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Boston Scientific I/v cardioverter) defibrillator question
Hi looking for first experiences of having the above device fitted. I'm one week on from the implant and the soreness from the operation is settling down. I am still sleeping on my right side which is fine. But when I am lying flat the box starts firing off, I guess in cardioverter mode. It's set
Hi looking for first experiences of having the above device fitted. I'm one week on from the implant and the soreness from the operation is settling down. I am still sleeping on my right side which is fine. But when I am lying flat the box starts firing off, I guess in cardioverter mode. It's set
Chinkoflight
in
Atrial Fibrillation Support
2 months ago
Some new science on why women are more prone to autoimmune disease
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
whisperit
in
LUPUS UK
4 months ago
holter monitor
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
Deltrot53
in
Atrial Fibrillation Support
2 months ago
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Jean Jackson
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
jeanjack
in
Lung Conditions Community Forum
4 months ago
Can anyone please offer advice?
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
anniemac81
in
Thyroid UK
4 months ago
Chris Kamara and Things Thyroid
I found this interesting as he supported the thyroid care petition, and before that I didn’t even realise that he also had a thyroid problem. I remember also wondering myself about Alzheimers the other year as I didn’t know what was happening to me. https://amp.theguardian.com/football/2023/nov/04
I found this interesting as he supported the thyroid care petition, and before that I didn’t even realise that he also had a thyroid problem. I remember also wondering myself about Alzheimers the other year as I didn’t know what was happening to me. https://amp.theguardian.com/football/2023/nov/04
mrskiki
in
Thyroid UK
7 months ago
AF & Bradycardia
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Flippy1
in
Atrial Fibrillation Support
2 months ago
Low saturation with PV and Jakavi 20
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
Quitojohn
in
MPN Voice
2 months ago
What to do.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Lupus SLE, APS, Vasculitis
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
Newlupus76
in
LUPUS UK
4 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
2 months ago
Becoming a grumpy old git !
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
BenHall1
in
Atrial Fibrillation Support
2 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
4 months ago
MOST RECENT PSA and TESTOSTERONE TEST
My PSA and testosterone test results have been PSA .01 and T 11 since July of 2022. I had my quarterly test done yesterday and my PSA is at .02 and T is at 21.5. They are still undetectable, but not sure what caused the rise. I've only been on Firmagon for 1 year and 4 months so I hope it doesn't
My PSA and testosterone test results have been PSA .01 and T 11 since July of 2022. I had my quarterly test done yesterday and my PSA is at .02 and T is at 21.5. They are still undetectable, but not sure what caused the rise. I've only been on Firmagon for 1 year and 4 months so I hope it doesn't
GMan-62
in
Advanced Prostate Cancer
7 months ago
Abdomen pain - IBS
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
Wobbies
in
IBS Network
4 months ago
I am 70 years of age & pretty much alone
I have had one sided thyroid problem for 25yrs & tests say its working fine but I gained 21 pounds over 3 weeks, all the usual underactive thyroid symptoms but no meds. All that's on offer is surgery, I have been told for many years you have abnormal cells, not cancerous but could turn that way. I have
I have had one sided thyroid problem for 25yrs & tests say its working fine but I gained 21 pounds over 3 weeks, all the usual underactive thyroid symptoms but no meds. All that's on offer is surgery, I have been told for many years you have abnormal cells, not cancerous but could turn that way. I have
Floral777
in
Thyroid UK
4 months ago
Ablation
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
Midnight2022
in
Atrial Fibrillation Support
2 months ago
Advice post ablation
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
afhanhound
in
Atrial Fibrillation Support
2 months ago
Travelling abroad with coeliac
Hi Recently been diagnosed with coeliac disease and going for a European interrail trip in the summer. Probably staying in hotels 1 or 2 nights before going to a different country. Can anyone give me some advice which countries are good with gluten free foods and any practical advice. e.g. do I take
Hi Recently been diagnosed with coeliac disease and going for a European interrail trip in the summer. Probably staying in hotels 1 or 2 nights before going to a different country. Can anyone give me some advice which countries are good with gluten free foods and any practical advice. e.g. do I take
Welshtoffee
in
Gluten Free Guerrillas
4 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
4 months ago
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