TRODELVY CHEMO TREATMENT

[Klamato]

I have been on several pill treatment for my 4th stage breast cancer along with the injections of xgeva and Faladex(spelling) for 8 years and have survived with little or no advancement but on my PET scan in September showed a couple of new lesions in my liver and lymph nodes, so they started me on Doxil chemo infusions after which the RECENT PET showed progression, so I failed that after 3 treatments. I recently received and started on Trodelvy (aka: sacituzumab govitecan)! Wondering if anyone out there has received this treatment and if so, have you had success with it! I only had my second treat yesterday and feel fine but have to have Nulasta to bring up my white blood cells bc they got too low! Please let me know your experience with this chemo drug! Thanks. Kathy ( from Syracuse, NY)

[Saltandlight]

Hi Kathy-I was put on Trodelvy after Xgeva but was only on for two cycles as I had extreme AEs and wound up in the hospital. I had joined the Facebook group for it prior and saw many people tolerating it with little to no issues so you might want to check that out if you’re on FB. Prayers that this may be a long term solution for you 🙏🏻!

[Klamato in reply to Saltandlight]

Thanks for your response! What is AE? I have had two treatments so far and the most I get is a restrictive throat and a dull headache! I have however lost most of my hair, so I guess that’s something I deal with! I do have a few good wigs, so that does help! I just wonder what you went on after coming off Trodelvy? I don’t know how many lines of treatment I have left! Sure hope I can keep going forward with these treatments! God has been good to me so far!

[Saltandlight in reply to Klamato]

AE is adverse effect. That’s not too bad after two treatments if those are the only side effects you’re experiencing! I lost all my hair after the second treatment which was the first time I had gone through that but got a couple of good wigs too which helped. I fired my oncologist as she told me there wasn’t anything else really to do and went to City of Hope where my new oncologist has me on Afinitor and Aromasin which have resulted in good PET scans. I’m due for another here in March and am hoping I can stay on this regiment. As she put it “we’re going to treat this like a chronic illness” so I would say don’t concentrate on the number of lines but keep faith in knowing that God has been good to you and there are treatment options coming out all the time. We just have to trust in His plan and timing. It is hard sometimes but know you are being prayed for and you are loved! 🥰