Simponi and regular headaches?

[Huguen]

Hello all,

I'm Huguen, the new kid here (well I'm 43). I'll introduce myself....

After debilitating hip and lower back pain I was diagnosed with Ankylosing Spondylitis in 2001. In about 2013 I was prescribed Humira, which was very harsh on my immune system, and later swapped onto Simponi which I think amazing.

I have been doing physio for 20 ish years, and most people I meet don't know anything of my hidden condition. I have a little fusion in lower vertebrae and pelvic bones but with my AS suppressed, I try to make the most of life by cold swimming, canoeing, bodyboarding, hiking, camping etc and generally love to be in the sea.

I'm interested in anwsering/advising anyone new with the disease, and also swapping experiences to perhaps learn something new myself.

My main question to any Simponi users out there today is;

Do you suffer regular headaches, and think they are related to your injections?

My experience is that in 7 years of simponi use, the last 2 years I started noticing slightly nauseous headaches usually just a few days before I'm due to inject. They almost always need paracetemol to shift them, and I wake up feeling fine the next day. Ordinarily I never used to suffer headaches (unless over-indulgent!).

Any experiences I would be glad to hear them!

[springcross]

Hi Huguen and welcome to the forum. I don't have any knowledge of Simponi but I'm sure someone will be along who will, sooner or later.

[Huguen in reply to springcross]

Thanks for the welcome

[skinnycappuccino]

Hello Huguen,

I was on Simponi from 2012 to 2018 and I have never experienced any headaches. After a few years, I developed a rash/eczema and my rheumy thought it might be related - that was the only side effect I ever had from it - it was my first biologic and I loved it 😅❤️ All the best, Christine xx

[Huguen in reply to skinnycappuccino]

Hi Christine, thanks for commenting on the headaches. It will be good to hear how common they are amongst people.

I hope the Kevzara carries on working well for you. My relatives are from the Romandy area, so I'm no stranger to your beautiful country of residence

[skinnycappuccino in reply to Huguen]

Thank you, yes Kevzara is fantastic 🙏!! I'm tapering my Pred (had to go back on it in summer 🙄) and even though I am tapering fast, I'm not too uncomfortable so it really must be working very well!!

Oh that's cool, so do you visit your relatives often then 😊? I must admit I haven't been in the French-speaking part much but I am planning to go to Lausanne soon to visit the Federal Court 😊 xx