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Simponi
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Simponi aria infusion
I’ve had two infusions and my RA is much better. The draw backs are my mouth mucosal is raw and dry. Eating only soft foods and lidocaine mouthwash to help. My eye dryness is good on some days. Still using prescription drops. I’m still loosing hair. All this with no pain is a Catch 22. Still fatigue
I’ve had two infusions and my RA is much better. The draw backs are my mouth mucosal is raw and dry. Eating only soft foods and lidocaine mouthwash to help. My eye dryness is good on some days. Still using prescription drops. I’m still loosing hair. All this with no pain is a Catch 22. Still fatigue
Nana-8
in
NRAS
3 months ago
Ankylosing but mystery migraines too?
Could it be the
simponi
causing it? Is it an additional auto-immune symptom? If you've had anything similar it would be good to hear I'm not the only one in this situation!
Could it be the
simponi
causing it? Is it an additional auto-immune symptom? If you've had anything similar it would be good to hear I'm not the only one in this situation!
Huguen
in
NRAS
2 months ago
Apremilast
I was taken off of
simponi
a couple of months ago and have just been put onto apremilast. I am struggling so much with the side effects that I have stopped it. Sickness, diarrhoea, lack of appetite, joint pain and finally low mood.Has anyone else got experience of this drug please?
I was taken off of
simponi
a couple of months ago and have just been put onto apremilast. I am struggling so much with the side effects that I have stopped it. Sickness, diarrhoea, lack of appetite, joint pain and finally low mood.Has anyone else got experience of this drug please?
Nicky_C
in
NRAS
2 months ago
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vita health group physio? & Simponi question
My questions are has anyone used them and are they ok and anyone on
Simponi
gone to weekly injections as I’m finding 4 weekly too far apart and pain breaks through earlier and earlier.
My questions are has anyone used them and are they ok and anyone on
Simponi
gone to weekly injections as I’m finding 4 weekly too far apart and pain breaks through earlier and earlier.
Km27
in
NRAS
4 months ago
Feeling doomed today
I’ve had Etanercept,
Simponi
, Baracitinib and now Tocilizumab. Each time having to turn a blind eye to the potential consequences of them. I don’t know how to carry on with it all today. I don’t think I’ve ever felt so hopeless.
I’ve had Etanercept,
Simponi
, Baracitinib and now Tocilizumab. Each time having to turn a blind eye to the potential consequences of them. I don’t know how to carry on with it all today. I don’t think I’ve ever felt so hopeless.
Inanotherlife
in
NRAS
2 months ago
Really struggling - Tocilzumab/Pred
Simponi
and Baracitinib didn’t help and I’m worrying Toci might not either as I’m feeling at the moment. Thanks for listening.
Simponi
and Baracitinib didn’t help and I’m worrying Toci might not either as I’m feeling at the moment. Thanks for listening.
Inanotherlife
in
NRAS
8 months ago
SIMPONI ARIA® (golimumab)
Has anyone received these infusions? Please state both good and bad if you have.
Has anyone received these infusions? Please state both good and bad if you have.
Nana-8
in
NRAS
5 months ago
hip replacement surgery
RA,prednisone, methotrexate,
Simponi
Aria & muscle spasms. Awaiting a hip replacement. Has anyone had one during this time of their life?
RA,prednisone, methotrexate,
Simponi
Aria & muscle spasms. Awaiting a hip replacement. Has anyone had one during this time of their life?
Pass7
in
PMRGCAuk
1 year ago
Hello & help! Tocilizumab or Baricitinib?
Had a lot of steroids before starting
Simponi
which only seemed to work for 2mths before I’ve fallen off a cliff again with CRP over 50 & ESR nearly 80. If it wasn’t for my family, I think I’d give up. I’m trying to make a choice between Baracitinib and Tocilizumab now?
Had a lot of steroids before starting
Simponi
which only seemed to work for 2mths before I’ve fallen off a cliff again with CRP over 50 & ESR nearly 80. If it wasn’t for my family, I think I’d give up. I’m trying to make a choice between Baracitinib and Tocilizumab now?
Inanotherlife
in
NRAS
1 year ago
Orencia
I also had a shot of
Simponi
that I had a very bad reaction to. Iwas so sick, had the shivers and a fever in the middle of the night. I as so sick, when t to Emergency room they did tests and everything was ok so they know it was from
Simponi
. The first week was terrible.
I also had a shot of
Simponi
that I had a very bad reaction to. Iwas so sick, had the shivers and a fever in the middle of the night. I as so sick, when t to Emergency room they did tests and everything was ok so they know it was from
Simponi
. The first week was terrible.
STILL-I-RISE26
in
NRAS
2 years ago
SIMPONI
Im going into
simponi
for UC- Anyone has experience
simponi
before_ I was going into Cimzia but Im doing
simponi
instead
Im going into
simponi
for UC- Anyone has experience
simponi
before_ I was going into Cimzia but Im doing
simponi
instead
ALEXUCH
in
Crohn's and Colitis Support
2 years ago
Help me please
hi good folk we are living in Iceland my daughter diagnosed with JIA 3 years ago she used many kind of medication because any medecin she took worked few months then the doctor change it and tried another ones now she is taking
simponi
injuction and Methotrexate every friday night (friday is her nightmer
hi good folk we are living in Iceland my daughter diagnosed with JIA 3 years ago she used many kind of medication because any medecin she took worked few months then the doctor change it and tried another ones now she is taking
simponi
injuction and Methotrexate every friday night (friday is her nightmer
Montaha
in
NRAS
2 years ago
Simponi
Sooo my
Simponi
is going up to 100mg pen now 🙄
Sooo my
Simponi
is going up to 100mg pen now 🙄
Deejojo
in
NRAS
3 years ago
Simponi and regular headaches?
My main question to any
Simponi
users out there today is; Do you suffer regular headaches, and think they are related to your injections?
My main question to any
Simponi
users out there today is; Do you suffer regular headaches, and think they are related to your injections?
Huguen
in
NRAS
3 years ago
Cold Swimming -good or bad for arthiritis? My own take on it...
I'm 43 with Ankylosing Spondylitis (diagnosed in my twenties), which luckily has been treated for 5ish years with
Simponi
(just a wee bit of symptom break through at week 4 from injection).
I'm 43 with Ankylosing Spondylitis (diagnosed in my twenties), which luckily has been treated for 5ish years with
Simponi
(just a wee bit of symptom break through at week 4 from injection).
Huguen
in
NRAS
3 years ago
Vitiligo
hi good people have you noticed vitiligo while your child having
simponi
pen injection????
hi good people have you noticed vitiligo while your child having
simponi
pen injection????
Montaha
in
JIA-at-NRAS
3 years ago
Rinvoq 5 days
I tried
Simponi
for 6 months which did not help much. With baricitinib, I had no side effects, but not much pain relief, although being off it for 2 weeks before starting the Rinvoq let me see how much worse the pain could get. Anyone out there on this medication? How are you doing?
I tried
Simponi
for 6 months which did not help much. With baricitinib, I had no side effects, but not much pain relief, although being off it for 2 weeks before starting the Rinvoq let me see how much worse the pain could get. Anyone out there on this medication? How are you doing?
ElizabethW
in
NRAS
3 years ago
Baricitinib - 3 weeks in
After 6 months of pain and fatigue with
Simponi
which was not working, I put a lot of hope in this new medication. Previous to the
Simponi
, I had no meds other than ibuprofen for a month, and previous to that, 3 months on Xeljanz, which I quit when I could no longer stand the side effects.
After 6 months of pain and fatigue with
Simponi
which was not working, I put a lot of hope in this new medication. Previous to the
Simponi
, I had no meds other than ibuprofen for a month, and previous to that, 3 months on Xeljanz, which I quit when I could no longer stand the side effects.
ElizabethW
in
NRAS
3 years ago
Receiving baricitinib in 2 days
I have high hopes that it will be better for me than the
Simponi
has been for the past 6 months. If I can do a bit of housework and gardening and shopping, that would be great, but getting dressed in the morning with no crying would be a start. My hopes are up.
I have high hopes that it will be better for me than the
Simponi
has been for the past 6 months. If I can do a bit of housework and gardening and shopping, that would be great, but getting dressed in the morning with no crying would be a start. My hopes are up.
ElizabethW
in
NRAS
3 years ago
Goodbye Simponi, going to try baricitinib
I have been taking
Simponi
, a once a month biologic injection, for 6 months now. The effect on my painful joints has been minimal, and it would only last 3 to 4 weeks each month. With the pain, stiffness, and exhaustion I have dealt with all these months, I can't wait to leave it behind.
I have been taking
Simponi
, a once a month biologic injection, for 6 months now. The effect on my painful joints has been minimal, and it would only last 3 to 4 weeks each month. With the pain, stiffness, and exhaustion I have dealt with all these months, I can't wait to leave it behind.
ElizabethW
in
NRAS
3 years ago
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