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Alexander disease

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One step forward, two steps back.

I am so disheartened! My dad had a really bad infection the past two weeks. He's just gotten over it really turned a corner had a trachy fitted and we've been told he has ANOTHER infection! 😭 I am so drained how long will this continue, he is now on day 30 on the vent, continuous infections, really
I am so disheartened! My dad had a really bad infection the past two weeks. He's just gotten over it really turned a corner had a trachy fitted and we've been told he has ANOTHER infection! 😭 I am so drained how long will this continue, he is now on day 30 on the vent, continuous infections, really
StayStrongDad
in ICUsteps

Sesaminol Parkinson's Disease "Medicine" - supplements or sources?

https://neurosciencenews.com/sesaminol-parkisons-17942/ I have read that we (everyone not just PWP) can not digest sesame seeds (likewise with many other seeds) and that they pass through us not being absorbed thus defeating the purpose. Sesame oil is missing the key ingredient Sesaminol. Can anyone
https://neurosciencenews.com/sesaminol-parkisons-17942/ I have read that we (everyone not just PWP) can not digest sesame seeds (likewise with many other seeds) and that they pass through us not being absorbed thus defeating the purpose. Sesame oil is missing the key ingredient Sesaminol. Can anyone
cclemonade
in Parkinson's Movement

Bipolar Androgen Therapy vs Enzalutamide in Asymptomatic Men With Castration-Resistant Metastatic Prostate Cancer.

FROM PRACTICE UPDATE. TAKE-HOME MESSAGE In this prospective phase II study, men with metastatic castration-resistant prostate cancer (mCRPC) previously treated with abiraterone were randomized to receive bipolar androgen therapy (BAT) or enzalutamide (enza). Crossover was permitted. With a PSA response
FROM PRACTICE UPDATE. TAKE-HOME MESSAGE In this prospective phase II study, men with metastatic castration-resistant prostate cancer (mCRPC) previously treated with abiraterone were randomized to receive bipolar androgen therapy (BAT) or enzalutamide (enza). Crossover was permitted. With a PSA response
Balsam01
in Advanced Prostate Cancer
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Worries about pain and itching.

Hi all, I was diagnosed with alcohol related Cirrhosis 5 years ago and have been abstinent since. I am experiencing right quadrant pain and generalised itching. My LFT results were in normal range except for bilirubin. I am having a CT scan with contrast today but I am concerned about the cause. I know
Hi all, I was diagnosed with alcohol related Cirrhosis 5 years ago and have been abstinent since. I am experiencing right quadrant pain and generalised itching. My LFT results were in normal range except for bilirubin. I am having a CT scan with contrast today but I am concerned about the cause. I know
Tonyp74
in British Liver Trust

Concerned over psa

My husband is on Zytiga along with prednisone! His psa has slowly been creeping up. It was. 12.2 then 13.6 now 14.2. It never actually even came all the way down. He has been on this since September . Two Oncologists said he is stable and they want to get the most out of the Zytiga they can. How can
My husband is on Zytiga along with prednisone! His psa has slowly been creeping up. It was. 12.2 then 13.6 now 14.2. It never actually even came all the way down. He has been on this since September . Two Oncologists said he is stable and they want to get the most out of the Zytiga they can. How can
Manohar11
in Advanced Prostate Cancer

Sesaminol prevents Parkinson's disease by activating a signaling pathway

FYI - ( see article in link for pics/graphs) https://medicalxpress.com/news/2021-03-sesaminol-parkinson-disease-pathway.html Researchers report that the chemical sesaminol, naturally occurring in sesame seeds, protects against Parkinson's disease by preventing neuronal damage that decreases the production
FYI - ( see article in link for pics/graphs) https://medicalxpress.com/news/2021-03-sesaminol-parkinson-disease-pathway.html Researchers report that the chemical sesaminol, naturally occurring in sesame seeds, protects against Parkinson's disease by preventing neuronal damage that decreases the production
John_morris71
in Parkinson's Movement

Elevated ALT + GGT caused by Keto / Low Carb ?

For the past few years my LFT readings for ALT+GGT have been slightly raised with no obvious reasons. I’ve had ultrasounds, CT scan, Fibrosis score, detailed blood test etc and the doctor doesn’t know why this is going on. I decided to review my diet and take action to reduce my BMI (30+) following my
For the past few years my LFT readings for ALT+GGT have been slightly raised with no obvious reasons. I’ve had ultrasounds, CT scan, Fibrosis score, detailed blood test etc and the doctor doesn’t know why this is going on. I decided to review my diet and take action to reduce my BMI (30+) following my
coxsox
in British Liver Trust

My Metastatic Prostate Cancer Update

On March 1, I had my three monthly blood works, oncology appointment, and Eligard shot. My PSA went down to 0.193 from 0.266 three months ago. This is not as low as I expected. When I restarted ADT treatment in September 2020, my PSA drop rate was lower than the rate when I started initial treatment
On March 1, I had my three monthly blood works, oncology appointment, and Eligard shot. My PSA went down to 0.193 from 0.266 three months ago. This is not as low as I expected. When I restarted ADT treatment in September 2020, my PSA drop rate was lower than the rate when I started initial treatment
dac500
in Advanced Prostate Cancer

First time post. Red blood cells in urine.

Hello :) I’m just wondering if it’s normal for women with endometriosis to have red blood cells in your urine. I have all the classic symptoms of endometriosis and I’m waiting for a laparoscopy from June 2020 still pending but things are getting worser each month. My doctor informed me this week I had
Hello :) I’m just wondering if it’s normal for women with endometriosis to have red blood cells in your urine. I have all the classic symptoms of endometriosis and I’m waiting for a laparoscopy from June 2020 still pending but things are getting worser each month. My doctor informed me this week I had
MoonChild3
in Endometriosis UK

Group Newbie

Hello! My name is Holly, and I’m 4 months post transplant. I’m feeling more energetic and stronger, but my hair is coming out fast. I just ordered a wig, but I’m not sure I’ll ever wear it. I also have kidney failure and do dialysis . They’re trying to get me to move my catheter from my chest to my stomach
Hello! My name is Holly, and I’m 4 months post transplant. I’m feeling more energetic and stronger, but my hair is coming out fast. I just ordered a wig, but I’m not sure I’ll ever wear it. I also have kidney failure and do dialysis . They’re trying to get me to move my catheter from my chest to my stomach
Hollypapa
in British Liver Trust

We have a new look, but the same urgent goal – to cure Parkinson’s

The Parkinson's Movement forum hosted by Health Unlocked is an initiative of Cure Parkinson's, a UK-based Parkinson's research charity. In recent weeks we have brought Parkinson's Movement under the Cure Parkinson's umbrella to ensure we deliver research information that might be of interest to you quickly
The Parkinson's Movement forum hosted by Health Unlocked is an initiative of Cure Parkinson's, a UK-based Parkinson's research charity. In recent weeks we have brought Parkinson's Movement under the Cure Parkinson's umbrella to ensure we deliver research information that might be of interest to you quickly
SuzeCPAdministrator
in Parkinson's Movement

Panadol with current meds

Is Panadol safe to take with my current meds. Bisoprolol Candersatan Spironlactone etc. Tia
Is Panadol safe to take with my current meds. Bisoprolol Candersatan Spironlactone etc. Tia
Nick1957
in AF Association

Do I have Jaundice, or early stages of cirrhosis?

Hello my friends, I have been an alcoholic for 3 years now. I didn't began to drink VERY heavily until about a year. I easily consume a bottle of 40 percent alcoholic beverages. Throughout the week I would drink enough to get me "drunk", but would always try my "best" to stop drinking enough in order
Hello my friends, I have been an alcoholic for 3 years now. I didn't began to drink VERY heavily until about a year. I easily consume a bottle of 40 percent alcoholic beverages. Throughout the week I would drink enough to get me "drunk", but would always try my "best" to stop drinking enough in order
Hidden
in British Liver Trust

Additional PC treatment

I had RP nearly a year ago at 73 years of age with the prostate and 10 lymph nodes removed. One lymph node was found to contain PC. My Gleason score was 4+3=7. I switched to ultra sensitive PSA for may last two test. Results were 0.028 and the latest 0.026. As I understand with the prostate removed
I had RP nearly a year ago at 73 years of age with the prostate and 10 lymph nodes removed. One lymph node was found to contain PC. My Gleason score was 4+3=7. I switched to ultra sensitive PSA for may last two test. Results were 0.028 and the latest 0.026. As I understand with the prostate removed
lhall2
in Advanced Prostate Cancer

EGFR Improvement!

I just got my renal panel data from yesterday’s labs. A huge improvement in my eGFR, creatinine, and BUN. My eGFR improved from 15- 16 up to 20 eGFR for the first time since my kidneys plummeted from stage IIIb well into renal failure (eGFR 8) the first week of January 2017. My creatinine improved from
I just got my renal panel data from yesterday’s labs. A huge improvement in my eGFR, creatinine, and BUN. My eGFR improved from 15- 16 up to 20 eGFR for the first time since my kidneys plummeted from stage IIIb well into renal failure (eGFR 8) the first week of January 2017. My creatinine improved from
Jayhawker
in Kidney Dialysis

Pressure support on a ventilator.

Does anyone know what pressure support on a ventilator ? We’ve just had a worrying phone call from the hospital that the pressure support has gone up from 12 to 15 ( the nurse said this is the maximum on the ventilator) the peep is 5 and the oxygen has gone up to 55% to 65%??. From being stable at 40%
Does anyone know what pressure support on a ventilator ? We’ve just had a worrying phone call from the hospital that the pressure support has gone up from 12 to 15 ( the nurse said this is the maximum on the ventilator) the peep is 5 and the oxygen has gone up to 55% to 65%??. From being stable at 40%
Letspray
in ICUsteps

Ceptava Mycophenolic acid

Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Willow1414
in LUPUS UK

Liver problems

Hello everyone, I have some health problems, recently i feeling very weak, fatigue, and discomfort under right abdonmen. I did a blood test, its all fine except i have little bit more direct bilirubin increase and indirect bilirubin increase. 6 months ago i had echoscopy and diagnosed gallbladder polyp
Hello everyone, I have some health problems, recently i feeling very weak, fatigue, and discomfort under right abdonmen. I did a blood test, its all fine except i have little bit more direct bilirubin increase and indirect bilirubin increase. 6 months ago i had echoscopy and diagnosed gallbladder polyp
Martinsm
in British Liver Trust

Brain Aneurysm Recovery

Hi everyone, I made a post on here about a month ago regarding my father who suffered a ruptured brain aneurysm alongside small strokes and seizures on the left side of his brain shortly after. A month ago, he was pretty much out of it and would barely even open his eyes. He has made great improvements
Hi everyone, I made a post on here about a month ago regarding my father who suffered a ruptured brain aneurysm alongside small strokes and seizures on the left side of his brain shortly after. A month ago, he was pretty much out of it and would barely even open his eyes. He has made great improvements
butterflybee1218
in Headway

Meaning

The dr said that ā€œwe are still in the upfront treatmentā€ for this prostate cancer reoccurrence what exactly does that mean? I’m thinking it’s a medical Meaning
The dr said that ā€œwe are still in the upfront treatmentā€ for this prostate cancer reoccurrence what exactly does that mean? I’m thinking it’s a medical Meaning
Chris52981
in Advanced Prostate Cancer
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