My Dad who I believe is in the end stages of this terrible disease (PSP) has just had x-rays which showed pneumonia (moderate to severe was the diagnosis) in both lungs. The have started him on antibiotics. They are now spoon feeding him pureed food because he chokes even when using a straw. He is also incontinent which is a new symptom. He lost 5 pounds in one week which is unusual since he has gained weight since being in the Nursing Home.
He was diagnosed 3 years ago but we are sure he had the illness for about 3 years before being diagnosed. He can no longer talk, walk, see or do anything for himself. My mom who is 85 finally had to put him in a Nursing Home in April because it was too much for her to handle. His caregivers there our so wonderful to him and its a blessing for use to know he is getting the round the clock care he needs.
Sorry for rambling -- just so many thoughts going through my mind. I have been down 3 times to visit (they live in MA I live in TX) this year and would like to see him one more time before he passes way but I already have a trip planned the 2nd week of November and I'm wondering if that may be too late.
Maybe I just needed to talk about it because my heart is so heavy with sadness and guilt that I can't be there all the time to help out and be with him. Is pneumonia one of the signs that his passing is close?
Thanks for listening.