Experiences with

Xeloda

Hello, what’s your experience with Xeloda? What are the most common side effects you experienced, diarrhea, nausea, vomiting, abdominal pain, hair loss, etc…? I’m also searching for co-pay assistance program.

hi everyone, my dad started Xeloda on November 5th. After his first month on it he got bloodwork done in December and his CEA went from 4.9 to 3.5. CA15-3 stayed stable at 21.

hi everyone- my dad had some small progression on Lynparza for the BRCA2 gene and he now will be moving on to Xeloda. We are quite nervous as this is his first true chemo. He was on ibrance and Lynparza previously. Appreciating all words of wisdom as we start this next drug/ journey.

hello. Looking for recommendations for cream to manage HFS and special gloves or socks.

I was on Xeloda for about nine months, then stopped. Toward the end of that treatment and during the three weeks I was off all treatments, my distance vision declined dramatically. I started Orserdu last week.

I start Xeloda next week, this is my fourth new treatment in 2 yrs. I'm a healthy 67 yr old with breast cancer. ER/PR+ & HER2-+.01, since 05/2018. Was ned for 3 1/2 yrs. before it came back in 7/2022. How has it worked for some of you?

Now taking Xeloda. I want to know if my wife and I can sleep skin to skin while I take this. Does she need to wear full coverage pajamas. I like for her to lay her head on my shoulder, will this hurt her.

I’m on Xeloda right now but thinking it’s my last option before IV. Mary 🙂

I’ve just finished my round 2 of Xeloda and wondering how others manage taking it at the same time every day. My schedule is somewhat variable.. eg sometimes I need to eat dinner early and be somewhere; ditto for breakfast.

Unfortunately Xeloda/Capecitabine was an epic failure for me. Ended up in the hospital due to severe treatment side effects. While it is a tolerable drug for many it did not work for me. Moving onto Taxol.

(And I should be in a happy place because darn Xeloda has caused my TM to plummet!) I’d love to hear if anyone has any suggestions, and in particular if anyone has used liquid band-aid.

Also, I read that Xeloda might be able to get through the brain/blood barrier. Has anyone taken Xeloda with brain Mets? Many thanks. Helen

Has anyone been on Xeloda more than three years. If so, how many milligrams did you take a day. What were your side effects. Thanks.

Does anyone have experience with this drug ?? It seems my pickray mutation is gone so not putting me on truqap..Thank you all you lovely warriorsRox

My oncologist is concerned because I’ve been off chemo meds for so long but one of the side effects of Xeloda which would be next is diarrhea. Has anyone had similar issues?

Also did xeloda, verzenio , fulvestrant,arimidex to name a few. I don't know what could possibly be next but I have been on something this whole time and the thought of getting off is frightening. I did just find out I have and ESR1 mutation-- so Orserdu?? Just looking for any thoughts.

He also rejected radiation and gave me Xeloda. I live in Toronto. Maybe the approach to treatment in America is different?

I am now on heart medication and have just started on a new treatment regime - a Herceptin infusion every 3 weeks plus daily doses of oral chemotherapy - Tucatinib and Xeloda.

My onc switched me to Xeloda so I have a newly shipped package of Piqray from Novartis that I’d be happy to send if someone needs it.

On first week xeloda and I get severe neck and face pain once a day..I take a klonpin and tylenol and relieved in half hour..I don't know if anyone else has it.ROX