Rash all over my body: Hi Ladies... - SHARE Metastatic ...

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Rash all over my body

Rorita profile image
17 Replies

Hi Ladies , anyone on the forum developed rash while on exemestane and afinitor, some help needed, thank you 👌

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Rorita profile image
Rorita
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17 Replies
Silver126 profile image
Silver126

I developed a mild rash on my forearms, tell your oncologist about it because it’s a common side effect caused by this combo.

Rorita profile image
Rorita in reply toSilver126

Thank you for your reply, can you please let me know your oncologist opinion? And how you solved this issue 🤔

Lnlc profile image
Lnlc

hi- the only time I had this was when I was on pigray and the oncologist had me stop immediately. Also I’m allergic to every penicillin and get full body rashes/hives from those if I happen to take the wrong one. Best of luck as this resolves.

Rorita profile image
Rorita in reply toLnlc

Thank you 🙏

Silver126 profile image
Silver126 in reply toRorita

My rash was mild and very small. My oncologist told me to tell him if it became larger or itchy, but it didn’t happen.

Ticket123 profile image
Ticket123

I just noticed a rash on my forearms yesterday. I have Doctor appointment tomorrow and will see what they say.

Rorita profile image
Rorita in reply toTicket123

Hopefully all goes well as you want.let me know please what is your oncologist opinion, would be great . GOOD LUCK 👍

Trissh profile image
Trissh

Hi Rorita. Early in my treatment with Ibrance and Letrozole I developed a wicked rash on upper back, chest and arms. My onc sent me to oncological dermatologist and he gave me an ointment called Triamcinolone 1% and had me change to Dove unscented soap for showering and and change to a free and clear laundry detergent. This set of remedies cleared it up and continuing with the soap and detergent, it never returned.

Rorita profile image
Rorita in reply toTrissh

Very helpful info , thank you 👌

1711JPD profile image
1711JPD

Yes, I did. Head to toe. Terrible itching.

Turns out I was allergic to Afinitor.

Call your onc. I was switched to Xeloda (the generic brand I cant spell!), and am doing fine. I’m still on the Exemestane. PET scan on 6/1, so we will see how things are going.

Best wishes.

mariootsi profile image
mariootsi in reply to1711JPD

Good luck with your scan.

1711JPD profile image
1711JPD in reply tomariootsi

Thanks very much!

Rorita profile image
Rorita in reply to1711JPD

Good luck with your Scan , keep us updated 👍

Eliactida1955 profile image
Eliactida1955

sorry to hear that bec it is a side effect. I took it for few months only made me so sick and my onc told me he wasn’t sure if it caused me to get my pacemaker. If it’s not working get off of it. 🙏✝️

Ommmmmmm profile image
Ommmmmmm

i got a rash on my upper back and left cheek the first day i started Aromasin (exemestane). Thats all i was on. The onc told me to hold it. The rash was gone in a week and we restarted it without this reaction 🤷🏻‍♂️

Fiercefighter13 profile image
Fiercefighter13

I have not taken this protocol but my doctor and I did discuss it in length. She told me that rashes are very common with it. I had a very bad rash reaction with fever to Piqray (had to stop this protocol immediately), and since I have sensitive skin issues so my doctor is trying to avoid this protocol for me.

Sharonpat profile image
Sharonpat

hi I’m on abemaclib (verzenio and letrazole and I developed a rash and they have stopped one of my tablets as they think I’m showing an allergic reaction

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