Experiences with

Alexander disease

I am so disheartened! My dad had a really bad infection the past two weeks. He's just gotten over it really turned a corner had a trachy fitted and we've been told he has ANOTHER infection! 😭 I am so drained how long will this continue, he is now on day 30 on the vent, continuous infections, really

https://neurosciencenews.com/sesaminol-parkisons-17942/ I have read that we (everyone not just PWP) can not digest sesame seeds (likewise with many other seeds) and that they pass through us not being absorbed thus defeating the purpose. Sesame oil is missing the key ingredient Sesaminol. Can anyone

FROM PRACTICE UPDATE. TAKE-HOME MESSAGE In this prospective phase II study, men with metastatic castration-resistant prostate cancer (mCRPC) previously treated with abiraterone were randomized to receive bipolar androgen therapy (BAT) or enzalutamide (enza). Crossover was permitted. With a PSA response

Hi all, I was diagnosed with alcohol related Cirrhosis 5 years ago and have been abstinent since. I am experiencing right quadrant pain and generalised itching. My LFT results were in normal range except for bilirubin. I am having a CT scan with contrast today but I am concerned about the cause. I know

My husband is on Zytiga along with prednisone! His psa has slowly been creeping up. It was. 12.2 then 13.6 now 14.2. It never actually even came all the way down. He has been on this since September . Two Oncologists said he is stable and they want to get the most out of the Zytiga they can. How can

FYI - ( see article in link for pics/graphs) https://medicalxpress.com/news/2021-03-sesaminol-parkinson-disease-pathway.html Researchers report that the chemical sesaminol, naturally occurring in sesame seeds, protects against Parkinson's disease by preventing neuronal damage that decreases the production

For the past few years my LFT readings for ALT+GGT have been slightly raised with no obvious reasons. I’ve had ultrasounds, CT scan, Fibrosis score, detailed blood test etc and the doctor doesn’t know why this is going on. I decided to review my diet and take action to reduce my BMI (30+) following my

On March 1, I had my three monthly blood works, oncology appointment, and Eligard shot. My PSA went down to 0.193 from 0.266 three months ago. This is not as low as I expected. When I restarted ADT treatment in September 2020, my PSA drop rate was lower than the rate when I started initial treatment

Hello :) I’m just wondering if it’s normal for women with endometriosis to have red blood cells in your urine. I have all the classic symptoms of endometriosis and I’m waiting for a laparoscopy from June 2020 still pending but things are getting worser each month. My doctor informed me this week I had

Hello! My name is Holly, and I’m 4 months post transplant. I’m feeling more energetic and stronger, but my hair is coming out fast. I just ordered a wig, but I’m not sure I’ll ever wear it. I also have kidney failure and do dialysis . They’re trying to get me to move my catheter from my chest to my stomach

The Parkinson's Movement forum hosted by Health Unlocked is an initiative of Cure Parkinson's, a UK-based Parkinson's research charity. In recent weeks we have brought Parkinson's Movement under the Cure Parkinson's umbrella to ensure we deliver research information that might be of interest to you quickly

Is Panadol safe to take with my current meds. Bisoprolol Candersatan Spironlactone etc. Tia

Hello my friends, I have been an alcoholic for 3 years now. I didn't began to drink VERY heavily until about a year. I easily consume a bottle of 40 percent alcoholic beverages. Throughout the week I would drink enough to get me "drunk", but would always try my "best" to stop drinking enough in order

I had RP nearly a year ago at 73 years of age with the prostate and 10 lymph nodes removed. One lymph node was found to contain PC. My Gleason score was 4+3=7. I switched to ultra sensitive PSA for may last two test. Results were 0.028 and the latest 0.026. As I understand with the prostate removed

I just got my renal panel data from yesterday’s labs. A huge improvement in my eGFR, creatinine, and BUN. My eGFR improved from 15- 16 up to 20 eGFR for the first time since my kidneys plummeted from stage IIIb well into renal failure (eGFR 8) the first week of January 2017. My creatinine improved from

Does anyone know what pressure support on a ventilator ? We’ve just had a worrying phone call from the hospital that the pressure support has gone up from 12 to 15 ( the nurse said this is the maximum on the ventilator) the peep is 5 and the oxygen has gone up to 55% to 65%??. From being stable at 40%

Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of

Hello everyone, I have some health problems, recently i feeling very weak, fatigue, and discomfort under right abdonmen. I did a blood test, its all fine except i have little bit more direct bilirubin increase and indirect bilirubin increase. 6 months ago i had echoscopy and diagnosed gallbladder polyp

Hi everyone, I made a post on here about a month ago regarding my father who suffered a ruptured brain aneurysm alongside small strokes and seizures on the left side of his brain shortly after. A month ago, he was pretty much out of it and would barely even open his eyes. He has made great improvements

The dr said that “we are still in the upfront treatment” for this prostate cancer reoccurrence what exactly does that mean? I’m thinking it’s a medical Meaning