loss of balance etc and after a recent blood test I had a call to say my iron level was very low , with out any other symptoms the doctor
hello , I’ve not been diagnosed with pernicious anemia but wondered if anyone could offer some hep I’ve been complaining to the doctors for ages bout tiredness, loss of balance etc and after a recent blood test I had a call to say my iron level was very low , with out any other symptoms the doctor
Hazel1010
in
Pernicious Anaemia Society
3 months ago
Question about Celiac or NCGS...
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
Suffering_sunny
in
Gluten Free Guerrillas
3 months ago
New Post, community only please
How does ApS relate to ehlers danos syndrome, underactive thyroid, POTS and CRPS, pernicious
anaemia
. Any information please or anyone who has been through this. Thanks
How does ApS relate to ehlers danos syndrome, underactive thyroid, POTS and CRPS, pernicious
anaemia
. Any information please or anyone who has been through this. Thanks
Dawnm10
in
Hughes Syndrome APS Forum
1 month ago
slippery elm & pernicious anaemia
If you have pernicious
anaemia
& have absorption issues, is it ok to take slippery elm & marshmallow extract to line the stomach? I have this awful gnawing pain in the left upper back that I’m trying to ease & these herbal remedies were recommended. Does anyone else get this pain?
If you have pernicious
anaemia
& have absorption issues, is it ok to take slippery elm & marshmallow extract to line the stomach? I have this awful gnawing pain in the left upper back that I’m trying to ease & these herbal remedies were recommended. Does anyone else get this pain?
Winniepoo15
in
Pernicious Anaemia Society
8 months ago
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