Experiences with

ALP test

It has been over a month now since my wife and I traveled to England to get a dose of Lu 177. I thought I would give an update on what it did for me. That intense bone metastasis pain completely disappeared after about 2 weeks. It was rough going and I needed 24/7 opiates to get any relief. I weened

I have had 2 docetaxel infusions so far with 3rd infusion scheduled this Thursday. Psa has increased from 120 to 174 and alk phos has increased from 590 to 617 since last infusion. Should I even go for 3rd infusion since docetaxel seems to be ineffective ?

I have had so many problems this year it almost seems that its not one thing but the next. I find these sites, the (IBS) as well so good, as we have all been forced to see so called experts that fob us off most of the time. I work in the field of mental health and If i am told once more that things are

Hi I am at my wits end 🤕 here is my blood results ..also got another page but can’t work out how to upload another picture On it am low on ferritin and alk phos plus what’s on this photo . I have been feeling low with extreme fatigue where I sleep 12 hours a night n dont feel recharged fall asleep

Hey fellow warriors, some of you may know from previous posts some of my history with P.C I am currently in my 5th week of a phase 1 clinical trial for my CRPC . gleason 9. and 4.5 yrs into the battle. Recently on week 3, I had a horrific reaction to the drug being administered, ast numbers were all

I haven’t been posting recently (even though I read religiously), and that is mainly because no news is usually good news. Dx Halloween 2017, Gleason 8, tumor outside the prostate, bone and lymph node Mets in pelvic area. Had Docetaxel followed by 42 sessions of radiation. Started Zytiga as soon as

Well, I have always been one of the first to brag about Ocaliva. Not so sure now. Alk Phos has gone up a little my last two labs. It is 161. Fibroscan one year ago was 9. Now 12. Hard to believe it increased that much in one year when all was going good. Hep wants a biopsy so he can confirm fibroscan

After 5 and 1/2 months, I have a new lesion on my rib . Not a big surprise since my psa and alk phos has been on the rise. Done zytiga and now Xtandi in the Prostar trial. The trial will not be going to phase 3. At least It helped me for almost half a year

This past Monday I recieved a call from my GP that my liver enzymes were high after routine bloodwork and I needed a liver ultrasound scheduled for next week. Alt was 147, ast 54, alk phos 123, albumin 4.6, and platelets 301. My fasting blood sugar was 102 and my Hdl cholesterol was 59 and LDl was 108

Here’s my latest story: I was diagnosed with PBC in 2017 and put on urso immediately. I had the standard 2 out of 3 positives to make a diagnosis. Elevated alk phos, positive AMA2 but never biopsy. After 3 years of doing proper liver diet healthy living my new liver specialist retested my AMA2 and it

Hi friends - I've been gone for a couple of years, actually. I was diagnosed with PBC in 2016, with Alk Phos then at 388. Upon taking URSO my numbers dropped to a normal level, but now are trending up. I've jumped from a 120 to 146 in 6 months. I've had several bouts with diverticulitis - not sure if

My dad did 10 rounds of Taxotere with last one being in Jan. 2020...PSA came down to 52. Had a 4 month break now PSA is up to 142 Alk phos is 200. All labs good otherwise..hemoglobin 11.2(L) Started Jevtana yesterday. He is 77 year old. *Please read profile for history.* Why did his PSA start climbing

Hi all! Has anyone here tried intermittent fasting to control symptoms and improve their health? When my alk phos creeped back up into pre URSO levels, I decided to try time restricted feeding because some of the research shows that when the gut is rested regularly for more than 12 hours, repair of the

This site has done well educating me so another question. My PSA started at 250+ in Dec and Alk Phos was 900+. In December I went on Lupron and Zytega. in March, and April my PSA was 6.9 and 5.7, Alk Phos 299 and 220. I had a scan in March that showed tumors shrinking. Today I got my May test results

Here are the results of my prostar trial with Xtandi and EZH2 inhibitor. Baseline labs : psa 7.72 and alkaline phos 368 Bone scan showed progression and ct scan was clear of lymph node Mets Started medicine on 3/13. Labs on 4/3: psa dropped to 3.44 and alkaline phos dropped to 121 4/29: bone

Hi, I had some issues last year that possibly arose from drinking. I'm 29, I dont drink during the week but binge most weekends for the last 6 or more years. I was getting a sore stomach pale stools and bad smelling flatulence for a few months. I had an ultrasound that turned up nothing, lft and pancreatic

My husband began Zolodex close to 2 weeks ago. He's a 13 year Stage IV survivor. His alk phos is increasing and yet after he did the initial Casodex, got the injection of Zolodex, his symptoms are lessening greatly. He has reduced pain meds, sometimes even to the point where an Advil and Tylenol will

Hi everybody! I was diagnosed with PBC in 2016. At the time my ALK PHOS was 375. I started on URSO right away. 1000mg a day (500 mg twice a day). ALK PHOS started steadily coming down. A year ago it was down to 116, which was the borderline with the high limit of the range. However, in 6 months after

Questions: My husband diagnosed Stage IV 13 years ago. He's not been on Casodex or Zolodex since 2014. We hadn't taken a PSA for about 6 weeks. His psa went from 55 to 64 in that time. It was the alk phos that scared us, it shot up to 740, I honestly can't remember the number.. it was at another blood

At the Mayo Clinic today getting labs and scans. My PSA has jumped from 300 to 815 in 2 months and for the first time in my 3.5 years of battling this disease my alkaline phosphatase is elevated and I’m mildly anemic. Heading in the wrong direction for sure. Will see what bone scan and CT’s show but