Rash on my body

[Solochabe1]

I'm on Xeloda and I start noticing like red spots on my body, first I tought it was like an allergy, I took some benadryl, but the rash is not going away anyone dealing with this symptoms

[daf10]

What you are experiencing sounds like something similar that to what people on Xeloda experience

Hand-foot syndrome (Palmar-plantar erythrodysesthesia or PPE) - skin rash, swelling, redness, pain and/or peeling of the skin on the palms of hands and soles of feet. Usually mild, has started as early as 2 weeks after start of treatment. May require reductions in the dose of the medication)

This is what is suggested for relief from hand-foot syndrome by the Cleveland Clinic Of course you should talk to your oncologist but maybe some of these suggestions might work A steroid creme might be an effect way to deal with the rash.

This involves modifying some of your normal daily activities to reduce friction and heat exposure to your hands and feet for a period of time following treatment (approximately one week after IV medication, much as possible during the time you are taking oral (by mouth) medication such as capcitabine).

Avoid long exposure of hands and feet to hot water such as washing dishes, long showers, or tub baths.

Short showers in tepid water will reduce exposure of the soles of your feet to the drug.

Dishwashing gloves should not be worn, as the rubber will hold heat against your palms.

Avoid increased pressure on the soles of the feet or palms of hands.

No jogging, aerobics, power walking, jumping - avoid long days of walking.

You should also avoid using garden tools, household tools such as screwdrivers, and other tasks where you are squeezing your hand on a hard surface.

Using knives to chop food may also cause excessive pressure and friction on your palms.

Cooling procedures:

Cold may provide temporary relief for pain and tenderness caused by hand-foot syndrome.

Placing the palms or bottoms of your feet on an ice pack or a bag of frozen peas may be very comforting. Alternate on and off for 15-20 minutes at a time.

Lotions:

Rubbing lotion on your palms and soles should be avoided during the same period, although keeping these areas moist is very important between treatments.

Emollients such as Aveeno®, Lubriderm®, Udder Cream®, and Bag Balm® provide excellent moisturizing to your hands and feet.

Pain relief:

Over the counter pain relievers such as acetaminophen (Tylenol®) may be helpful to relieve discomfort associated with hand-foot syndrome. Check with your doctor.

Vitamins:

Taking Vitamin B6 (pyridoxine) may be beneficial to preventing and treating Plantar-Palmar Erythrodysesthesia, and should be discussed with your doctor.

[Solochabe1 in reply to daf10]

Thank you so much this information is very helpful!

[daf10 in reply to Solochabe1]

Glad to hear I hope you find relief soon

[MMMP in reply to daf10]

Awesome explanation- I've been on xeloda since June 2016 and have been using all these very helpful tips. My lips also seem to be sensitive to the drug. Need to keep them moisturized with creams. Adjusting the dose has been helpful to my hands but not helping my 15-3. The cancer is in my bones - my goal is to keep it out of my liver and lungs. Using Exgeva as part of my treatment plan. I'm 2 years out- diagnosed Christmas 2014. Did it all- chemotherapy, bilateral mastectomy-radiation- I feel great and I'm back doing everything I want! Not going to let my hands/feet syndrome get in my way. But it does suck having stage four.

[CMDec in reply to MMMP]

Hi! I'm experiencing the same thing my upper lip is sensitive to Xeloda as well.

[daf10]

Hang in there It truly does suck being stage 4 but you seem to be handling it pretty well You might want to talk to your oncologist about treatment options or look into a clinical trial to up the ante. The Metastatic Breast Cancer Alliance has a great web page, mbcalliance.org/ They have the first-ever clinical trial

search engine designed specifically for people with Metastatic Breast Cancer.

I have talked to several women who have stuck with Xeloda despite the discomfort that it can cause and are happy with their decision.

[MMMP in reply to daf10]

Yes - I use to work as research coordinator in the area of cardiac research so I was so ready to be in a study-S1207 started in one but got really bad mouth sores - yes I was on the study drug everlomius- then tried another one but than my bone biopsy turned up negative so I jumped on the exloda- glad to be off the arimadex it made my joints ache. Didn't realize how bad it really was till I stopped. We have a strong cancer research dept at our hospital. My oncologist is awesome and let's me adjust my dose. Trying to keep my 15-3 stable. My bone scan came back looking better and nothing on the CT. I still get anxious every time I get my labs drawn. My Alk phosphate is now back to normal. I have a great massage therapist who has worked wonders on my chest. I recommend it to anyone who has had a mastectomy.

[Mariannem]

Let your oncologist know also as your dose needs to decreased if you are developing hand/foot syndrome. I found icing my feet and hands to be the only thing that helped me with the discomfort.

[Ibelong]

I was on Xeloda and only had a rash on hands and feet. I had a very bad reaction to a different chemo tat was a rash over most of my body. Nothing helped the rash or the itch. Not benedryl or lotions. Please report this to your doctor immediately. It may not be serious and treatable. Just do not wait to report it to your oncologist as it may be trouble. Best wishes.

[CMDec]

Hi I myself is also taking Xeloda and dealing with a dry/swollen upper lip. I need to make sure I stay hydrated and moisturize my lips.

[MMMP]

Keeping your mouth moist is important too-my dentist made me some trays that I fill with biotine gel and I wear them at night when I sleep.