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Effects of heat on vision....Optic neuritis

Last week when I went to the neuro-opthalmologist, we had just experienced some 90+ degrees days in Indiana, USA. Even though my optic nerve and visual field scan had not changed, I had more trouble reading the eye chart. The doctor explained Uhthoff's phenomenon to me when I said my right eye was
Last week when I went to the neuro-opthalmologist, we had just experienced some 90+ degrees days in Indiana, USA. Even though my optic nerve and visual field scan had not changed, I had more trouble reading the eye chart. The doctor explained Uhthoff's phenomenon to me when I said my right eye was
Grammy80 profile image
Grammy80
in PMRGCAuk

Is fibrosis f2 reversible?

Had fibroscan today. Score of 9.2. Is this reversible? I was pleased it wasnt cirrhosis. I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so
Had fibroscan today. Score of 9.2. Is this reversible? I was pleased it wasnt cirrhosis. I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so
Bigbluemonkey profile image
Bigbluemonkey
in British Liver Trust

PBC suspecting

Hi, I am very worried about my liver tests, and possibly PBC. I have been having yearly blood tests since 2008 (except 2019 and 2020), LFT were always normal, until November 2021, my AST, ALT, was about 3 times the norm and GGT was 4 units up. The tests were repeated in January, enzymes went slightly
Hi, I am very worried about my liver tests, and possibly PBC. I have been having yearly blood tests since 2008 (except 2019 and 2020), LFT were always normal, until November 2021, my AST, ALT, was about 3 times the norm and GGT was 4 units up. The tests were repeated in January, enzymes went slightly
Cat1966 profile image
Cat1966
in PBC Foundation
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Effects of metformin and statins on outcomes in men with castration-resistant metastatic prostate cancer

New international study, below [1]. "Secondary analysis of COU-AA-301 and COU-AA-302" [2] & [3]. Objective: To determine whether metformin or statins ± abiraterone acetate plus prednisone/prednisolone (AAP) influence OS {overall survival} and PSA-RR {prostate specific antigen response rate}.
New international study, below [1]. "Secondary analysis of COU-AA-301 and COU-AA-302" [2] & [3]. Objective: To determine whether metformin or statins ± abiraterone acetate plus prednisone/prednisolone (AAP) influence OS {overall survival} and PSA-RR {prostate specific antigen response rate}.
pjoshea13 profile image
pjoshea13
in Advanced Prostate Cancer

Duration of ADT

Just for a quick re cap, diagnosed December 2020. RP January 2021 with Gleason 4+3, extra-prostatic extension, 1 node pos T3aN1. Started ADT and abiraterone then 4m later pelvic RT. PSA still undetectable and Testosterone <2. The original plan was for 2 years of ADT and AA. At ESMO 2021 Dr
Just for a quick re cap, diagnosed December 2020. RP January 2021 with Gleason 4+3, extra-prostatic extension, 1 node pos T3aN1. Started ADT and abiraterone then 4m later pelvic RT. PSA still undetectable and Testosterone <2. The original plan was for 2 years of ADT and AA. At ESMO 2021 Dr
hg115pb profile image
hg115pb
in Advanced Prostate Cancer

Lysine And Covid-19, Cut The Crap!

Yesterday I made a reply to one of Marc's recent posts, but there was some very interesting information in that post that I would like to highlight as I feel it is very important for anyone living on this planet in the age of Covid! In my reply to Marc, I linked to a July 2021 study that showed that
Yesterday I made a reply to one of Marc's recent posts, but there was some very interesting information in that post that I would like to highlight as I feel it is very important for anyone living on this planet in the age of Covid! In my reply to Marc, I linked to a July 2021 study that showed that
chartist profile image
chartist
in Cure Parkinson's

PSA jump after 2weeks post-RALP - does this indicate CRPC?

Hi all. This situation is a bit abnormal, but wanted to gather some thoughts. My father was DX'ed last September with Gleason 4+4, tertiary 5. He had his RALP + PLND 2 weeks ago. Pathology showed ECE+, PNI+, SVI+, LVI-, 2/16 small LN mets (unfortunately, poorer than what imaging showed), and close PSM
Hi all. This situation is a bit abnormal, but wanted to gather some thoughts. My father was DX'ed last September with Gleason 4+4, tertiary 5. He had his RALP + PLND 2 weeks ago. Pathology showed ECE+, PNI+, SVI+, LVI-, 2/16 small LN mets (unfortunately, poorer than what imaging showed), and close PSM
sixmongoos profile image
sixmongoos
in Advanced Prostate Cancer

Use of adjustable bed with cirrhosis and COPD

Hi, I've recently been diagnosed with alcohol related cirrhosis. Had a long conversation with my consultant last week and apparently I'm at stage A which is quite good to hear. I have a gastroscopy booked for 26th to check for varices and will be having a bone scan, vitamin check and tests to check
Hi, I've recently been diagnosed with alcohol related cirrhosis. Had a long conversation with my consultant last week and apparently I'm at stage A which is quite good to hear. I have a gastroscopy booked for 26th to check for varices and will be having a bone scan, vitamin check and tests to check
eileenet49 profile image
eileenet49
in British Liver Trust

Trace ascites

Just wondering if anyone knows what trace ascites means exactly. It was reported on my wifes mri,she has stage 3 cirrhosis caused by pbc,diagnosed 4 years ago.Has 6 month ultrasounds and mris alternatively, first time seeing this on a report,thank you
Just wondering if anyone knows what trace ascites means exactly. It was reported on my wifes mri,she has stage 3 cirrhosis caused by pbc,diagnosed 4 years ago.Has 6 month ultrasounds and mris alternatively, first time seeing this on a report,thank you
Mikec1960 profile image
Mikec1960
in PBC Foundation

What else is available?

I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
27-359 profile image
27-359
in My Ovacome

Blood test results

Hi, following my recent post highlighting persisting symptoms of fatigue, nausea, blurred vision & short breath, being on 100mg of Teva Levothyroxine, please could comment on test results. Been referred back to Endocrinologist who discharged me last year…seem to be going in circles. Can only upload
Hi, following my recent post highlighting persisting symptoms of fatigue, nausea, blurred vision & short breath, being on 100mg of Teva Levothyroxine, please could comment on test results. Been referred back to Endocrinologist who discharged me last year…seem to be going in circles. Can only upload
Lotus77 profile image
Lotus77
in Thyroid UK

Finally an answer-Mucin 1 ADTKD

Hi ckd friends, Do you have a family history of kidney disease that includes a parent, grandparent, Aunts and uncles etc with no explanation for the cause? Do you have a bland urinalysis (no blood and little to no protein), with near normal blood pressure and all your other labs are in line? So did
Hi ckd friends, Do you have a family history of kidney disease that includes a parent, grandparent, Aunts and uncles etc with no explanation for the cause? Do you have a bland urinalysis (no blood and little to no protein), with near normal blood pressure and all your other labs are in line? So did
Jamok profile image
Jamok
in Early CKD Support

Lost

I live with my parents, always have done. We are very close, they are my best friends. 3 months ago, my life started to fall apart. My dad got diagnosed with liver cancer caused by Hemochromatosis. We have fought so hard but the cancer took over and he was too weak to be able to have any form of treatment
I live with my parents, always have done. We are very close, they are my best friends. 3 months ago, my life started to fall apart. My dad got diagnosed with liver cancer caused by Hemochromatosis. We have fought so hard but the cancer took over and he was too weak to be able to have any form of treatment
Bella-boo profile image
Bella-boo
in Anxiety Support

Liver cancer that has migrated

Hello everyone I had liver cancer in 2018 and unfortunately have been told yesterday I have lung cancer and will be needing chemotherapy however they said I will need a stronger chemo because they are treating it as liver cancer that has migrated to my lungs. I wanted to ask if anyone else has had a
Hello everyone I had liver cancer in 2018 and unfortunately have been told yesterday I have lung cancer and will be needing chemotherapy however they said I will need a stronger chemo because they are treating it as liver cancer that has migrated to my lungs. I wanted to ask if anyone else has had a
Valentina_22 profile image
Valentina_22
in Liver4Life

Why I Choose an Unproven Treatment

It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
MateoBeach profile image
MateoBeach
in Fight Prostate Cancer

Why I Choose an Unproven Treatment

It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
It is a rainy stormy day in Perth, Western Australia, called the "most remote city in the world". I arrived here yesterday with more than 30 hours of travel from Oregon USA. Tomorrow I will get my first infusion of Lutetium 177-PSMA (mAb)-J591. An experimental and unproven new form of radioactive ligand
MateoBeach profile image
MateoBeach
in Advanced Prostate Cancer

TTFD effective for PD? More effective than Benfotiamine or thiamine?

Collectively, our findings provide direct evidence that TTFD administration induces voluntary locomotor activity via D1-receptor-mediated dopaminergic activity in the mPFC. TTFD also induces voluntary running in a dose-dependent manner, likely due to the same neural mechanism. This is the first study
Collectively, our findings provide direct evidence that TTFD administration induces voluntary locomotor activity via D1-receptor-mediated dopaminergic activity in the mPFC. TTFD also induces voluntary running in a dose-dependent manner, likely due to the same neural mechanism. This is the first study
NeuroResearcher profile image
NeuroResearcher
in Cure Parkinson's

Let down by promises

Just about a year ago, I was diagnosed having Cirrhosis of the liver, the consultant asked if I would like to be put on a trial of a new medication (not told the name), I was told it would start early this year, When nothing happened, I started to chase this up (bearing in mind I was also told I would
Just about a year ago, I was diagnosed having Cirrhosis of the liver, the consultant asked if I would like to be put on a trial of a new medication (not told the name), I was told it would start early this year, When nothing happened, I started to chase this up (bearing in mind I was also told I would
Mick1414 profile image
Mick1414
in British Liver Trust

30 months with PCA - experiences with ADT, Docetaxel, Xtandi / Nubeqa, Provenge and experimental immunotherapy trial.

Hi, I posted for the first time on this forum after my father (59) was diagnosed with stage IV prostate cancer in November of 2019. I want to share our progress in this fight so far so that it can be added to the repository and used by others down the line to make informed decisions about treatment
Hi, I posted for the first time on this forum after my father (59) was diagnosed with stage IV prostate cancer in November of 2019. I want to share our progress in this fight so far so that it can be added to the repository and used by others down the line to make informed decisions about treatment
Namork profile image
Namork
in Advanced Prostate Cancer

Crohn’s Diagnosis ?

I was wondering if anyone who has been diagnosed with Crohn’s disease could help me. I developed a fistula in July’s of 2021. I have no family history of IBD disease. When I realized most people who get fistulas also have IBD I started having severe stomach pain 24-7 I couldn’t eat for months. I did
I was wondering if anyone who has been diagnosed with Crohn’s disease could help me. I developed a fistula in July’s of 2021. I have no family history of IBD disease. When I realized most people who get fistulas also have IBD I started having severe stomach pain 24-7 I couldn’t eat for months. I did
RC723 profile image
RC723
in Crohn's and Colitis Support
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