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Experiences with
Amyotrophic lateral sclerosis (ALS)
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all phos
hi, my alk phos started last year at 152. Went on urso and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not discussed with doctor yet. Has anyone else experienced the fluctuation? Thank you
hi, my alk phos started last year at 152. Went on urso and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not discussed with doctor yet. Has anyone else experienced the fluctuation? Thank you
Samanthaann
in
PBC Foundation
7 months ago
Genetics and cancer
Paternal uncle:
ALS
. Brother: Colon Cancer. Me: PCa. If it is environmental then maybe we need to move.
Paternal uncle:
ALS
. Brother: Colon Cancer. Me: PCa. If it is environmental then maybe we need to move.
Todd1963
in
Advanced Prostate Cancer
1 year ago
Athira announces clinical trials for Alzheimer’s, Parkinson’s, ALS treatments in 2023
https://www.healio.com/news/neurology/20230207/athira-announces-clinical-trials-for-alzheimers-parkinsons-
als
-treatments-in-2023
https://www.healio.com/news/neurology/20230207/athira-announces-clinical-trials-for-alzheimers-parkinsons-
als
-treatments-in-2023
Farooqji
in
Cure Parkinson's
1 year ago
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What are your thoughts on RELYVRIO previously known as AMX0035? Could it benefit PD patients as well?
RELYVRIO (previously known as AMX0035 in the U.S.) is an oral, fixed-dose combination therapy for the treatment of adults with
ALS
RELYVRIO significantly slowed the loss of physical function in a randomized, placebo-controlled clinical trial in
ALS
https://www.alzforum.org/therapeutics/relyvrio
RELYVRIO (previously known as AMX0035 in the U.S.) is an oral, fixed-dose combination therapy for the treatment of adults with
ALS
RELYVRIO significantly slowed the loss of physical function in a randomized, placebo-controlled clinical trial in
ALS
https://www.alzforum.org/therapeutics/relyvrio
Hidden
in
Cure Parkinson's
1 year ago
Gotcha you little **cker (Desulfovibrio in the Gut)
It also provokes the question of whether the association and involvement of DSV can be extended to similar diseases such as
ALS
, HT, or AD, where DSV may act as a common denominator in disease pathophysiology. Similarly, role of DSV in the development of atherosclerosis has been reported.
It also provokes the question of whether the association and involvement of DSV can be extended to similar diseases such as
ALS
, HT, or AD, where DSV may act as a common denominator in disease pathophysiology. Similarly, role of DSV in the development of atherosclerosis has been reported.
jeeves19
in
Cure Parkinson's
7 months ago
Turkish scientist works on cure of ALS with celerycelery
https://www.google.com/amp/s/www.hurriyetdailynews.com/amp/turkish-scientist-works-on-cure-of-
als
-with-celery-180151
https://www.google.com/amp/s/www.hurriyetdailynews.com/amp/turkish-scientist-works-on-cure-of-
als
-with-celery-180151
Farooqji
in
Cure Parkinson's
1 year ago
HEALTHY ANXIETY IS KILING ME
In fact, I have probably searched for everything conceivable from cancer to
ALS
to Other Neurological Diseases to brain dysfunction, etc... It's exhausting. I have been going to a therapist (who is great) but I feel I need to try more. It's ruining my life. Any help is greatly appreciated!
In fact, I have probably searched for everything conceivable from cancer to
ALS
to Other Neurological Diseases to brain dysfunction, etc... It's exhausting. I have been going to a therapist (who is great) but I feel I need to try more. It's ruining my life. Any help is greatly appreciated!
Dadzo
in
Anxiety and Depression Support
11 months ago
update
morning everyone hope your as well as can be , I’ve now had my gallbladder removed, I’m putting on my latest results and would like to know if I can raise t3 a little bit more , I had bloods done 8/20 nothing to eat and drank only water,the only thing I did wrong was take all meds at the same time as
morning everyone hope your as well as can be , I’ve now had my gallbladder removed, I’m putting on my latest results and would like to know if I can raise t3 a little bit more , I had bloods done 8/20 nothing to eat and drank only water,the only thing I did wrong was take all meds at the same time as
Kowbie
in
Thyroid UK
4 days ago
Nosebleeds and thyroid / blood test query / going private
Hi there :) You were all so helpful when I was first diagnosed with hypothyroidism last year, and I was hoping I could trouble you all with another question. - My levothyroxine was raised to 75mg a day in February based on my NHS blood test (TSH 5.91 mU/L, free T4 15.8pmol/L). - Not really sure if
Hi there :) You were all so helpful when I was first diagnosed with hypothyroidism last year, and I was hoping I could trouble you all with another question. - My levothyroxine was raised to 75mg a day in February based on my NHS blood test (TSH 5.91 mU/L, free T4 15.8pmol/L). - Not really sure if
Fweb
in
Thyroid UK
19 days ago
Anti thyroglobulin Antibody High
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
TOTTY1
in
Thyroid UK
1 month ago
Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Ced60
in
Restless Legs Syndrome
2 months ago
Hypo Dr lowered dose!
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Lowestoft
in
Thyroid UK
2 months ago
Grade 3 Fatty Liver - Liver Enzymes keeps on elevating
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Imviiku
in
Living with Fatty Liver and NASH
2 months ago
Original blood results
Good morning, I finally have the blood results that caused the doc to refer me to endocrinology and prescribe Carbimazole and Propranolol. There is a lot on this form. Please can you tell me what is relevant to diagnose thyroid issues and possibly Graves disease? I am happy to share any results but
Good morning, I finally have the blood results that caused the doc to refer me to endocrinology and prescribe Carbimazole and Propranolol. There is a lot on this form. Please can you tell me what is relevant to diagnose thyroid issues and possibly Graves disease? I am happy to share any results but
Opposite
in
Thyroid UK
3 months ago
Help with my brother results
My brother has been in poor health for a good couple of years.. finally he has had some blood tests done TSH. 20 (0.3-5.5) T4. 8.3 (10-22) Requested T3 and antibodies but were not done! another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP B12. 271. (197-771)
My brother has been in poor health for a good couple of years.. finally he has had some blood tests done TSH. 20 (0.3-5.5) T4. 8.3 (10-22) Requested T3 and antibodies but were not done! another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP B12. 271. (197-771)
Bean101
in
Thyroid UK
3 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Mild concentric LVH
I have shown Mild concentric LVH, bp 140/100, cholesterol 256, triglycerides 320, SGOT 93, SGPT 102. Please suggest me , what should i do, what food to eat, daily routine, exercise, how to recover from it.
I have shown Mild concentric LVH, bp 140/100, cholesterol 256, triglycerides 320, SGOT 93, SGPT 102. Please suggest me , what should i do, what food to eat, daily routine, exercise, how to recover from it.
Parbat_64
in
British Heart Foundation
4 months ago
Complicated with NASH, looking for next step
HI, I feel so discouraged by healthcare. My story - No one can say "why," yet I appear to have fast advancing liver disease. I do have several autoimmune ds ie Hashimotos, Fibromyalgia, adrenal issue etc - but so far tested neg related to liver, no hepatitis etc but am + EBV w/o mono, No diabetes A1c
HI, I feel so discouraged by healthcare. My story - No one can say "why," yet I appear to have fast advancing liver disease. I do have several autoimmune ds ie Hashimotos, Fibromyalgia, adrenal issue etc - but so far tested neg related to liver, no hepatitis etc but am + EBV w/o mono, No diabetes A1c
NeverBeen2Spain
in
Living with Fatty Liver and NASH
10 months ago
Prayers still needed for our HU Brother Kevin🙏
He's 5 chemos in and PSA still rising. If you are so inclined, a Prayer for him would be so welcomed🙏💙 Alk Phos is normal, severely anemic tho😟 Mahalo nui loa 🤙 Fight on Y'all
He's 5 chemos in and PSA still rising. If you are so inclined, a Prayer for him would be so welcomed🙏💙 Alk Phos is normal, severely anemic tho😟 Mahalo nui loa 🤙 Fight on Y'all
dockam
in
Advanced Prostate Cancer
10 months ago
The Epidemiology of Parkinson's Disease
I had to be transferred by ambulance to a different hospital system in May - there are specially trained teams for patients with
ALS
due to respiratory failure. I'm glad they're available, but this is an anomaly that doesn't exist in the Twin Cities metro area.
I had to be transferred by ambulance to a different hospital system in May - there are specially trained teams for patients with
ALS
due to respiratory failure. I'm glad they're available, but this is an anomaly that doesn't exist in the Twin Cities metro area.
SilentEchoes
in
Cure Parkinson's
7 months ago
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