I had a left knee replacement surgery April 10th this year. My right knee is also “bone on bone” from osteoarthritis and I’m dreading getting a second one as its been a rough recovery, and the RLS return has me worried too.
4 months out I’m getting stronger week by week although I’m definitely not pain-free. Yet thankfully the worst of it is behind me now. Except ….I’m now also suffering from dreaded RLS again at night!
Not every night… but often. More than not. RLS symptoms started about a month after the TKR surgery (I was weaning off Oxycodone during that time- but truly could not have tolerated the pain without it.)
Blood tests: In late June My ferritin was 33 and iron saturation 49% .
so…My GP doctor recommended I take daily iron supplements but she did not recommend an infusion. Not sure why as we discussed the Mayo Clinic RLS protocols.
Does anyone know if my iron saturation result was considered normal, so would iron infusions not be covered by my insurance ? even though my ferritin was too low at 33 (for RLS), because my iron saturation was high ? Re-reading the Mayo Clinic protocol did not give me any clarity on this as it seems I only have one of the criteria required for infusion to be approved ?
right??
I have venous insufficiency as well (and varicose veins) so I also wonder if some of the discomfort in my legs is from that - and not from RLS ? It’s hard to tell
Yet I had the insuffiency before the surgery and did not have RLS symptoms or leg pains/discomfort like this then !
This now feels exactly like way I felt after 2 emergency gallbladder surgeries over 2 years ago when RLS was triggered for the first time in my life!( It came on in second or third week also after weaning off oxy)
RLS lasted for 9 horrible months back then -then finally mysteriously improved and then went away entirely and didn’t return until this knee surgery Two + years later!
Then , I took iron bi-glycinate daily (Ferrasorb) as my ferritin was low- 30 I think?)
still after all those long months on iron my ferritin level only went up to 55 !Yet in spite of that number my RLS symptoms eventually went away. I didn’t have an infusion then nor was one ever recommended one.
I’m now taking the same Thorne brand FERASORB which is 75 mg iron bi-glycinate with vit C at night- 2 hours after meals usually. About 3 weeks ago I switched to every other night dosing as recommended on this site. I don’t have RLS symptoms every night which is confusing to me, but I get it often…. Several times a week in general - so I’m often sleep deprived. I frequently spend hours of tossing and turning in bed due to the strong impulse to move my legs. I’m often better in early mornings.
Sometimes 2 Tylenol help me sleep so I think maybe post-op pain and arthritis pain in knee -and inflammation - is contributing to sleep issues as well.
But I just don’t know … nothing is consistently helping yet.
I’ve been trying some natural sleep supplements with some improvement it seemed to me at first…but it’s so incredibly random I don’t know what’s helping or hurting - or neutral?! I took 250 mg pharmaGaba (Thorne) and “cortisol manager” (contains ashwaghanda l-Theanîne and other relaxing herbs)For a couple weeks I thought these supplements were helping at first, but suddenly - not! In fact I’m now a bit worried … could the pharmagaba (or something else) even be triggering RLS later in same night?? Is this even possible ? I think I’ve heard that natural GABA could have an augmentation effect on some people ? Yet it helps many others…??
I’ve had some success with better sleep with valerian and other herbs for sleep but nothing strong enough to help me sleep all night.
I want to try CBD/thc gummies soon
I think I have RLS and pain - so it’s complicated
Thanks for any advise