Search
Search
About
Log in
Join
Experiences with
Alexander disease
Posts
Communities
36,645 public posts
Filter results
Effects of heat on vision....Optic neuritis
Last week when I went to the neuro-opthalmologist, we had just experienced some 90+ degrees days in Indiana, USA. Even though my optic nerve and visual field scan had not changed, I had more trouble reading the eye chart. The doctor explained Uhthoff's phenomenon to me when I said my right eye was
Last week when I went to the neuro-opthalmologist, we had just experienced some 90+ degrees days in Indiana, USA. Even though my optic nerve and visual field scan had not changed, I had more trouble reading the eye chart. The doctor explained Uhthoff's phenomenon to me when I said my right eye was
Grammy80
in
PMRGCAuk
Is fibrosis f2 reversible?
Had fibroscan today. Score of 9.2. Is this reversible? I was pleased it wasnt cirrhosis. I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so
Had fibroscan today. Score of 9.2. Is this reversible? I was pleased it wasnt cirrhosis. I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so
Bigbluemonkey
in
British Liver Trust
PBC suspecting
Hi, I am very worried about my liver tests, and possibly PBC. I have been having yearly blood tests since 2008 (except 2019 and 2020), LFT were always normal, until November 2021, my AST, ALT, was about 3 times the norm and GGT was 4 units up. The tests were repeated in January, enzymes went slightly
Hi, I am very worried about my liver tests, and possibly PBC. I have been having yearly blood tests since 2008 (except 2019 and 2020), LFT were always normal, until November 2021, my AST, ALT, was about 3 times the norm and GGT was 4 units up. The tests were repeated in January, enzymes went slightly
Cat1966
in
PBC Foundation
Want to take advantage of all our features? Just log in!
Log in
or
Join
Effects of metformin and statins on outcomes in men with castration-resistant metastatic prostate cancer
New international study, below [1]. "Secondary analysis of COU-AA-301 and COU-AA-302" [2] & [3].
Objective:
To determine whether metformin or statins ± abiraterone acetate plus prednisone/prednisolone (AAP) influence OS {overall survival} and PSA-RR {prostate specific antigen response rate}.
New international study, below [1]. "Secondary analysis of COU-AA-301 and COU-AA-302" [2] & [3].
Objective:
To determine whether metformin or statins ± abiraterone acetate plus prednisone/prednisolone (AAP) influence OS {overall survival} and PSA-RR {prostate specific antigen response rate}.
pjoshea13
in
Advanced Prostate Cancer
Duration of ADT
Just for a quick re cap, diagnosed December 2020. RP January 2021 with Gleason 4+3, extra-prostatic extension, 1 node pos T3aN1. Started ADT and abiraterone then 4m later pelvic RT. PSA still undetectable and Testosterone <2. The original plan was for 2 years of ADT and AA. At ESMO 2021 Dr
Just for a quick re cap, diagnosed December 2020. RP January 2021 with Gleason 4+3, extra-prostatic extension, 1 node pos T3aN1. Started ADT and abiraterone then 4m later pelvic RT. PSA still undetectable and Testosterone <2. The original plan was for 2 years of ADT and AA. At ESMO 2021 Dr
hg115pb
in
Advanced Prostate Cancer
Lysine And Covid-19, Cut The Crap!
Yesterday I made a reply to one of Marc's recent posts, but there was some very interesting information in that post that I would like to highlight as I feel it is very important for anyone living on this planet in the age of Covid! In my reply to Marc, I linked to a July 2021 study that showed that
Yesterday I made a reply to one of Marc's recent posts, but there was some very interesting information in that post that I would like to highlight as I feel it is very important for anyone living on this planet in the age of Covid! In my reply to Marc, I linked to a July 2021 study that showed that
chartist
in
Cure Parkinson's
PSA jump after 2weeks post-RALP - does this indicate CRPC?
Hi all. This situation is a bit abnormal, but wanted to gather some thoughts. My father was DX'ed last September with Gleason 4+4, tertiary 5. He had his RALP + PLND 2 weeks ago. Pathology showed ECE+, PNI+, SVI+, LVI-, 2/16 small LN mets (unfortunately, poorer than what imaging showed), and close PSM
Hi all. This situation is a bit abnormal, but wanted to gather some thoughts. My father was DX'ed last September with Gleason 4+4, tertiary 5. He had his RALP + PLND 2 weeks ago. Pathology showed ECE+, PNI+, SVI+, LVI-, 2/16 small LN mets (unfortunately, poorer than what imaging showed), and close PSM
sixmongoos
in
Advanced Prostate Cancer
Use of adjustable bed with cirrhosis and COPD
Hi, I've recently been diagnosed with alcohol related cirrhosis. Had a long conversation with my consultant last week and apparently I'm at stage A which is quite good to hear. I have a gastroscopy booked for 26th to check for varices and will be having a bone scan, vitamin check and tests to check
Hi, I've recently been diagnosed with alcohol related cirrhosis. Had a long conversation with my consultant last week and apparently I'm at stage A which is quite good to hear. I have a gastroscopy booked for 26th to check for varices and will be having a bone scan, vitamin check and tests to check
eileenet49
in
British Liver Trust
Trace ascites
Just wondering if anyone knows what trace ascites means exactly. It was reported on my wifes mri,she has stage 3 cirrhosis caused by pbc,diagnosed 4 years ago.Has 6 month ultrasounds and mris alternatively, first time seeing this on a report,thank you
Just wondering if anyone knows what trace ascites means exactly. It was reported on my wifes mri,she has stage 3 cirrhosis caused by pbc,diagnosed 4 years ago.Has 6 month ultrasounds and mris alternatively, first time seeing this on a report,thank you
Mikec1960
in
PBC Foundation
What else is available?
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
27-359
in
My Ovacome
Blood test results
Hi, following my recent post highlighting persisting symptoms of fatigue, nausea, blurred vision & short breath, being on 100mg of Teva Levothyroxine, please could comment on test results. Been referred back to Endocrinologist who discharged me last year…seem to be going in circles. Can only upload
Hi, following my recent post highlighting persisting symptoms of fatigue, nausea, blurred vision & short breath, being on 100mg of Teva Levothyroxine, please could comment on test results. Been referred back to Endocrinologist who discharged me last year…seem to be going in circles. Can only upload
Lotus77
in
Thyroid UK
Finally an answer-Mucin 1 ADTKD
Hi ckd friends, Do you have a family history of kidney disease that includes a parent, grandparent, Aunts and uncles etc with no explanation for the cause? Do you have a bland urinalysis (no blood and little to no protein), with near normal blood pressure and all your other labs are in line? So did
Hi ckd friends, Do you have a family history of kidney disease that includes a parent, grandparent, Aunts and uncles etc with no explanation for the cause? Do you have a bland urinalysis (no blood and little to no protein), with near normal blood pressure and all your other labs are in line? So did
Jamok
in
Early CKD Support
Lost
I live with my parents, always have done. We are very close, they are my best friends. 3 months ago, my life started to fall apart. My dad got diagnosed with liver cancer caused by Hemochromatosis. We have fought so hard but the cancer took over and he was too weak to be able to have any form of treatment
I live with my parents, always have done. We are very close, they are my best friends. 3 months ago, my life started to fall apart. My dad got diagnosed with liver cancer caused by Hemochromatosis. We have fought so hard but the cancer took over and he was too weak to be able to have any form of treatment
Bella-boo
in
Anxiety Support
Liver cancer that has migrated
Hello everyone I had liver cancer in 2018 and unfortunately have been told yesterday I have lung cancer and will be needing chemotherapy however they said I will need a stronger chemo because they are treating it as liver cancer that has migrated to my lungs. I wanted to ask if anyone else has had a
Hello everyone I had liver cancer in 2018 and unfortunately have been told yesterday I have lung cancer and will be needing chemotherapy however they said I will need a stronger chemo because they are treating it as liver cancer that has migrated to my lungs. I wanted to ask if anyone else has had a
Valentina_22
in
Liver4Life
Why I Choose an Unproven Treatment
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
MateoBeach
in
Fight Prostate Cancer
Why I Choose an Unproven Treatment
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
MateoBeach
in
Advanced Prostate Cancer
TTFD effective for PD? More effective than Benfotiamine or thiamine?
Collectively, our findings provide direct evidence that TTFD administration induces voluntary locomotor activity via D1-receptor-mediated dopaminergic activity in the mPFC. TTFD also induces voluntary running in a dose-dependent manner, likely due to the same neural mechanism. This is the first study
Collectively, our findings provide direct evidence that TTFD administration induces voluntary locomotor activity via D1-receptor-mediated dopaminergic activity in the mPFC. TTFD also induces voluntary running in a dose-dependent manner, likely due to the same neural mechanism. This is the first study
NeuroResearcher
in
Cure Parkinson's
Let down by promises
Just about a year ago, I was diagnosed having Cirrhosis of the liver, the consultant asked if I would like to be put on a trial of a new medication (not told the name), I was told it would start early this year, When nothing happened, I started to chase this up (bearing in mind I was also told I would
Just about a year ago, I was diagnosed having Cirrhosis of the liver, the consultant asked if I would like to be put on a trial of a new medication (not told the name), I was told it would start early this year, When nothing happened, I started to chase this up (bearing in mind I was also told I would
Mick1414
in
British Liver Trust
30 months with PCA - experiences with ADT, Docetaxel, Xtandi / Nubeqa, Provenge and experimental immunotherapy trial.
Hi, I posted for the first time on this forum after my father (59) was diagnosed with stage IV prostate cancer in November of 2019. I want to share our progress in this fight so far so that it can be added to the repository and used by others down the line to make informed decisions about treatment
Hi, I posted for the first time on this forum after my father (59) was diagnosed with stage IV prostate cancer in November of 2019. I want to share our progress in this fight so far so that it can be added to the repository and used by others down the line to make informed decisions about treatment
Namork
in
Advanced Prostate Cancer
Crohn’s Diagnosis ?
I was wondering if anyone who has been diagnosed with Crohn’s disease could help me. I developed a fistula in July’s of 2021. I have no family history of IBD disease. When I realized most people who get fistulas also have IBD I started having severe stomach pain 24-7 I couldn’t eat for months. I did
I was wondering if anyone who has been diagnosed with Crohn’s disease could help me. I developed a fistula in July’s of 2021. I have no family history of IBD disease. When I realized most people who get fistulas also have IBD I started having severe stomach pain 24-7 I couldn’t eat for months. I did
RC723
in
Crohn's and Colitis Support
1
2
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5034 results
LUPUS UK
3694 results
British Liver Trust
3627 results
View top 10 communities
Sort by
Most Relevant
Most Positive
New
What's this?
Newest