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"In The Loop Leeds" - keeping you informed about research
In the Loop is a pilot project run by Dr Louise Sorensen from the University of Leeds Rheumatic and Musculoskeletal Medicine. The project aim is to explore how they can get better at communicating research to patients, the public and non specialists. Many People have a keen interest in the latest Polymyalgia
In the Loop is a pilot project run by Dr Louise Sorensen from the University of Leeds Rheumatic and Musculoskeletal Medicine. The project aim is to explore how they can get better at communicating research to patients, the public and non specialists. Many People have a keen interest in the latest Polymyalgia
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Interesting research on antibodies
Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in line with the article I'm pasting from, 'When the immune system goes on the attack'. "Hal Scofield, Professor of Medicine at the University of Oklahoma's
Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in line with the article I'm pasting from, 'When the immune system goes on the attack'. "Hal Scofield, Professor of Medicine at the University of Oklahoma's
Shezian
in
Vasculitis UK
9 years ago
‘Biodegradable’ CAR may aid transplant in AML
CAR-T therapy first showed success in CLL and AML leukaemias, but one of the problems with CAR-T is that the T-cells are not selective against cancerous lymphocytes, so they keep killing off both cancerous and non-cancerous lymphocytes long after treatment initiation. For CLL patients, that means long
CAR-T therapy first showed success in CLL and AML leukaemias, but one of the problems with CAR-T is that the T-cells are not selective against cancerous lymphocytes, so they keep killing off both cancerous and non-cancerous lymphocytes long after treatment initiation. For CLL patients, that means long
AussieNeil
Partner
in
CLL Support
9 years ago
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Stem cell therapy reverses multiple sclerosis
From yesterday's Telegraph: "A pioneering new stem cell treatment is allowing multiple sclerosis sufferers to walk, run and even dance again, in results branded ‘miraculous’ by doctors. Patients who have been wheelchair-bound for 10 years have regained the use of their legs in the groundbreaking therapy
From yesterday's Telegraph: "A pioneering new stem cell treatment is allowing multiple sclerosis sufferers to walk, run and even dance again, in results branded ‘miraculous’ by doctors. Patients who have been wheelchair-bound for 10 years have regained the use of their legs in the groundbreaking therapy
KeithS
in
AMN EASIER
9 years ago
Original Coping strategies for Living with CLL - Part 1- Making good use of "Watch and Wait". Please read new version!
[i]The updated version to this very popular post can be found here:[/i] https://healthunlocked.com/cllsupport/posts/134219303/coping-strategies-things-we-can-do-to-improve-our-chances-on-the-cll-journey.-part-one-updated[i] - Admin[/i] When people are first diagnosed with CLL, they are usually told
[i]The updated version to this very popular post can be found here:[/i] https://healthunlocked.com/cllsupport/posts/134219303/coping-strategies-things-we-can-do-to-improve-our-chances-on-the-cll-journey.-part-one-updated[i] - Admin[/i] When people are first diagnosed with CLL, they are usually told
PaulaS
Volunteer
in
CLL Support
9 years ago
Stem cell research, asx announcement today from a company I own shares in. Would love to be part of some of their trials ........
ASX ANNOUNCEMENT Cynata Achieves Major Stem Cell Manufacturing Milestone - World first stem cell manufacturing process - U.S. analysis validates Cynata’s novel manufacturing technology - “Critical milestone” now achieved to commercialise Cymerus™ stem cell production technology - Technology enables large
ASX ANNOUNCEMENT Cynata Achieves Major Stem Cell Manufacturing Milestone - World first stem cell manufacturing process - U.S. analysis validates Cynata’s novel manufacturing technology - “Critical milestone” now achieved to commercialise Cymerus™ stem cell production technology - Technology enables large
Kad21
in
Lung Conditions Community Forum
9 years ago
Ibrutinib Treatment Shows Efficacy and Tolerability in Heavily Treated CLL Patients Following Allogeneic Stem Cell Transplant
You have to admire Pharmacyclics advertising capability. Here they are showing how effective Ibrutinib (Imbruvica) is on a tough to treat bunch of CLL patients. [i]"These patients had a median of five prior therapies and 63% were high-risk del 17p CLL patients. The estimated median progression-free
You have to admire Pharmacyclics advertising capability. Here they are showing how effective Ibrutinib (Imbruvica) is on a tough to treat bunch of CLL patients. [i]"These patients had a median of five prior therapies and 63% were high-risk del 17p CLL patients. The estimated median progression-free
AussieNeil
Partner
in
CLL Support
9 years ago
Giant cell arteritis diagnosed 160115
Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were tender scalp when hair drying and brushing. That night a sudden headache like no other. Nearest equivalent pain was a sudden bone fracture. Immediate
Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were tender scalp when hair drying and brushing. That night a sudden headache like no other. Nearest equivalent pain was a sudden bone fracture. Immediate
daphne_retired
in
PMRGCAuk
9 years ago
Positive parietal cell antibody
After eventually seeing a neurologist with regard to my tingling limbs, I have today received a copy of a letter he sent to my GP. He says that the MRI scan was normal, so pleased about that. However, he then says, quote: "I note she as a positive parietal cell antibody and that some provisional blood
After eventually seeing a neurologist with regard to my tingling limbs, I have today received a copy of a letter he sent to my GP. He says that the MRI scan was normal, so pleased about that. However, he then says, quote: "I note she as a positive parietal cell antibody and that some provisional blood
Twitchen
in
Thyroid UK
9 years ago
Narrowed esophagus
My Rheumy has asked me if I have difficulty swallowing. So I wonder if this is a symptom of GCA. I recently had a colonoscopy and endoscopy with a stretching of the esophagus. The gastro doctor informed me that my esophagus was very narrowed and wondered if it had been bothering me. He wondered if it
My Rheumy has asked me if I have difficulty swallowing. So I wonder if this is a symptom of GCA. I recently had a colonoscopy and endoscopy with a stretching of the esophagus. The gastro doctor informed me that my esophagus was very narrowed and wondered if it had been bothering me. He wondered if it
Asbeck
in
PMRGCAuk
9 years ago
Progress
I joined the PAS and this forum at the beginning of Sept this year having been diagnosed with PA in May 2013. I hadn't received any loading doses and was put immediately onto 3 monthly injections. My readings on each subsequent visit to the Doc were around the 200 mark. Thanks to the forum I realised
I joined the PAS and this forum at the beginning of Sept this year having been diagnosed with PA in May 2013. I hadn't received any loading doses and was put immediately onto 3 monthly injections. My readings on each subsequent visit to the Doc were around the 200 mark. Thanks to the forum I realised
Weewull
in
Pernicious Anaemia Society
10 years ago
MPDlife - the newsletter for people with MPNs
November 2014 issue now available, the newsletter is packed full of interesting articles: •Rapid changes in MPN research and treatment options – Professor Claire Harrison reports on the European School of Haematology MPN meeting held in Estoril, Portugal in October 2014, and tells us about the new scientific
November 2014 issue now available, the newsletter is packed full of interesting articles: •Rapid changes in MPN research and treatment options – Professor Claire Harrison reports on the European School of Haematology MPN meeting held in Estoril, Portugal in October 2014, and tells us about the new scientific
Mazcd
MPNVoice
in
MPN Voice
10 years ago
Is there a better test for F1 antibodies?
Hi, I've been (blood) tested for F1 antibodies and the results were negative, but I've heard the test is notoriously unreliable - does anyone know of a better test that I could request or is the standard blood test the only one out there? I'm going to ask for a parietal cell antibody test, and possibly
Hi, I've been (blood) tested for F1 antibodies and the results were negative, but I've heard the test is notoriously unreliable - does anyone know of a better test that I could request or is the standard blood test the only one out there? I'm going to ask for a parietal cell antibody test, and possibly
Chancery
in
Pernicious Anaemia Society
10 years ago
MPN Voice Patients’ Forums 2015
We are pleased to announce that we have 2 patients’ forums confirmed for 2015, Colchester and Cardiff. Colchester – Wednesday 4th February 2015, 4 pm – 6 pm, (registration from 3.45 pm) in Room 2, Post Graduate Medical Centre, Villa 8, Colchester General Hospital, Turner Road, Colchester, Essex, CO4
We are pleased to announce that we have 2 patients’ forums confirmed for 2015, Colchester and Cardiff. Colchester – Wednesday 4th February 2015, 4 pm – 6 pm, (registration from 3.45 pm) in Room 2, Post Graduate Medical Centre, Villa 8, Colchester General Hospital, Turner Road, Colchester, Essex, CO4
Mazcd
MPNVoice
in
MPN Voice
10 years ago
Zoom Zoom, CAR-T Cells to Treat Myeloma
An exciting approach to refractory myeloma is the development of CAR-T cells to recognize and kill the malignant plasma cells which mutate and are responsible for recurrence. Chimeric Antigen Receptor - T cell therapy has now been used in hundreds of patients with recurrent leukemia (89% success) and
An exciting approach to refractory myeloma is the development of CAR-T cells to recognize and kill the malignant plasma cells which mutate and are responsible for recurrence. Chimeric Antigen Receptor - T cell therapy has now been used in hundreds of patients with recurrent leukemia (89% success) and
Janstafl
in
Myeloma America Support
10 years ago
Help with test results please
Hi I have finally got my test results from my GP. I was wondering if anyone could look at them and let me know what they think please. Sorry but have added everything as not sure what I could miss out. I cannot find my original B12 result as not sure what I am reading but know at the time I was
Hi I have finally got my test results from my GP. I was wondering if anyone could look at them and let me know what they think please. Sorry but have added everything as not sure what I could miss out. I cannot find my original B12 result as not sure what I am reading but know at the time I was
lal2502
in
Pernicious Anaemia Society
10 years ago
OH NOES! Have I ruined my chances for parietal cell antibody testing?
For reasons that are too embarrassing to explain, I suspect I might have something wrong with my parietal cells. I've had the full blood tests, plus B12 serum, folate, and IF antibody tests - all 'normal' (i.e. B12 in the 'grey zone'), but I wasn't tested for Parietal Cell Antibody. Would anything have
For reasons that are too embarrassing to explain, I suspect I might have something wrong with my parietal cells. I've had the full blood tests, plus B12 serum, folate, and IF antibody tests - all 'normal' (i.e. B12 in the 'grey zone'), but I wasn't tested for Parietal Cell Antibody. Would anything have
Chancery
in
Pernicious Anaemia Society
10 years ago
Question
My dad has non Hodgkin and hodgkin cancer and is has just had stem cell transplant. I believe that it's not a gene related diesease but I've had enlarged lymphones under my arms previously and just worried incase, do I need to speak to anyone. Thanks
My dad has non Hodgkin and hodgkin cancer and is has just had stem cell transplant. I believe that it's not a gene related diesease but I've had enlarged lymphones under my arms previously and just worried incase, do I need to speak to anyone. Thanks
dora21
in
Lymphoma Canada
10 years ago
You've hit a milestone! 300 of you now have joined the Sickle Cell Society HU community
Congratulations for building a true Sickle Cell Disorders health movement in HealthUnlocked! Whenever you write a post, ask a question or reply to someone, you are touching the lives of other people with Sickle Cell Disorders by spreading the benefit of shared, personal health experiences. And beyond
Congratulations for building a true Sickle Cell Disorders health movement in HealthUnlocked! Whenever you write a post, ask a question or reply to someone, you are touching the lives of other people with Sickle Cell Disorders by spreading the benefit of shared, personal health experiences. And beyond
HealthUnlocked
HealthUnlocked
in
Sickle Cell Society
10 years ago
Stem cell transplantation
Are there any myelofibrosis sufferers out there who are considering stem cell transplantation? If so, please get in touch. Thank you.
Are there any myelofibrosis sufferers out there who are considering stem cell transplantation? If so, please get in touch. Thank you.
daisystar
in
MPN Voice
10 years ago
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