I received a phone call today to tell me that I will have my baricitinib delivered on Thursday. I am eager to get started on it. I have high hopes that it will be better for me than the Simponi has been for the past 6 months.
If I can do a bit of housework and gardening and shopping, that would be great, but getting dressed in the morning with no crying would be a start. My hopes are up.
It is the first drug that has not caused me issues so I hope it goes well. I am on week 5-6 so still a few weeks to go. 🤞
I hope it makes you feel improved. 🙏🏻💗
Good morning ElizabethW ☀️
That's great that you can start baricitinib very soon! I've been on it since 2018 and have never had any issues with it (ok, I got shingles but it wasn't too bad!).
Before baricitinib I had been on Simponi as well and it had worked very well for me but unfortunately after about 5 years on it, I got side effects and it stopped working as well as before so I was put on baricitinib instead. I never noticed any difference, except that I've never had any side effects from it 😊
I hope very much it works as well for you!!
Good luck and have a great day,
Christine xx
I have heard of a number of people who have suffered from shingles with these meds. I have had the Shingrix vaccine, which is not a live vaccine, and is said to be very effective so i hope it protects me.
I am glad to hear that you have had good results for a long time with Simponi. For me it helped a bit for about 3 weeks of the month for the first couple of months but, in general, it has been 6 long months of pain and debilitating fatigue.
I hope you continue to do well.
Oh that's excellent - so you won't have to worry about shingles!
And thank you very much - I hope so too 😊
Good luck today!
All the best,
Christine xx
Good luck with it. xxxx
It’s been the best drug for me . No side effects and it works .. 🤞it’s the one for you x
I've been on Baricitinib just over a year and it's given me my mobility back, I can now walk further and easier and my hands are practically pain free, so keep your hopes high Elizabeth.
I hope it works really well for you Elizabeth. 🤞x
🤞for you...
Baricitinib helped me, but I had a number of viral infections with it, so changed to toficitinib .... no problems.
I've found them to be 'clean' meds and easy to take.
Good news first drug to take the pain away from my knee😎
Thank you to all of you for your kind replies. I am feeling somewhat encouraged.
Hi Elizabeth,
I just wanted to drop a line to let you know that I started Baricitinib last week. I know it's early days, but I simply can't believe the difference that it's made so far. My pain has certainly decreased as has my swelling. A couple of days ago I went on a two hour walk - something that I haven't been able to do for years.
Also, so far, no side effects, which is a first for me. I hope it works well for you!
Thank you. A two hour walk! It's a lot to hope for. Fingers crossed - figuratively of course; I can't cross my real fingers.
I hope you continue to enjoy the benefits.
It worked and is working for me. Everything crossed for you.
I'm on week 4 I've not seen any great difference yet but I have deep routed abscess so I might be feeling a lot of my pain and fatigue from that to.
Hm that’s sad. Sorry about abscess. Hi lope you get it sorted.
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