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Surgery or not.
Hi everyone.Had my one year appointment with consultant yesterday in hospital which was a change from the last year as all over phone. I knew something was coming. She basically said wasent happen as throughout the year never found right dose or balance for it. Had gone from hyper to hypo very quickly
Hi everyone.Had my one year appointment with consultant yesterday in hospital which was a change from the last year as all over phone. I knew something was coming. She basically said wasent happen as throughout the year never found right dose or balance for it. Had gone from hyper to hypo very quickly
JoMax
in
Thyroid UK
2 months ago
Is it possible to get rid of excess iodine in my body?
hi all this might seem like a silly question but i going to ask it anyway. IS THERE SUCH A THING AS AN ANTIDOTE TO REMOVE EXCESS IODINE FROM THE BODY THAT IS STORED IN MY CELLS? The excess iodine is playing havoc with thyroid numbers. I have no thyroid and resent numbers were: TSH 11.9 FT4 12.0
hi all this might seem like a silly question but i going to ask it anyway. IS THERE SUCH A THING AS AN ANTIDOTE TO REMOVE EXCESS IODINE FROM THE BODY THAT IS STORED IN MY CELLS? The excess iodine is playing havoc with thyroid numbers. I have no thyroid and resent numbers were: TSH 11.9 FT4 12.0
DizzyD
in
Thyroid UK
7 months ago
long term carbimazole
I currently take 5mg Carbimazole alternate days. I have toxic nodules so stopping meds is not an option. Like many people on here I have been pushed towards RAI or surgery TT. Every time I feel I get near to a decision I learn something new! I am interested in what people have been told about staying
I currently take 5mg Carbimazole alternate days. I have toxic nodules so stopping meds is not an option. Like many people on here I have been pushed towards RAI or surgery TT. Every time I feel I get near to a decision I learn something new! I am interested in what people have been told about staying
Platypus8
in
Thyroid UK
2 months ago
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Carbimazole and severe bloating
I've been taking carbimazole now for 3 weeks but have been having extreme painful bloating in my abdomen. Not feeling sick and bowel movements are normal if not less regular. I cancelled my appointment for RAI to opt to try tablets first but this tummy ache is debilitating. Do side effects wear off
I've been taking carbimazole now for 3 weeks but have been having extreme painful bloating in my abdomen. Not feeling sick and bowel movements are normal if not less regular. I cancelled my appointment for RAI to opt to try tablets first but this tummy ache is debilitating. Do side effects wear off
Spagbol24
in
Thyroid UK
2 months ago
constant running nose
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
annie123
in
Thyroid UK
2 months ago
constant running nose
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
annie123
in
Thyroid UK
2 months ago
Update on my CLL diagnosis
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
tenniselbowz
in
CLL Support
2 months ago
RAI thyroid hyperthyroidism relapse
I want to know if it is possible for the thyroid to regrow hyperthyroidism come back years after radioactive iodine hypothyroidism.
I want to know if it is possible for the thyroid to regrow hyperthyroidism come back years after radioactive iodine hypothyroidism.
BlueLike
in
Thyroid UK
2 months ago
Association between different water iodine exposures & thyroid cancer: A retrospective study of high water iodine areas in China 2009-20
There are many differences between China and the UK. Including other aspects of water quality/analysis, diet, etc. For example, distribution of selenium in China is very complicated with adjacent areas sometimes have very different selenium intake.Therefore, we simply cannot pick up this paper and apply
There are many differences between China and the UK. Including other aspects of water quality/analysis, diet, etc. For example, distribution of selenium in China is very complicated with adjacent areas sometimes have very different selenium intake.Therefore, we simply cannot pick up this paper and apply
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Graves and Carbimazole update
Hello again! I thought I would post an update to share my experience so far with Graves and pose a couple of questions. I had positive Graves antibodies result in September 2023 / low TSH but T3 T4 in range. Radioiodine scan showed increased uptake / hyperthyroidism. Started Carbimazole 5mg per
Hello again! I thought I would post an update to share my experience so far with Graves and pose a couple of questions. I had positive Graves antibodies result in September 2023 / low TSH but T3 T4 in range. Radioiodine scan showed increased uptake / hyperthyroidism. Started Carbimazole 5mg per
ElleBee99
in
Thyroid UK
3 months ago
t3 Monotherapy
Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS
Hello everyone, I have been a reader of the forum for a while now and it is nice to know so many other people are struggling with un-resolved thyroid problems. This forum was the first place where I thought wow, these guys get it. I have hypermobile ehlers danlos syndrome, I was diagnosed with MS
Jimjamio
in
Thyroid UK
3 months ago
T3 Trial continued
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Rambling9
in
Thyroid UK
3 months ago
Iodine - no thyroid.
I had my thyroid removed in 2003 due to papillary cancer. I have struggled ever since finding the right dosage/supplements. I have just watched Dr Sarah Myhilll's thyroid video for the umpteenth time and have purchased some of her supplements even though some of them contain iodine. Any thoughts
I had my thyroid removed in 2003 due to papillary cancer. I have struggled ever since finding the right dosage/supplements. I have just watched Dr Sarah Myhilll's thyroid video for the umpteenth time and have purchased some of her supplements even though some of them contain iodine. Any thoughts
Margo
in
Thyroid UK
8 months ago
Endo finally tested FT3! Thoughts?
At my last endo appt early Dec, the consultant kept his same stance that my blood tests were all in range and my symptoms were all due to perimenopause. He said there was slight room for a small increase in levothyroxine so ive gone from 125x5/100x2 to 125x6 /100x1 and told me to speak to my gp and
At my last endo appt early Dec, the consultant kept his same stance that my blood tests were all in range and my symptoms were all due to perimenopause. He said there was slight room for a small increase in levothyroxine so ive gone from 125x5/100x2 to 125x6 /100x1 and told me to speak to my gp and
JUUJOO
in
Thyroid UK
3 months ago
The ongoing battle to be well
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Hurtlocker
in
Thyroid UK
3 months ago
sea moss
my 30 year old daughter had been treated for hypothyroidism for the last 8 years and takes 125 mcg Liothyronine. Recently a friend in Hong Kong where she lives as suggested sea moss supplement and she feels she has more energy and less brain fog. I’m concerned about the iodine in it but other components
my 30 year old daughter had been treated for hypothyroidism for the last 8 years and takes 125 mcg Liothyronine. Recently a friend in Hong Kong where she lives as suggested sea moss supplement and she feels she has more energy and less brain fog. I’m concerned about the iodine in it but other components
59Blue
in
Thyroid UK
8 months ago
Urgent help please - feeling total despair - think I'm going crazy after stopping and restarting levothyroxine - blood results included
Hi, This won't be the full story as I don't want to to make the post too long and hard/annoying to read. It's already going to be too long. RAI for Graves around 11 years ago. Never felt good on T4 since. Normal dose around 100 micrograms plus around 12.5 micrograms a couple of times a week. Mostly stopped
Hi, This won't be the full story as I don't want to to make the post too long and hard/annoying to read. It's already going to be too long. RAI for Graves around 11 years ago. Never felt good on T4 since. Normal dose around 100 micrograms plus around 12.5 micrograms a couple of times a week. Mostly stopped
Cat4444
in
Thyroid UK
4 months ago
What to ask Endo?
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Sesameseed82
in
Thyroid UK
4 months ago
Alternatively this information may be helpful
Hi here is some information that might be useful black strap molasses for iron Moringa for iron and sleep with many nutrients Mangosteen for anxiety and depression Paw paw capsules for anxiety Okra Greek vegetable with many health benefits and helps the liver and kidneys how to possibly get off thyroxine
Hi here is some information that might be useful black strap molasses for iron Moringa for iron and sleep with many nutrients Mangosteen for anxiety and depression Paw paw capsules for anxiety Okra Greek vegetable with many health benefits and helps the liver and kidneys how to possibly get off thyroxine
RLSSCARER
in
Restless Legs Syndrome
8 months ago
T3 Trial and feeling worse
Medichecks end Jan 2024 Hypothyroid (after RAI in c2004) Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Dec 2023 - Trial of T3
Medichecks end Jan 2024 Hypothyroid (after RAI in c2004) Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Dec 2023 - Trial of T3
Rambling9
in
Thyroid UK
4 months ago
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