Recurrence

[Wanthealth]

Hello and hugs to ALL,

I was diagnosed with OC (Fallopian tube) March 2018, found during routine hysterectomy ..... 6 chemo treatments of carbo/taxol. ... after 3 rounds went in did omentum removal and was NED. Then had 3 more rounds of chemo. Finished last chemo 9/4/18 At that time my CA125 was 3 ( my highest was only 28 and gradually down to3 one month checkup in October cat scan NED. And ca125. Still 3 ..... Dec 13th visit all looked good ca125 still 3 fast forward to January 18. My OBG. Did a surgery to repair a prolapse and lift bladder, she found something very small sent for biopsy. Came back positive 😟. Will need 6 more rounds of chemo... starting all over again 😢. Dr said may do combo of carbo/gemizide???? Not sure on “ G” drug name ? Can anyone tell me what it might be?? And. Does it cause hair loss like taxol ??? And what side effects ?? Appreciate any response. Thanks

[Simplicity1]

So very sorry to hear you have to have another round . Will pray for you.

[Wanthealth in reply to Simplicity1]

🙏🏻Thank you 🙏🏻

[Bahamas22]

It’s called Gemzar I had it with Carbo/Gemzar/Avastin. Nope No hair loss. It is exhausting. Normal side effects nauseated, tired etc etc. lots of water. Can’t stress it enough water water 🙏🏼🙏🏼

[Wanthealth in reply to Bahamas22]

Thank you for responding appreciate the info🙏🏻🙏🏻🙏🏻 Also might want to put me on Avastin after chemo finished. ... have you been on that or any other maintenance chemo drug after ur chemo? Thanks

[Bahamas22 in reply to Wanthealth]

Yes was on Advastin for months. Then it started causing blood vessels to burst which was causing my stomach pain and inflammation Then I went on Zejula. It’s a pill that is called a PARP inhibitor. Worked great on CA125 number went from 221 to 33. Many chemo maintence types to be offered

[sara_mamani96 in reply to Wanthealth]

Hi, May I ask you how soon you recurred and went on Gemzar/Caro? Have you had gemzar alone as well?

Also are you BRCA+?

May parp continue working

[Wanthealth in reply to sara_mamani96]

I had an incidental finding during routine surgery to repair a prolapse 4 months after finishing chemo and Ned Ca125 3. BUT. Dr says the less than 1cm was only found cuz I had a surgery, he thinks could of been 1-2 yrs before Ca125 would be up and that it would of shown on a scan .. I had carbo/gemzar on February 13 so far so good. Then on February 22 will just have gemzar by itself , then week off and start back on same routine for total of 6. Cycles ... then talking about maintenance with some sort of parib