Search
Search
About
Log in
Join
Experiences with
Acalabrutinib
Posts
Communities
515 public posts
Filter results
Growth on nose
My husband is being treated with
acalabrutinib
for CLL , taking it for about 7 months. His white blood cell count was raised significantly at first but after 5 months it started to come down slowly and his lymphocyte count is now 150.
My husband is being treated with
acalabrutinib
for CLL , taking it for about 7 months. His white blood cell count was raised significantly at first but after 5 months it started to come down slowly and his lymphocyte count is now 150.
Leo71
in
CLL Support
2 years ago
Burning sensation in feet - Acalabrutinib
Been taking
Acalabrutinib
for three weeks (along with Allopurinol and anti viral and anti bacterial). Second line treatment after cll relapse. Almost no side effects except for........ I'm getting frequent and long-lasting burning sensations in both feet.
Been taking
Acalabrutinib
for three weeks (along with Allopurinol and anti viral and anti bacterial). Second line treatment after cll relapse. Almost no side effects except for........ I'm getting frequent and long-lasting burning sensations in both feet.
Savagebikenut
in
CLL Support
1 year ago
Blood Negative MRD
(
Acalabrutinib
, obinutuzumab and venetoclax).He finished obinutuzumab. Currently: after 11 months, February 2023, of immunotherapy, my hubby's blood revealed negative MRD. In April he will have a BMB to see if this too is negative.
(
Acalabrutinib
, obinutuzumab and venetoclax).He finished obinutuzumab. Currently: after 11 months, February 2023, of immunotherapy, my hubby's blood revealed negative MRD. In April he will have a BMB to see if this too is negative.
spi3
in
CLL Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Chronic lymphocytic leukemia treatment algorithm 2022
(See https://healthunlocked.com/cllsupport/posts/148781199/ighv-unmutated-and-
acalabrutinib
?responses=148783074 for more information about how IGHV might influence treatment choice). When a BTK inhibitor is selected, either
acalabrutinib
or zanubrutinib is preferred in most patients.
(See https://healthunlocked.com/cllsupport/posts/148781199/ighv-unmutated-and-
acalabrutinib
?responses=148783074 for more information about how IGHV might influence treatment choice). When a BTK inhibitor is selected, either
acalabrutinib
or zanubrutinib is preferred in most patients.
CLLerinOz
Administrator
in
CLL Support
2 years ago
started Acalabrutinib 3 weeks ago..
I started
Acalabrutinib
3 weeks ago and so far I have only experienced mild side effects, some nausea and headaches in the beginning but it has already gotten much better. I now feel fine most of the days.
I started
Acalabrutinib
3 weeks ago and so far I have only experienced mild side effects, some nausea and headaches in the beginning but it has already gotten much better. I now feel fine most of the days.
Tofa80
in
CLL Support
2 years ago
paxlovid interactions-statins, thinners
I am getting C scan in Nov. to see if i should take a vacation from
acalabrutinib
in which case an urgently required trip to Estonia overseas might be doable as then if i get infected Paxlovid would be OK. Of course need to find out if they have it there.
I am getting C scan in Nov. to see if i should take a vacation from
acalabrutinib
in which case an urgently required trip to Estonia overseas might be doable as then if i get infected Paxlovid would be OK. Of course need to find out if they have it there.
onu1tadi2
in
CLL Support
2 years ago
normal blood results after 6 weeks on Acalabrutinib (SLL)
Doctor finally recommended
Acalabrutinib
because of my bulky lymph nodes. I noticed the biggest change with the size of lymph nodes during the first two weeks after starting treatment. My entire neck decreased in size as the swelling went down.
Doctor finally recommended
Acalabrutinib
because of my bulky lymph nodes. I noticed the biggest change with the size of lymph nodes during the first two weeks after starting treatment. My entire neck decreased in size as the swelling went down.
Tofa80
in
CLL Support
2 years ago
Interrupting Acalabrutinib for a minor surgery
Acalabrutinib
seems to increase the patient's propensity to bruising / bleeding even more, on the top of the already low platelet count. So it needs to be stopped before and after a minor skin surgery. Have any of you been in a similar situation, and if yes - how long was your interruption ?
Acalabrutinib
seems to increase the patient's propensity to bruising / bleeding even more, on the top of the already low platelet count. So it needs to be stopped before and after a minor skin surgery. Have any of you been in a similar situation, and if yes - how long was your interruption ?
MikeOr
in
CLL Support
2 years ago
acalabrutinib
after years of watch and wait I am now about to start
acalabrutinib
….. can you tell me what side effects to expect and how it is
after years of watch and wait I am now about to start
acalabrutinib
….. can you tell me what side effects to expect and how it is
Grad99
in
CLL Support
2 years ago
What is next if Acalabrutinib AFIB wont stop?
My doctor put me on
Acalabrutinib
and the AFIB came back with a vengeance and I had a harder time going on walks and exercising. The doctor just told me to stop taking it and wants to meet with me to discuss "what's next".
My doctor put me on
Acalabrutinib
and the AFIB came back with a vengeance and I had a harder time going on walks and exercising. The doctor just told me to stop taking it and wants to meet with me to discuss "what's next".
barger1951
in
CLL Support
2 years ago
Transforming Outcomes in Chronic Lymphocytic Leukemia: Highlights from the ASH 2022 Meeting and Beyond
https://www.onclive.com/view/brief-overview-of-chronic-lymphocytic-leukemia https://www.onclive.com/view/chronic-lymphocytic-leukemia-role-of-first-generation-btk-inhibitors https://www.onclive.com/view/second-generation-btki-in-cll-first-line-treatment-with-
acalabrutinib
-or-zanabrutinib https://
https://www.onclive.com/view/brief-overview-of-chronic-lymphocytic-leukemia https://www.onclive.com/view/chronic-lymphocytic-leukemia-role-of-first-generation-btk-inhibitors https://www.onclive.com/view/second-generation-btki-in-cll-first-line-treatment-with-
acalabrutinib
-or-zanabrutinib https://
lankisterguy
Volunteer
in
CLL Support
1 year ago
Acalabrutinib and water
I was wondering, since starting
Acalabrutinib
four days ago and with all the water, (8cups) you have to drink, I have lost two pounds. Since I have lost 10 pounds in the last year already, I don’t want to lose any more. Has anyone else experienced weight loss in treatment?
I was wondering, since starting
Acalabrutinib
four days ago and with all the water, (8cups) you have to drink, I have lost two pounds. Since I have lost 10 pounds in the last year already, I don’t want to lose any more. Has anyone else experienced weight loss in treatment?
Curling123
in
CLL Support
2 years ago
weight loss/gain
like you I lost weight after a couple of months on
Acalabrutinib
then got back to my normal weight after 6 months. 14 months in I’m still at my normal weight. I’ve never had tea or coffee and have always drunk loads of water.
like you I lost weight after a couple of months on
Acalabrutinib
then got back to my normal weight after 6 months. 14 months in I’m still at my normal weight. I’ve never had tea or coffee and have always drunk loads of water.
julianlydes
in
CLL Support
2 years ago
Vitamin D interaction with Acalabrutinib/Ibrutinib??
She said the vitamin D may decrease the effectiveness of
Acalabrutinib
but it wasn't tested with
Acalabrutinib
, It was tested with a statin that uses the same liver pathway as Ibrutinib/
Acalabrutinib
. I can't believe this is true and I don't want to stop taking my vitamin D.
She said the vitamin D may decrease the effectiveness of
Acalabrutinib
but it wasn't tested with
Acalabrutinib
, It was tested with a statin that uses the same liver pathway as Ibrutinib/
Acalabrutinib
. I can't believe this is true and I don't want to stop taking my vitamin D.
Elle_V
in
CLL Support
2 years ago
Monocytes and therapy, or not.
Has anyone had their monocytes go up (above normal range) while on therapy, specifically
acalabrutinib
or venetoclax or both? (Mine has creeped up over the past two months since I started venetoclax, don't know if any of these are related or just coincidence.)
Has anyone had their monocytes go up (above normal range) while on therapy, specifically
acalabrutinib
or venetoclax or both? (Mine has creeped up over the past two months since I started venetoclax, don't know if any of these are related or just coincidence.)
Lavinia-Blue
in
CLL Support
2 years ago
Long and Winding Road
I suggest reducing the dosage of
Acalabrutinib
on the grounds that, in a previous treatment, Ibrutinib had been suppressing the re-emergence of red blood cells, perhaps
Acalabrutinib
was doing the same to the platelets.
I suggest reducing the dosage of
Acalabrutinib
on the grounds that, in a previous treatment, Ibrutinib had been suppressing the re-emergence of red blood cells, perhaps
Acalabrutinib
was doing the same to the platelets.
Hidden
in
CLL Support
2 years ago
Is pain to be expected with CLL?
I am about to start 2nd line treatment with
Acalabrutinib
, but this has been delayed for around 3 months due to (benign) prostate complications and operations. I've enjoyed a remission of around 2 yrs following chlorambucil and obinutuzimab.
I am about to start 2nd line treatment with
Acalabrutinib
, but this has been delayed for around 3 months due to (benign) prostate complications and operations. I've enjoyed a remission of around 2 yrs following chlorambucil and obinutuzimab.
Handley
in
CLL Support
2 years ago
blurred vision
Has anyone else had these symptoms or are they unrelated to the
acalabrutinib
? His blood pressure is normal.
Has anyone else had these symptoms or are they unrelated to the
acalabrutinib
? His blood pressure is normal.
Leo71
in
CLL Support
2 years ago
Attention Those Taking Ibrutinib & BTK Inhibitors:Second Cancer Incidence in CLL Patients Receiving BTK Inhibitors
In CLL patients treated with ibrutinib or
acalabrutinib
, an overall incidence of SPM x times the expected incidence in the general population was observed. The post will attract others, not just those in treatment now.
In CLL patients treated with ibrutinib or
acalabrutinib
, an overall incidence of SPM x times the expected incidence in the general population was observed. The post will attract others, not just those in treatment now.
Yalokin
in
CLL Support
2 years ago
Antibodies and vaccines
I do understand that my body will remember infections and vaccines prior to CLL/
Acalabrutinib
do wonder if there is anything to be gained from a private antibody test.
I do understand that my body will remember infections and vaccines prior to CLL/
Acalabrutinib
do wonder if there is anything to be gained from a private antibody test.
kitchengardener2
in
CLL Support
2 years ago
1
...
9
10
11
...
26
Next page
10
20
Filter results
Clear filters
Posted in
All communities
CLL Support
496 results
CLL America Support
6 results
Non Hodgkin's Lymphoma Friends
4 results
View top 10 communities
Sort by
Most Relevant
Newest