so a year after all my problems started I finally got my NHS appt with Dr Nijam
Lovely bloke set my mind at rest regarding the twitching stiffness cramps etc that I wasn’t in early stages MND or Parkinson’s he was concerned my GP had put me on buprenorphine but I explained the painful damaged hip and SI joint along with RL she felt was a good choice … thank god I have an amazing GP!!
HOWEVER on the subject of restless legs - useless!
tried pushing ropinerole on me as a short term fix
So I went to town and I mean went to town I printed off research showing augmentation and impulse control issues and asked him why he felt a quick fix was ok and if so would he support weekly catch ups when I augmented them them had to withdraw
I asked him if he’d been sued for anyone having impulse control as there is a number of claims now in the UK so for him to be aware of this.
I asked about an iron infusion given we cannot raise my ferritin over 56 despite a year of supplementation and that would support my body to do what it should be doing naturally given the blood loss inflammation and trauma of surgery caused my RL and benign fasiculations.
He said no your ferritin needs to drop to 7 but even then I can’t recommend it
So I asked him which drug companies are they affiliated to “pushing pharmaceuticals “ that are touted as miracle drugs without any concern for long term problems.
I hit him with the research over buprenorphine being helpful in many cases and asked why something natural like an iron infusion to encourage the body back to its previous homeostasis was not even an option but vile dopamine agonists were
He had no answer .
he then started to talk about how levodopa is useful for Parkinson’s so I produced another study showing long term it can increase the chance of restless legs
I told him I’d had more support from my GP who went away and looked at the research I’d left
He told me he was discharging me but did agree to re run bloods
Oh and the kicker was my previous bloods I’d had done showing a very raised IgM level he had no clue what that meant !!! The mind boggles so I told him it could indicate post surgical inflammatory neuropathy a neurological condition amongst other things
had it not been for this group i’d have been clueless so thank you to all the wonderful humans on here that are always giving advice on every post ❤️
Neurology appointment 
Update on neurology appointment 
Pain spec letter
