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any similar stories extensive metastatic prostate cancer
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
Concerneddaughter123
in
Advanced Prostate Cancer
9 days ago
So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
9 days ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
9 days ago
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Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
9 days ago
Does urinary frequency/urgency diminish after cessation of ADT?
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
SongofFred
in
Prostate Cancer Network
10 days ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
10 days ago
ADT effectiveness duration for 80 plus age ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
Tinkudi
in
Advanced Prostate Cancer
10 days ago
Has anyone heard of trial DB-1311-O-1001?
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Stefciaa
in
Advanced Prostate Cancer
10 days ago
Death from other-than PCa is not a "success"
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
MateoBeach
in
Fight Prostate Cancer
11 days ago
ADT Side Effects and Supplements.
Ok I just read some comments about Lupron and ADT side effects and felt I had to ask the members a question. Yesterday I saw my urologist for my 6 month routine follow up. He looked at my labs and commented on how good they were for a guy on adt for two years. When he got to my kidney function his comment
Ok I just read some comments about Lupron and ADT side effects and felt I had to ask the members a question. Yesterday I saw my urologist for my 6 month routine follow up. He looked at my labs and commented on how good they were for a guy on adt for two years. When he got to my kidney function his comment
Professorgary
in
Advanced Prostate Cancer
11 days ago
Zoladex injection
I began the zoladex injection in January of this year, I then had a laparoscopy in March which diagnosed my endometriosis. I had light bleeding for a couple of weeks after and then it completely stopped. Since then, I've had 2 episodes of heavy bleeding lasting 10 is days. No hormonal treatment has helped
I began the zoladex injection in January of this year, I then had a laparoscopy in March which diagnosed my endometriosis. I had light bleeding for a couple of weeks after and then it completely stopped. Since then, I've had 2 episodes of heavy bleeding lasting 10 is days. No hormonal treatment has helped
CornwallHenleygirl
in
Endometriosis UK
12 days ago
Ped5i/Tadalafil etc as a benefit to SE of ADT?
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
pj1121
in
Advanced Prostate Cancer
12 days ago
Forgetfulness on ADT
Are there any ways to help with the side effect of forgetfulness / mild cognitive impairment while on ADT? My Dad (stage 4 PC) started on ADT 2 only months ago, but there have been a few moments of mild cognitive impairment since starting - forgetting shopping list, trying to return stuff at the wrong
Are there any ways to help with the side effect of forgetfulness / mild cognitive impairment while on ADT? My Dad (stage 4 PC) started on ADT 2 only months ago, but there have been a few moments of mild cognitive impairment since starting - forgetting shopping list, trying to return stuff at the wrong
LDC2024
in
Advanced Prostate Cancer
12 days ago
Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
13 days ago
Vitamins with ADT?
Hi Tall_Allen, You do not recommend vitamins when on ADT? I am on daily Casodex, has been for several years, and I am taking - Multivitamins, C-, D-, K- vitamins and magnesium daily. Should I stop this? Can you elaborate a bit on why you do not recommend taking vitamins? Thanks in advance!
Hi Tall_Allen, You do not recommend vitamins when on ADT? I am on daily Casodex, has been for several years, and I am taking - Multivitamins, C-, D-, K- vitamins and magnesium daily. Should I stop this? Can you elaborate a bit on why you do not recommend taking vitamins? Thanks in advance!
PCPatient
in
Advanced Prostate Cancer
14 days ago
Disgusted with Healthcare
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
Vangogh1961
in
Advanced Prostate Cancer
14 days ago
Compression fracture or something worse?
Hello! My dad has been battling stage four prostate cancer for nearly nine years. He's done remarkably well, all things considered. He's had chemo, hormone therapy, immunotherapy, radiation, and second line hormone therapy. Along the way he has had heart issues and also CNS lymphoma (brain cancer).
Hello! My dad has been battling stage four prostate cancer for nearly nine years. He's done remarkably well, all things considered. He's had chemo, hormone therapy, immunotherapy, radiation, and second line hormone therapy. Along the way he has had heart issues and also CNS lymphoma (brain cancer).
Lynsi13
in
Advanced Prostate Cancer
14 days ago
Penis after metastatic prostrate cancer and hormonal treatment
HelloI was diagnosed in September 2022. Was immediately put on ADT hormonal treatment. Had radiation to the prostrate and radiation to the spine where it spread. My issue is penis shrinkage. Because of the hormonal treatment I have issues with getting with errections. Also was told by many fellow journeymen
HelloI was diagnosed in September 2022. Was immediately put on ADT hormonal treatment. Had radiation to the prostrate and radiation to the spine where it spread. My issue is penis shrinkage. Because of the hormonal treatment I have issues with getting with errections. Also was told by many fellow journeymen
RWRB
in
Men's Health Forum (Penis Health)
15 days ago
PSA is back
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
LBbeachbum
in
Prostate Cancer Network
15 days ago
Stopping Orgovyx after six months
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
gsun
in
Advanced Prostate Cancer
15 days ago
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