er pr+, her2 - mbc

[AS_2403]

hi everyone,

My mom recently got diagnosed with hormone positive breast cancer, with metastasis to the bones. She is currently on ibrance(125mg) and letrozole … anyone who has been through similar treatment, can you please guide any dietary or lifestyle changes that are to be made or any if anyone benifited from any alternate complementary therapy…. Will be extremely grateful for your insights

[Flower1513]

my mom was on this exact combo for almost 3 years and did great honestly! She made no major lifestyle changes . I know everyone is different but this was a very easy one for her. Hope your mom does well on it for a very long time!

[AS_2403 in reply to Flower1513]

Thank you flower1531, glad to know the treatment worked well for your mom… and knowing its an easy treatment lifts off a lot of my anxiety… hope your mom is doing well ok her current treatment and wishing her and you lots of strength and positivity💐

[Fancy-life]

hi!

Am on the same combination for the last 4 years. The Letroze causes bone and joint pain, which had increased over time i did experience nausea initially, and i still have extreme hot flushes

Dietary changes such as avoiding fried foods and spicy food is advisable . otherwise life goes on as usual with a few initial wobbles!

Wishing your Mom all the best and strength in this new journey 🌺

[AS_2403 in reply to Fancy-life]

Thank you so much for your reply❤️… glad to know the treatment is working well for you. Reading positive stories like yours just make my day a lot more happier.

Thanks a ton for your insights, wishing you lota of strength and many mny more years in this treatment

[Fancy-life in reply to AS_2403]

Thanks .. also i feel positivity and not overthinking might help too! It isnt easy, but trying for normalcy is a good way to deal with this!

Best wishes again to your mom and you!

[Timtam56]

Hi AS_2403. I suggest you look at my posts from way back…. 7 years now since I’ve been having treatment for the same as your mum. So can read about my journey, (And lots of others here) who have had the same.

You will see that a lot of us have done very well for some time on the same treatment. And there may be some hints there for your mum as well.

I’m too tired to go into it in detail here and I can’t remember everything anyway. But I have lived a full life. didn’t give up any foods, drinks, or sweets, that I loved. I hav just been sure to make myself happy. And to live a full rich life while I’ve been about to.

Timtammie56 from Melbourne Australia.

[Dragonfly2 in reply to Timtam56]

Great idea, timtam to invite new members to read through past posts…it certainly gives historical knowledge!

[AS_2403 in reply to Timtam56]

Thanks a lot for your response❤️❤️

Its very reassuring to know the treatment worked well for you….and even more happy to know that it didn’t alter your life quality much… your posts are really inspiring and i m reading them out to my mom right now…thanks for such wonderful insights, wishing you all the more strength and positivity

[Jmarkova]

I have been on letrozole and verzenio for almost one year with virtually no side effects. The doctor at the Mayo Clinic recommended no beef, limit sugar, and no alcohol. He also recommended eating mainly plant-based foods. I am trying my best to follow his advice. Good luck to your mom.

[AS_2403 in reply to Jmarkova]

Thanks a lot for the advice Jmarkova.❤️ Will definitely try to incorporate your recommendations. Wishing you too a very good luck and great health.

[nancypont]

I also was on Ibrance and hormones.

I am now taking Kasqali

There has been no issue with either.

Just fatigue

[AS_2403 in reply to nancypont]

Thanks a lot for the reply. Very reassuring to know the treatment is working well for u and ao many more here. Sending u lots of strength and positivity

[Mimigram]

I have the same type of cancer as your mom and have taken Letrozole & Ibrance off an on 75mg. I did switch to Tamoxifen & Ibrance as it is not as hard on your bones. I am 73 years old still going strong.

Diet I follow I follow Jane McMellands book

This is an excellent book to read. I have followed this for years diagnosed in 2005.

[AS_2403 in reply to Mimigram]

Thank you soo much for your reply mimigram.❤️ Really happy to know the treatment is working so well for u, gives me so much hope for my mom. I wish you keep going strong the same way, inspiring so many more like me. Thanks for the for the diet recommendation

[U2Rocks]

I had the same diagnosis and treatment 5 years ago with good results as no new growth. I recently had another spot on a different bone. My oncologist said Ibrance typically works for 2-3 years then a new drug is needed. I made it to 5 years. I was on Verzenio for 6 months but it didn’t shrink the tumor. I also take a bone strengthening shot every month ( exgeva). Now I’m on a new shot to work harder on my estrogen (Faslodex). I’m in her office now as she will try another drug to replace the Verzenio. Best of luck and keep your mom distracted and busy so she can relax as best as possible.

[AS_2403 in reply to U2Rocks]

Thank you for your insights. Glad to know the treatment worked well for you. And Will definitely try to keep my mom occupied and distracted, to help her bring back normalcy in her life.

I hope faslodex does wonders for you… its quite potent as well, as ive been reading on here. Wishing u lot of strength and good luck.. stay strong❤️

[love2golfwell]

I'm so sorry about your mom. I have been on this combo for 4 1/2 years for bone metastases. I had some nausea the first couple of weeks but was recommended to take the pills with my dinner and to use Chimes ginger chews from Amazon. The letrozole can cause joint pain, but exercise can help with that, even just getting in a walk every day or several times a week. Also, the meds do cause some hair thinning as they target rapidly growing cells like hair, skin and nail follicles. I reduced my sugar intake and make a healthy smoothie for breakfast with Kefir, almond milk, berries, bananas, spinach and kale and flax seed, chia seeds or hemp seeds. Sometimes I had a half avocado for extra creaminess. I try not to eat a lot of fried foods and don't drink a lot of alcohol, maybe a glass of wine a couple times a month. I also get exercise every day and have monthly massages. This is a great site where you will find lots of information, advice and support. Sending you and your mom hugs and prayers. Hope she does well on this protocol for a very long time with little or no side effects.

[AS_2403 in reply to love2golfwell]

Thank you for such a detailed response❤️❤️

Its extremely reassuring to hear the treatment is going so well for you. Will definitely try to incorporate your recommendations. And Im glad I found this site and people like you, it really helps make this journey a lot more bearable. Been reading some amazing insights on this topic from fellow survivors and I feel so hopeful. Wishing you great health and positivity, hoping the treatment keeps working amazingly well.

[love2golfwell in reply to AS_2403]

You are more than welcome. Hope to see some positive posts from you about your mom and that she is doing well on her treatment protocol. This is definitely a great site. It is nice to know that we do not have to be on this journey alone. Thank you for the good wishes, Hugs and prayers.

[Gramat]

I have been on the same combination for the past 5 years and my scans (my most recent 05 March) show no evidence of active disease.

I started off on 125mg Ibrance, however this was reduced to 100mg a year later because of neutropenia. In addition I get administered Denusomab injections every 6 months. I lead a very normal happy life.

[AS_2403 in reply to Gramat]

that is soo good to know… makes me feel so much more hopeful for my mom❤️

I hope the treatment keeps working amazingly well for you for a long long time and may you stay as positive and vibrant always. Good luck💐