recurrence?????

[Heidels]

possible recurrence? I have been NED since November, ovarian cancer , stage 3 c total hysterectomy and just had a scan done on Tuesday. They found suspicious foci on bladder wall and sigmoid colon. One 5mm and one was 9mm. They suggest another scan in 6 to 8 weeks to see if things stayed same or grew. Of course, I am now a wreck because I think this has to be cancer again. A recurrence. Has anyone had a similar situation and it turned out to not be cancer again? I was so sure I would remain cancer free for longer than 6 months! Am I worrying for no reason or will these suspicious spots turn out to be cancer?

[Rosiemd]

Hard to say not to worry but they could be benign and they are very small. Fingers crossed for you and keep us informed.

[Heidels in reply to Rosiemd]

if this is oc recurrence, how can they possibly be benign, is that really possible?

[3pups in reply to Heidels]

Is your CA 125 going up? I had a scan that showed something, I also have OC stage 3 c, and I tried not to be concerned until my CA-125 started to go up. I'd be curious to know what your number was and if it's changed.

[Heidels in reply to 3pups]

HI, my ca-125 went from a 5 to a 7. I just had that done and I was shocked with findings in CT scan that suspicious spots were found.Maybe the "spots" were too small now for ca 125 to rise? I dont know.I always thought that would be first thing that happens and then a doctor gets concerned that you might have a recurrence ad they go from there. I am at a loss here. Could those findings really NOT be cancer again? What else could it be?

[3pups in reply to Heidels]

Hi,

My CA-125 went from 4 to 7, I tried not to worry. Hard to do. I didn't have a scan because I felt my CA-125 was still in the normal range. Next labs, one month later it went to 7, then 11 and when it then jumped to 55, I had a scan and yes my OC was back. I also have a friend who has been cancer free 25 years, same diagnosis as us. You just never know and I admit my fear of it returning again is always there.

I'm now on Avastin infusions every 21 days. We'll see. I am BRCA negative but my doctor feels it's to my benefit so I choose to go on it. No side effects I can tell.

Please keep us posted and keep doing what you feel is best for you.

I'm tired of being afraid and trying to stay positive and know I'll deal with what ever's next. Feel my hug.

[Heidels in reply to 3pups]

thanks 3 pups. Yes, it is hard not to be scared.I am also BrCa neg. They want me to take Zejula and I fear that since I have read how so many who take that have to have blood transfusions done .It has some serious side effects.I read the median time for most recurrences is 18 to 24 months and mine might be back after only 6 months from my last chemo. I cant help but think that cant be good. I see doc tomorrow and I guess a scan will be done in 6 to 8 weeks from what she told me on phone. That seems so long, wont it have spread in that time and only gotten worse? I must ask her tomorrow about all this. I hate this, I hate wondering what is next, will I be around a year from now. My life is my 3 year old grand child.........I need her to remember me, I need a lot more time yet before things get really bad. I know they all say think positive. That is not easy to do. How can one be positive when one knows OC is rare, having a recurrence where mine might be is uncommon and only after 6 months in? Yes, this scares me . I just hate all of this. Where did your recurrence appear and what did you have done after it returned?

[3pups in reply to Heidels]

My first surgery 3 years ago which was the total hysterectomy, included taking my sigmoid and 8 inches of colon. This time, end of September, they had to take my spleen and tip of my pancreas.

I do have a spot on my lung that has stayed the same for years. You just never know. Is there another drug besides the Zejula that you can get? I have a few side effects from avastin but the alternative out weighs the hassle for me. My first tumor was also HR positive, which means my cancer has an 80% chance of returning. I've had 3 blood transfusions because of the drop in red blood cells. They made me feel so much better. Keep communicating with your doctor. The waiting is the worst. Fill your time with your wonderful grandchild. All the worrying won't change the outcome, and what if it's not cancer again?... Don't let this cancer win. I think I'm telling myself this.🙂 My emotions go all over. Pity parties to slaying the dragon. Do you have any oncology support groups? My hospital has a therapist who I email with because of the COVID issue. Contact your local American Cancer society and maybe they have an ovarian cancer group. If You're into that, it's kind of like this online support group but it's a lot of fun to sit and complain and celebrate with people in person. Hang in there and I'm more than willing to talk. It's helping me as well as I hope is helping you. Hugs

[Heidels in reply to 3pups]

hi again, your email is nice to see knowing you feel scared too and it is both being scared and then the slaying days. You said your tumor was HR pos and that means your cancer has an 805 chance of returning? Arent all types of OC 80%. I dont know what HR is. I went for my cmp/cbc awhile ago because doc needs that before I am placed on Zejula. How do you take avastin? Is it a pill? Less harmful than Zejula? No one has even mentioned Avastin to me.They have been pushing Zejula for MONTHS !! They probably own stock.LOL

[3pups in reply to Heidels]

I do the Avastin by infusion every 21 days. I've had two so far after chemo was finished. You're right about all OC having an 80% chance of return, that was what they told me the first time, this time they told me it will return. The HR positive is something about my genetic makeup I didn't understand it quite. The doctor was adamant that I go on avastin. I'm also immune compromised because of rheumatoid arthritis.

[Heidels in reply to 3pups]

they told you it WILL return?

[3pups in reply to Heidels]

Yes, That's why the Avastin to try and keep it away as long as possible. It's s***** but what can you do.

[Archeveritas]

Did you have chemo treatment?

[Heidels in reply to Archeveritas]

yes .last chemo was november. Had 4 then surgery and then 3 more.Total remission . Now, 6months after last chemo, this scan showed suspicious spots on sigmoid colon and bladder wall. Can this really be recurrence? These are not the normal places OC spreads to once a recurrence happens. Right now, they are small and they want me to have another scan in 6 to 8 weeks and see if anything grew.