Experiences with

Alexander disease

I was initially diagnosed with prostate cancer un 2021 and treated with 23 radiation treatments and radioactive beads. In April of 2024 my Psa started to rise significantly and subsequent imaging showed I had stage 4 cancer that had spread to my lymph nodes. I was put on leuprolide inJune of 2024 and

After battling kidney failure and receiving a transplant, Andrew is determined to become a doctor and change lives. Read more: https://www.kidney.org/news-stories/how-kidney-failure-diagnosis-and-transplant-inspired-future-doctor

To all the parents going through tough times: If you're facing challenges, hold on and have faith in God. No matter how difficult the journey, keep moving forward—there is hope. I want to share my story to give strength to those in similar situations. After three miscarriages, I was blessed with

Hi, brand new on here. I was diagnosed in July 2023 and haven't drank since. Feeling better and not on transplant list which is confusing me a little. I kind of don't know whether I will need one or if my liver recompensating means I won't ever need one. I will never drink again ever that's been my biggest

last 18 months have seen me in daily pain with reduced mobility due to lumbar spine stenosis and cauda equina. after being on waiting list for spinal injection for 8 months finally have a date in two weeks… I can’t have operation as I have aortic stenosis .I’m now having painful bladder problems..

Hi everyone. I have had breast cancer twice. The last time was in 2023. I have had a few health scares since and have been mentioning grumbling niggling pains under my right ribs for a while. Always worried about mets so I had a CT in May 2024. Mildly fatty liver but all good apart from that. My

I am recovering from a hysterectomy and anterior and posterior pelvic floor repair nearly 12 weeks ago. For the last few weeks I have become extremely sore at the vaginal entrance and can feel knotty lump’s which I think is scar tissue. I cannot wear anything other than leggings as jeans etc make it

I’m 48 and was diagnosed last year with advanced metastatic prostate cancer, affecting my lymph nodes, pelvic bones, and ribs. I finished chemo with Docetaxel in December. Given my age, I’m aiming for an aggressive treatment approach and am currently exploring radiation to the prostate and pelvic bones

Please check out our recent workshop featuring patients who have received treatments for different liver conditions! They will share their stories, followed by a Q&A session. This event is perfect for liver cancer patients, caregivers, providers, or anyone interested in learning more about liver health

recently started both Orgo and Xtandi for stage 4 Had previous HD brachy and EBRT of prostate which went well had cat and bone scans after that showed nothing except 4 bone mets 2 in spine and 2 in lower spin and hip These probably escaped prior to my above treatments as the treated area looks

​ATNM-400 is an innovative radiotherapy for advanced prostate cancer that utilizes Actinium-225 and targets a marker other than PSMA (still undisclosed, but there will be a presentation by the end of April). In preclinical studies, a single dose achieved up to 99.8% tumor growth inhibition, with selective

A very interesting interview with Dr Jonathan Sackner-Bernstein on the Parkinsons Education Podcast. He has a trial going at the moment where he uses a L Tyrosine inhibitor (Called RB190, if I recall correctly ) to treat PD. RB190 has already been approved by the FDA for other treatment. https://www.youtube.com

Good evening fellow warriors and members of this f’n club none of us signed up for. I started this journey 6/2012 with Gleason 9 (5+4) and a RP, Surgical pathology showed seminal vesicle invasion, 2 positive pelvic nodes and a good luck from my surgeon. Reoccurrence 2013 brought on pelvic EBRT and short

“We are at a pivotal moment in our company’s journey as we have entered the late clinical stages for both Alzheimer’s and Parkinson’s,” said Maria Maccecchini, Ph.D., Founder and CEO of Annovis Bio. “It is incredibly rewarding to see our work bring us here, once again supporting that our drug is efficacious

In the LNCaP-abl model, prolonged androgen deprivation across approximately 87 cell culture passages (roughly 8–12 months in vitro) drives prostate cancer cells to adapt to low-androgen conditions. This adaptation includes: • AR Overexpression: A roughly 4-fold increase in androgen receptor (AR) protein

My husband was newly diagnosed with stage 4 prostate cancer Gleason 9,his psa is 58 now and he will start cemo on Thursday he is 51 years old What is the best way to tell our children, I don't want them to live the shock I'm living Thanks

has anyone have a Fibro scan that was wrong? I had one at a liver road show last Oct, cap was 188, kpa 15.8, I then had a load of bloods which were normal, uss completely normal. I am a bit of a weekend drinker, and the week before the scan had been in Cyprus and drunk quite a lot, and 2 days before

hi so I have had fluctuating high ALT since 2014, with the highest being 400+ in January this year. I’ve had 2 liver biopsies both of which came back normal I’ve had 2 fibroscans which showed 3.5 in 2020 and 4.5 last month (2025) so still within limits . I’ve asked to change hospitals as my consultant

Hi everyone I wonder if anyone can give me advice/help allay my anxiety over on-board oxygen for my teenager! His fit to fly test was borderline, but the consultant says it would be a good idea to have it on board and use if needed/when sleeping (I can test SATS with oximeter). Has anyone else here

Hi allFor how long have you been fighting grade 4 metastatic prostate cancer And so you have any tip or advice that can help my husband who was newly diagnosed 🙏