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Operation cancelled
My operation was cancelled for a few reasonsand because of Polycythaemia . The Dr wanted to use Tranexamic Acid to reduce bleeding. Does any one know if this can be used with polycythaemia . Thankyou .
My operation was cancelled for a few reasonsand because of Polycythaemia . The Dr wanted to use Tranexamic Acid to reduce bleeding. Does any one know if this can be used with polycythaemia . Thankyou .
FXT1966
in
MPN Voice
1 year ago
More drugs!
Some of you will know we moved from Cornwall to the Bristol area which obviously meant registering with a new doctors surgery. I’ve been about three times and you can never see the same doctor even though they say make an appointment to see me after your blood test. Anyway the last time I went was partly
Some of you will know we moved from Cornwall to the Bristol area which obviously meant registering with a new doctors surgery. I’ve been about three times and you can never see the same doctor even though they say make an appointment to see me after your blood test. Anyway the last time I went was partly
Griggser
in
PMRGCAuk
1 year ago
Severe Period Pains
Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her brother were just diagnosed with FA in Nov 22. She's previously passed out with the pain from cramps & mentioned severe shooting pains traveling
Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her brother were just diagnosed with FA in Nov 22. She's previously passed out with the pain from cramps & mentioned severe shooting pains traveling
Hidden
in
Ataxia UK
1 year ago
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Does anyone else feel buzzing and hyper and dizzy at the same time? My neuropathy is also bad.
Please can anyone help - I feel pretty ill but not sure I can even describe it. My neuropathy in my lower legs is unusually bad, bothering me at night so I can't sleep and in the day to the extent I feel the pain in my left leg/shin may be a hazard driving. Sometimes I feel very weak and as if I can't
Please can anyone help - I feel pretty ill but not sure I can even describe it. My neuropathy in my lower legs is unusually bad, bothering me at night so I can't sleep and in the day to the extent I feel the pain in my left leg/shin may be a hazard driving. Sometimes I feel very weak and as if I can't
Mashie44
in
Pernicious Anaemia Society
1 year ago
zoledronic acid infusion
has anyone had any good results after having the infusion for severe osteoporosis, I have had 1infusion and don't feel that it's done anygood, and after reading about how many people have had fractures even though they have been on zoledronic acid, my scores are -2.5 -4.1 lumbar spine, bmd at femoral
has anyone had any good results after having the infusion for severe osteoporosis, I have had 1infusion and don't feel that it's done anygood, and after reading about how many people have had fractures even though they have been on zoledronic acid, my scores are -2.5 -4.1 lumbar spine, bmd at femoral
Radars
in
Bone Health and Osteoporosis UK
1 year ago
Alendronic Acid
After a Dexa scan report my rheumatologist said she thought I should start on Alendronic acid as I was just borderline for osteoporosis. My mother has it and her spine is crumbling so I thought it sounded like a good idea. Was I bit worried when I got the medication but went ahead and started. I had
After a Dexa scan report my rheumatologist said she thought I should start on Alendronic acid as I was just borderline for osteoporosis. My mother has it and her spine is crumbling so I thought it sounded like a good idea. Was I bit worried when I got the medication but went ahead and started. I had
Gilliancheche
in
NRAS
1 year ago
Early 50s male, healthy till hypothyroidism my first few months experience of treatment
I don't usually share info on the internet, but as a lot of material out there is aimed at women or Americans (I mean no offence to either!) I thought I'd stay my experience so far. Diagnosis, what does it all mean, and treatment/first medications. DIAGNOSIS Late 2022 I saw a nurse as I was taking longer
I don't usually share info on the internet, but as a lot of material out there is aimed at women or Americans (I mean no offence to either!) I thought I'd stay my experience so far. Diagnosis, what does it all mean, and treatment/first medications. DIAGNOSIS Late 2022 I saw a nurse as I was taking longer
BobMcBob
in
Thyroid UK
1 year ago
Dry skin
I have PBC and started ursodiol in August 2022. It’s in the early stages and my liver enzymes are now normal. But my skin is extremely dry, what do I do? I’m going to ask the specialist but I was wondering if anyone else has this issue. I’ve tried many different lotions and take vitamins but still very
I have PBC and started ursodiol in August 2022. It’s in the early stages and my liver enzymes are now normal. But my skin is extremely dry, what do I do? I’m going to ask the specialist but I was wondering if anyone else has this issue. I’ve tried many different lotions and take vitamins but still very
Chase2022
in
PBCers Organization
1 year ago
Newly diagnosed
Hi I've recently been diagnosed with osteoporosis Spine -3.5 I'm 60 and have many autoimmune conditions and have been offered zoledronic acid once yearly infusion If I don't think I can manage the oral bisphosphonates, I already suffer from joint and muscle pain and I feel absolutely terrified of
Hi I've recently been diagnosed with osteoporosis Spine -3.5 I'm 60 and have many autoimmune conditions and have been offered zoledronic acid once yearly infusion If I don't think I can manage the oral bisphosphonates, I already suffer from joint and muscle pain and I feel absolutely terrified of
mully
in
Bone Health and Osteoporosis UK
1 year ago
Pain relief: First period after lap
Hi what pain relief is good please. First period after lap and the usual ibuprofen and tranexamic acid ain't cutting it. Tried mefanamic acid too but previously didn't find it an improvement on the ibuprofen. Any advice greatly appreciated
Hi what pain relief is good please. First period after lap and the usual ibuprofen and tranexamic acid ain't cutting it. Tried mefanamic acid too but previously didn't find it an improvement on the ibuprofen. Any advice greatly appreciated
Apricottree
in
Endometriosis UK
1 year ago
Told that I can’t have Zoledronic Acid.
Dear friends, I am finishing 2 years of Forsteo at the end of July. In preparation for the possibility of having ZA Infusion as follow on treatment, I have been attending dental appointments . Having been passed to the practise surgeon to have an extraction, we were both shocked to discover I may
Dear friends, I am finishing 2 years of Forsteo at the end of July. In preparation for the possibility of having ZA Infusion as follow on treatment, I have been attending dental appointments . Having been passed to the practise surgeon to have an extraction, we were both shocked to discover I may
Angelicspirit
in
Bone Health and Osteoporosis UK
1 year ago
Pred and Alendronic Acid
Hi everyone, I haven't been on here for quite a while. I have at last got down to 1mg of pred which 6 months ago I thought it would never happen. I stumbled on 5mgs for ages but eventually I was able to keep lowering and being at 1mg after 22months from my diagnosis of Poly mialgia, I think I 've been
Hi everyone, I haven't been on here for quite a while. I have at last got down to 1mg of pred which 6 months ago I thought it would never happen. I stumbled on 5mgs for ages but eventually I was able to keep lowering and being at 1mg after 22months from my diagnosis of Poly mialgia, I think I 've been
Smilie67
in
PMRGCAuk
1 year ago
Live shingles vaccine or not?
I would appreciate your guidance on the importance of which kind of shingles vaccine to have, i.e. live or not? I am on medication for GCA, 5.5mg Prednisolone, plus Levothyroxine, Bisoprolol, Amlodipine, Rosuvastatin, Ursodeoxycholic Acid, Famotidine, Losartan. With many thanks.
I would appreciate your guidance on the importance of which kind of shingles vaccine to have, i.e. live or not? I am on medication for GCA, 5.5mg Prednisolone, plus Levothyroxine, Bisoprolol, Amlodipine, Rosuvastatin, Ursodeoxycholic Acid, Famotidine, Losartan. With many thanks.
Katiecatweazel
in
PMRGCAuk
1 year ago
Cabazitaxel and estrogen patch
My brother has CRPC and is receiving Cabazitaxel+Relugolix. Denosumab and Zoledronic acid don't work for him. I suggested an Estrogen patch to both maintain bone density and ameliorate hot flashes. His oncologist said that an Estrogen patch would interfere with the Cabazitaxel. I can't find any literature
My brother has CRPC and is receiving Cabazitaxel+Relugolix. Denosumab and Zoledronic acid don't work for him. I suggested an Estrogen patch to both maintain bone density and ameliorate hot flashes. His oncologist said that an Estrogen patch would interfere with the Cabazitaxel. I can't find any literature
DCDan
in
Advanced Prostate Cancer
1 year ago
zoledronic acid infusion
hi everyone. I’ve been on here before but now I am really stressing out. Just over a year ago I incurred 4 vertebrae fractures, incredibly painful, but I gradually recovered. Sadly I lost 2” in height. Subsequently I was sent for an MRI and, after, I received a letter from the hospital strongly
hi everyone. I’ve been on here before but now I am really stressing out. Just over a year ago I incurred 4 vertebrae fractures, incredibly painful, but I gradually recovered. Sadly I lost 2” in height. Subsequently I was sent for an MRI and, after, I received a letter from the hospital strongly
Errp82
in
Bone Health and Osteoporosis UK
1 year ago
Does Lansaprazole irritate the stomach
I am trying to work out whether or not Lansaprazole is upsetting my tummy/digestive system. I have been taking Pred fro three years now, getting down from 15mg to 4mg last year, falring and returning to 10mg now back to 4mg a year later. I started on the standard precautionary Alendronic Acid, Ad-Cal
I am trying to work out whether or not Lansaprazole is upsetting my tummy/digestive system. I have been taking Pred fro three years now, getting down from 15mg to 4mg last year, falring and returning to 10mg now back to 4mg a year later. I started on the standard precautionary Alendronic Acid, Ad-Cal
marionofnorwich
in
PMRGCAuk
1 year ago
Latest results - where to go next?
Hi all, I'm back with another request for your valuable input. I started levothyroxine treatment for Hashimoto's in February, and at my last review my GP agreed an increase to 62.5mcg (50/75 on alternating days). Things have improved in many areas - I seem to be back to a manageable level of energy in
Hi all, I'm back with another request for your valuable input. I started levothyroxine treatment for Hashimoto's in February, and at my last review my GP agreed an increase to 62.5mcg (50/75 on alternating days). Things have improved in many areas - I seem to be back to a manageable level of energy in
sa67
in
Thyroid UK
1 year ago
Alendronic Acid taken with bottled mineral water by mistake. Should I be worried? Should I take it again tomorrow with tap water? Any advice
I realised too late and am now concerned about it. I’m currently on holiday and always drink bottled water while away but I remembered that the instructions say it must be tap water. Any advice would be helpful. Thanks
I realised too late and am now concerned about it. I’m currently on holiday and always drink bottled water while away but I remembered that the instructions say it must be tap water. Any advice would be helpful. Thanks
PipandDots
in
PMRGCAuk
1 year ago
Advice on Results Please
acids
, Co-enzyme Q10, Ashwaganda and a probiotic.
acids
, Co-enzyme Q10, Ashwaganda and a probiotic.
FAB-jellybean
in
Thyroid UK
2 years ago
Exhausted.
I am 30 years old. I started menstruating at the age of 10. When I was around 14, I would have these random "attacks" of abdominal pain that left me crippled. There have been occasions my mum had to lift me out of the bath, because I felt like my insides had totally twisted. Now, I shower. But there
I am 30 years old. I started menstruating at the age of 10. When I was around 14, I would have these random "attacks" of abdominal pain that left me crippled. There have been occasions my mum had to lift me out of the bath, because I felt like my insides had totally twisted. Now, I shower. But there
toffeechrisp
in
Endometriosis UK
1 year ago
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