Recurrence!

I am so discouraged! I was diagnosed with high grade serous ovarian cancer in August of 2008 with a recurrence in February 2013, March 2015 and now again in 2017. Each time I have had surgery followed by different combos of chemo. I have been on Lymparza for the last year but recent pet scan shows 5 cm pelvic mass and liver involvement again. They will try to shrink the tumors with carbo, gemzar and avastin as they say surgery is not the best choice this time around. I have had this combo before with success so my fingers are crossed. I know I can do this again but am having a little problem with thinking positive this time. Thanks for letting me vent!

17 Replies

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  • Wow! You have had years of fighting and winning. I am just hoping to be alive in 5 years and you are proof that's possible! It's very healthy to experience your feelings so you can then direct your energy to the fight. So, have a major whinge and let it all out. I'm cheering you on! Tesla

  • Hi. Ditto!!

  • I know that I am still here for a reason and that is why I keep fighting! Once I'm in active treatment again the big picture comes into focus and I will have a plan and move forward. It never gets easier hearing the cancer is back. Thanks for your kind words. We are all in this together!

  • Wow that is wonderful to hear and to know someone who has been fighting and winning for as long as you have. Do you mind me asking what stage of ovarian cancer?

    Keep your head and continue to be strong so you can keep pushing!!!! I am pushing right along with you

  • I was diagnosed with 3 C.

  • Have you tried Tamoxifen? I read a recent study where recurrence rates for women not taking it was 23 months but those who took it didn't have recurrence for an average of 65 months! It's certainly worth a try. I wish you the best and you will be in my prayers. It's so unfair to get this disease! I used to tell whoever was doing my pap smears that I wished there was an eject button because I was done with the equipment. Then I got low grade serous carcinoma! What an ironic situation. There is also a test called ChemFx, which takes metastatic tissue and exposes it to different chemotherapy drugs to find which works best. Some doctors don't believe in it but it makes perfect sense to me. Please let us know how you're doing. We're all behind you and pulling for you. Don't give up, honey. Where there's life, there's hope and I pray that you have a longer remission this time. I feel your frustration and wish you the best.

  • Ah, frustration, that was the word I was looking for.

  • So sorry to hear but this cancer is considered a chronic disease and that's how you should think about it. It just goes on and on and people live for many years with this (or so my oncologist assures me). Best wishes. Nancy

  • So sorry to hear. I just have been diagnosed with my first recurrence after 6 months and I too have high grade serous 3c. We can do this! One day at a time. Sending you lots of positive energy, prayers, and hugs! Kim

  • I have had all the chemos that I think are out there for ovarian cancer never had Lymparza. I have managed to make it thru them all because of Jesus Christ. I pray the best for you and don't be discouraged. I have a scan tomorrow pray all is well and I am in NED. Keep going

    Belsie.

  • And I didn't mention all the people that people that prayed for me. The real healer, Jesus Christ.

  • Sending you cheers of encouragement. It's hard to hear that the cancer has come back, but I admire your spirit and determination.

  • Hello there You can do it. You gotten this far. Don't look back. Move full speed ahead. You are a Warrior . lets us know how every thing goes. Only the Strong Will Survive. Take Care,

  • Your outlook is very admirable for all of us fighting this dreaded disease. Keep on fighting Joan.......we are all behind you on this. Your strength and courage to never give up will take you a long way. You are a winner for sure.

    Xx Carol

  • We are all here to support you. It's always hard when you get rotten news. After my diagnosis I became one with the television. It was on all day, taking my mind off my repetitive thinking. I'm doing better on that front, mainly because I feel better. Vent all you need. We understand. All the best and many blessings, Eileen

  • I had my first recurrence...after 1 year of chemo. I was diagnosed with Uterine cancer adenocarcinoma. Had surgery and chemo. The CTscan showed it in my lymph nodes and the doctor says surgery isn't an option as it's too close to things. I am starting on Doxil. I was so upset and my doctor had been very optimistic about not having recurrence. Well, maybe I will start thinking more like it will happen and doing more planning. I am mostly trying to get my mind wrapped around it and figuring out a way to deal with this mentally so I feel positive and good. Thanks for sharing your info. It means a lot to hear how others deal with this.

  • Sorry to hear your battle continues, mine has just begun so I do not have a lot of insight. Sending Prayers and lots of positive energy! Stay strong you got this!

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