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Has anyone had zoledronic acid infusion. I have PBC and have recently been diagnosed with osteoporosis of the spine.
Zoledronic Acod Infusion
Zoledronic Acod Infusion
AngelaGM
in
PBC Foundation
3 years ago
elevated ALP ALT AST
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
azzurra
in
PBC Foundation
3 years ago
Dry ears, eyes etc and Buckthorn Oil Capsules
I came across an article recently for dry eyes, ears etc. Has anyone taken Buckthorn Oil capsules for this? I have just purchased Omega7 which contains [i]Omega 3, 6, 7, 9 and Vit A (beta carotene) which maintains normal structure and function of the skin and mucous membranes, such as the eyes,
I came across an article recently for dry eyes, ears etc. Has anyone taken Buckthorn Oil capsules for this? I have just purchased Omega7 which contains [i]Omega 3, 6, 7, 9 and Vit A (beta carotene) which maintains normal structure and function of the skin and mucous membranes, such as the eyes,
Moggy1234
in
Pernicious Anaemia Society
3 years ago
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Dry eyes & Vitamin B12
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Moggy1234
in
Pernicious Anaemia Society
3 years ago
Ferritin recommendation needed
Just had the results of my latest blood tests via the GP's phone call. I am in Spain and my previous sympathetic Dr has unfortunately left. This Dr was very abrupt .... TSH too low, drop to 50mg per day of Levothyroxine (previously 5 days 75mg/2 days 50mg spread over the week). Tried to explain I am
Just had the results of my latest blood tests via the GP's phone call. I am in Spain and my previous sympathetic Dr has unfortunately left. This Dr was very abrupt .... TSH too low, drop to 50mg per day of Levothyroxine (previously 5 days 75mg/2 days 50mg spread over the week). Tried to explain I am
Milly1958
in
Thyroid UK
3 years ago
Some supplements that have helped me a lot. Glutathione, berberine, and alpha lipoic acid.
I've had great results with reducing numbness and brain fog by taking Glutathione, berberine, and alpha lipoic acid. It's been a nice reduction in the neuropathy since taking these supplements. They all have effects that help with what we're going through here. You'd need to read up on any sort of
I've had great results with reducing numbness and brain fog by taking Glutathione, berberine, and alpha lipoic acid. It's been a nice reduction in the neuropathy since taking these supplements. They all have effects that help with what we're going through here. You'd need to read up on any sort of
Sammyo23
in
Pernicious Anaemia Society
3 years ago
2nd Treatment attempt
Hi, Going in second medication attempt has commenced. Yesterday I took my first dose of Risedronate and so far not great. Fingers crossed it improves. After 3 doses of Alendronic Acid as I had to stop taking as wasn't tolerating it.
Hi, Going in second medication attempt has commenced. Yesterday I took my first dose of Risedronate and so far not great. Fingers crossed it improves. After 3 doses of Alendronic Acid as I had to stop taking as wasn't tolerating it.
NewBloom
in
Bone Health and Osteoporosis UK
3 years ago
Ursodiol is working :)
Hi everyone, I was diagnosed with PBC back in May after years of trying to figure out what was wrong. I started on Ursodiol right away and yesterday, I got my bloodwork results back after 3 months of being on it. My liver numbers went from off the charts to practically normal again. The Ursodiol is working
Hi everyone, I was diagnosed with PBC back in May after years of trying to figure out what was wrong. I started on Ursodiol right away and yesterday, I got my bloodwork results back after 3 months of being on it. My liver numbers went from off the charts to practically normal again. The Ursodiol is working
ginabean
in
PBCers Organization
3 years ago
Prednisolone/Vitamin D3 timing
I’ve been suffering symptoms of PMR since June 2020 and started treatment in October 2020. Started on 15mg Pred and now down to 11mg - reducing by 1mg every 6 weeks. So far so good! Following original advice from GP I take all medication at 8am with breakfast - this includes Pred, Vitamin D3, Omeprazole
I’ve been suffering symptoms of PMR since June 2020 and started treatment in October 2020. Started on 15mg Pred and now down to 11mg - reducing by 1mg every 6 weeks. So far so good! Following original advice from GP I take all medication at 8am with breakfast - this includes Pred, Vitamin D3, Omeprazole
Dorothy61
in
PMRGCAuk
3 years ago
DEXA Scan Results
Hi I had a Spine T-score of -3.7 on the DEXA scale and have been taking Alendronic Acid on and off for a couple of years, but it causes stomach problems which seem to stop when I'm not taking it. I'm thinking of stopping again but am worried my bone density will get worse if I do, does anyone else have
Hi I had a Spine T-score of -3.7 on the DEXA scale and have been taking Alendronic Acid on and off for a couple of years, but it causes stomach problems which seem to stop when I'm not taking it. I'm thinking of stopping again but am worried my bone density will get worse if I do, does anyone else have
SandyBea
in
PMRGCAuk
3 years ago
Does anyone have advice pls?
I have severe endo which I have been managing best I can with pain killers and by taking the pill to try and get my periods under control. It’s not been perfect but it’s manageable . I was offered a hysterectomy but because of bowel involvement they couldn’t guarantee that I wouldn’t get long term damage
I have severe endo which I have been managing best I can with pain killers and by taking the pill to try and get my periods under control. It’s not been perfect but it’s manageable . I was offered a hysterectomy but because of bowel involvement they couldn’t guarantee that I wouldn’t get long term damage
Bagpuss1848
in
Endometriosis UK
3 years ago
Why can always find issue with having extreme PMS on birth control pill
I am on the birth control to regular my period and did have very heavy period before . I always seem to be struggling with some extreme PMs know that I am on the BC pill. I went to different doctor before that i went BC Pill . one just did blood test . next same doctor put I on tranexamic acid and
I am on the birth control to regular my period and did have very heavy period before . I always seem to be struggling with some extreme PMs know that I am on the BC pill. I went to different doctor before that i went BC Pill . one just did blood test . next same doctor put I on tranexamic acid and
Hidden
in
Women's Health
3 years ago
A Few More Weeks
I’m struggling with the side effects of Alendronic Acid, the hardest to cope with is the tiredness it’s overwhelming. I take my tablet on a Wednesday ( I’ve just taken my 4th) and I just sleep. I spoke to my GP the previous two weeks, shortness of breath - given steroids and then stomach pain. Today
I’m struggling with the side effects of Alendronic Acid, the hardest to cope with is the tiredness it’s overwhelming. I take my tablet on a Wednesday ( I’ve just taken my 4th) and I just sleep. I spoke to my GP the previous two weeks, shortness of breath - given steroids and then stomach pain. Today
Elaiworthy
in
Bone Health and Osteoporosis UK
3 years ago
Proteolytic Enzymes... Has anyone had any success with them?
I already take Curcumin and Vit K2 on top of ADCAL supplements and wondered if anyone has used Proteolytic Enzymes. Are they worth the money? I am currently on 7.5mg Steriods and taking Alendronic acid too.
I already take Curcumin and Vit K2 on top of ADCAL supplements and wondered if anyone has used Proteolytic Enzymes. Are they worth the money? I am currently on 7.5mg Steriods and taking Alendronic acid too.
Mamamia21
in
PMRGCAuk
3 years ago
Omega 3
For love nor Money can I work this out. Which has higher omega 3 please. See pic attached.
For love nor Money can I work this out. Which has higher omega 3 please. See pic attached.
Uglow
in
PMRGCAuk
3 years ago
List of nutrients that were tested in clinical trials with outcomes for PD 2021
Interesting table 2 in this document https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjpu4uz_NLyAhUSnGoFHZ_KAvA4ChAWegQIGhAB&url=https%3A%2F%2Fwww.mdpi.com%2F2072-6643%2F13%2F1%2F28%2Fpdf&usg=AOvVaw3KMSQ5lmI_QR5auNrFah_5 After some good feedback I have decided this is a poorly
Interesting table 2 in this document https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjpu4uz_NLyAhUSnGoFHZ_KAvA4ChAWegQIGhAB&url=https%3A%2F%2Fwww.mdpi.com%2F2072-6643%2F13%2F1%2F28%2Fpdf&usg=AOvVaw3KMSQ5lmI_QR5auNrFah_5 After some good feedback I have decided this is a poorly
Bolt_Upright
in
Cure Parkinson's
3 years ago
Jaw discomfort
Can anyone advise? Onset of PMR was September 2016 and I began prednisolone in January 2017 after a long delay in diagnosis being confirmed. DEXA in August 2020 confirmed osteopenia and I began Alendronic Acid in October. Just in the last couple of weeks or so, I've started to feel a discomfort in
Can anyone advise? Onset of PMR was September 2016 and I began prednisolone in January 2017 after a long delay in diagnosis being confirmed. DEXA in August 2020 confirmed osteopenia and I began Alendronic Acid in October. Just in the last couple of weeks or so, I've started to feel a discomfort in
rosie_jones
in
PMRGCAuk
3 years ago
Adenomyosis pains and heavy bleeding
Hey I have adenomyosis and I can't put to words the amount of pain and bleeding I have on a monthly basis. I know this group is for endometriosis sufferers but I was just wondering if there's anyone here with adenomyosis having the same experience and what they are taking to relieve the pain and the
Hey I have adenomyosis and I can't put to words the amount of pain and bleeding I have on a monthly basis. I know this group is for endometriosis sufferers but I was just wondering if there's anyone here with adenomyosis having the same experience and what they are taking to relieve the pain and the
Hopeandpray
in
Endometriosis UK
3 years ago
Progesterone only pill
I’ve started taking the POP yesterday, just wondering what people have experienced in terms of timescale before I feel any pain relief? I’m awaiting a lap and have been given the POP on top of the other meds I’m already taking (paracetamol, Mefenamic acid and codeine when needed). Thanks
I’ve started taking the POP yesterday, just wondering what people have experienced in terms of timescale before I feel any pain relief? I’m awaiting a lap and have been given the POP on top of the other meds I’m already taking (paracetamol, Mefenamic acid and codeine when needed). Thanks
Midgetpants87
in
Endometriosis UK
3 years ago
So many capsules, tablets, powders to swallow....
Hello everyone, I trust this post of mine finds you well. I wanted to ask you, how do you deal with all these things we have to swallow? More than once I found myself choking on a huge omega 3 capsule or a polyvitamin one. Maybe even a Mg capsule. And what about the constant need to drink, I don't even
Hello everyone, I trust this post of mine finds you well. I wanted to ask you, how do you deal with all these things we have to swallow? More than once I found myself choking on a huge omega 3 capsule or a polyvitamin one. Maybe even a Mg capsule. And what about the constant need to drink, I don't even
enjoy2013
in
Cure Parkinson's
3 years ago
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