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Some Questions

Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Dett profile image
Dett
in Advanced Prostate Cancer

Still more questions than answers.

I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
Costarica1961 profile image
Costarica1961
in Advanced Prostate Cancer

Not all The lu 177 side effects noted, that I have experienced were in the Broschüre.

I had my first dose on feb 23rd and the first few days after treatment with no real issues, until, about day 4. I experienced nausea , vomiting, and lower back pain as well as rib and thigh pains accompanied by neck and cranium discomfort. My stomach is cramping some of these side effects are normal
I had my first dose on feb 23rd and the first few days after treatment with no real issues, until, about day 4. I experienced nausea , vomiting, and lower back pain as well as rib and thigh pains accompanied by neck and cranium discomfort. My stomach is cramping some of these side effects are normal
Costarica1961 profile image
Costarica1961
in Advanced Prostate Cancer
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What now, coach? (PCa has spread to liver within 3 months of starting Eligard.)

Hello all, I have a dilemma, and I would definitely appreciate any ideas that you might have. The dilemma is, will it be safe for me to start my initial Docetaxel treatments on Monday, 2-28-22, considering the new information I now have showing my PCa has rather dramatically spread to my liver. Below
Hello all, I have a dilemma, and I would definitely appreciate any ideas that you might have. The dilemma is, will it be safe for me to start my initial Docetaxel treatments on Monday, 2-28-22, considering the new information I now have showing my PCa has rather dramatically spread to my liver. Below
Skipper238 profile image
Skipper238
in Advanced Prostate Cancer

Liver enzyme question.

I know there are lots of posts about the alt/ast ratio. I have spent more time than I care to admit reading about that damn ratio! I just wondered if anyone had any experience or educated opinions on an inverted ratio alongside low alk phos levels? I recently had bloodwork done and my AST was 21, ALT
I know there are lots of posts about the alt/ast ratio. I have spent more time than I care to admit reading about that damn ratio! I just wondered if anyone had any experience or educated opinions on an inverted ratio alongside low alk phos levels? I recently had bloodwork done and my AST was 21, ALT
Badger12345 profile image
Badger12345
in British Liver Trust

Metabolic Panel ?

Hello Friends , Im on 6 mo.Eligard . Feb. 1st I started Zytiga , 250mg with 5mg of prednisone taken on a light breakfast . Also started on Feb. 1st are 25 days of IMRT. 1 month earlier I had 1 hot lymph Node radiated with SBRT . So now how often should Albumin , Alk Phos , AST , ALT, PSA , or any other
Hello Friends , Im on 6 mo.Eligard . Feb. 1st I started Zytiga , 250mg with 5mg of prednisone taken on a light breakfast . Also started on Feb. 1st are 25 days of IMRT. 1 month earlier I had 1 hot lymph Node radiated with SBRT . So now how often should Albumin , Alk Phos , AST , ALT, PSA , or any other
reconjj profile image
reconjj
in Advanced Prostate Cancer

5 years since diagnosed...

1st, sorry this is long... Made my Mama's homemade Tamales! Where did I get the energy. You tell me. This past year has been strange. Got my vaccines and the booster. And after my 2nd vaccine I experienced about week of energy. It was weird. Told my hep about it. He shrugged his shoulders. I just enjoyed
1st, sorry this is long... Made my Mama's homemade Tamales! Where did I get the energy. You tell me. This past year has been strange. Got my vaccines and the booster. And after my 2nd vaccine I experienced about week of energy. It was weird. Told my hep about it. He shrugged his shoulders. I just enjoyed
Ktltel profile image
Ktltel
in PBC Foundation

Pbc with psc overlap

Hi can anyone help me , I was diagnosed with Pbc in 2012 and have been on urso since then , but my alt and my ALK phos remains high . I was referred to Addenbrooks and was told they were going to try a 2nd line Treatment. When it went to the MDT board they looked at my scans and now think I have a PSC
Hi can anyone help me , I was diagnosed with Pbc in 2012 and have been on urso since then , but my alt and my ALK phos remains high . I was referred to Addenbrooks and was told they were going to try a 2nd line Treatment. When it went to the MDT board they looked at my scans and now think I have a PSC
Kieraferret profile image
Kieraferret
in PBC Foundation

Rising PSA after chemo, next steps?

My husband, 67, was Dx with high volume aggressive metastatic PC in April. PSA was 72.8. Started degarelix, had 6 sessions of docetaxel, added abiraterone in August, consolidative SBRT in September. Lowest PSA was 0.99 right after chemo, in August. In September, 1.12, October 1.87, and now in November
My husband, 67, was Dx with high volume aggressive metastatic PC in April. PSA was 72.8. Started degarelix, had 6 sessions of docetaxel, added abiraterone in August, consolidative SBRT in September. Lowest PSA was 0.99 right after chemo, in August. In September, 1.12, October 1.87, and now in November
leebeth profile image
leebeth
in Advanced Prostate Cancer

Chemo

Why would psa come up and Alk phos come down. This is all so confusing. I’m so sorry to be redundant just trying to understand. I’m not getting answers from our local Oncologist and have to wait for our other Oncologist Dr Beltran to get some answers. Sorry
Why would psa come up and Alk phos come down. This is all so confusing. I’m so sorry to be redundant just trying to understand. I’m not getting answers from our local Oncologist and have to wait for our other Oncologist Dr Beltran to get some answers. Sorry
Fight11 profile image
Fight11
in Advanced Prostate Cancer

Big decisions, huge consequences.

My psa has soared to 361 from 91 and previously 6. My alk phos is 700 plus i am feeling some pain in my kidney region and perhaps, liver area. I am considering a quick trip abroad for Lu 177, the fda approval not quite settled state side yet. Very scared this might be my swan Song. Just finished
My psa has soared to 361 from 91 and previously 6. My alk phos is 700 plus i am feeling some pain in my kidney region and perhaps, liver area. I am considering a quick trip abroad for Lu 177, the fda approval not quite settled state side yet. Very scared this might be my swan Song. Just finished
Costarica1961 profile image
Costarica1961
in Advanced Prostate Cancer

Need Help Interpreting Results

The MO has refused to order a bone-specific ALP test. Husband does have primary hyperparathyroidism (benign tumor on a parathyroid gland), which can cause increased ALP, but I would think it would be more stable. Thanks for any insight that you can provide.
The MO has refused to order a bone-specific ALP test. Husband does have primary hyperparathyroidism (benign tumor on a parathyroid gland), which can cause increased ALP, but I would think it would be more stable. Thanks for any insight that you can provide.
Dett profile image
Dett
in Advanced Prostate Cancer

Update on Keytruda .

I just had my third infusion of Keytruda and so far things are going in the right direction. At the start of treatment my PSA was 34, after 1st infusion my PSA dropped to 20 and after 2nd infusion PSA is 10. Also my ALK Phos is back in the normal range. My only concern is my hemoglobin dropped from
I just had my third infusion of Keytruda and so far things are going in the right direction. At the start of treatment my PSA was 34, after 1st infusion my PSA dropped to 20 and after 2nd infusion PSA is 10. Also my ALK Phos is back in the normal range. My only concern is my hemoglobin dropped from
Jackpine profile image
Jackpine
in Advanced Prostate Cancer

Next step. Comments?

I posted a couple of weeks ago. Please look at that plus bio for more background. After Taxotere (6 ending in Feb 2021), PSA went form 1100 (Aug 2020) to 8. From April 20 to July 10, my PSA has risen from 8 to 36. My Alk Phos has risen from 60 to 154. I have had some pain in my hips, sometimes bad, but
I posted a couple of weeks ago. Please look at that plus bio for more background. After Taxotere (6 ending in Feb 2021), PSA went form 1100 (Aug 2020) to 8. From April 20 to July 10, my PSA has risen from 8 to 36. My Alk Phos has risen from 60 to 154. I have had some pain in my hips, sometimes bad, but
RunThru profile image
RunThru
in Advanced Prostate Cancer

Why can't I get Prostate SBRT when I'm metastatic?

I've been on ADT for about 5 years and through standard radiation to Cervical and Thoracic vertebrae (thoracic vertebrae now collapsed). I've been through Xofigo series and a month after that finished, had more Mets than I started with. Seems like the bone is left in a weakened state and CTCs repopulate
I've been on ADT for about 5 years and through standard radiation to Cervical and Thoracic vertebrae (thoracic vertebrae now collapsed). I've been through Xofigo series and a month after that finished, had more Mets than I started with. Seems like the bone is left in a weakened state and CTCs repopulate
mikell profile image
mikell
in Advanced Prostate Cancer

Update and first time referral to a neph...

Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Bananas2007 profile image
Bananas2007
in Kidney Disease

ALT & ALK exceptionally HIGH. Feeling very very anxious.

Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
blaisepascal profile image
blaisepascal
in British Liver Trust

How are ones coping that are experiencing advanced fibrosis and cirrhosis?

Hi everyone, Stella here. I haven't posted a question for awhile. This particular question may be too personal for some to respond to. But, if you want to share please, please, do. I find myself now almost 5 years into my PBC diagnoses. How time flies. Doctor says I've had it unknowingly for many years
Hi everyone, Stella here. I haven't posted a question for awhile. This particular question may be too personal for some to respond to. But, if you want to share please, please, do. I find myself now almost 5 years into my PBC diagnoses. How time flies. Doctor says I've had it unknowingly for many years
Ktltel profile image
Ktltel
in PBC Foundation

New Here! Completely Lost! Any Help Appreciated!

Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Orange915618 profile image
Orange915618
in Living with Reflux - Babies & Children

New Here! Completely Lost! Any help appreciated!

Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Orange915618 profile image
Orange915618
in Living with Asthma
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