My husband was in hospital for a week with urinary and respiratory infection. After caring for him for 3 days I called our GP he said the prognosis was not good.He was put into a nursing home and after 3 days looked like he was at the end.because of his tunnel vision he could not see the m properl. He would get a fright if they approached from. the side.
I told them numerous time to approach him from the front.
There were so rough and too many were handling him. They never bathed him. They said he was too difficult. He ate mash potatoes for 4 days he also had bruises on his body.
Nursing is a God given calling. Alas not in this home. One nurse actually shouted at him
So I discharged him myself the next morning saying I could do a better job at home.
He is off all meds. Standing straighter, a very healthy appetite. Better completion and is a bit more lucid. Please God let this last.
I am rubbing 1 drop of cannabis oil on his gums am and pm his body is more relaxed .
He wii not go back to hospital.
I have a full time nurse to help me and you know it's a two man job.
Thank you for listening . Wishing you all the best as the struggle continues.
Much love
Althea 💛🙏
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Althea-c
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Althea so happy you have your husband home, nursing home doesn't sound very good, best place to be at home, in a loving environment. Sending you a big hug. Yvonne xx.
Althea you have done the right thing. How cruel are these people? One day they will need help and I wonder if they will recall how they treated people?
God bless you lovely lady! You need to rest when/if you can but if you need to chat we are here.
I'm so sorry that they've treated your husband in this manner. It never ceases to amaze how some people that work on care can be so callous and have no empathy. You did the right thing. We have a nurse at home as well and it makes a world of difference having someone qualified. Please do still keep an eye on the nurse we have had incidents at home as well, we have a camera in the room that we can log into and get live feed. The nurses are made aware of that, as mum is now totally non verbal. We trust no one now.
Isn't it horrible that even at home we have to check on the nurses. Nurses are born ... it's a gift !! Yet so many don't have it. Sorry to hear that your mom is in yet another stage of PSP.
'We trust no one now.' Bingo. Have been taking care of mum with PSP at home for 4 years. This PSP illness almost demands it as 'care' is more than changing nappies, feeding, administering meds. The horror in care homes is your loved one being shunted, ignored, left to their suffering alone. I would not want that for myself. Too many stories out there to prove this. I have caregivers 5 hours per day on three different times of the day, and an fully organised system of what to do, the attendant supplies, equipment, which is the only way one can cope. Mercifully this has worked. Would I like more respite? Sure, but who can you 'trust'. No one, really, save perhaps other immediate family members.
Althea-c, I am glad your husband is home, but even gladder that you have hired help. As I have written about my son, my biggest regret was not bringing in additional help to the 24hour one that I already had. PSP is so demanding. I think the more help we can afford, or not afford, the better for our loved one and for us. I keep us all in my prayers.
PSP is a thief. It breaks the bank but who cares .... you can't take it with you. My darling Barry's comfort is all I care about. Wishing you and your son love and strength . 💛🙏
How awful, to trust them with your loved ones, then to be treated like that, pleased you have him home now, it always seems we are the best carers, even though we aren't the "qualified ones" we qualify ourselves as we go.
Can I ask where you get cannabis oil from, I've looked on the internet and not really sure what I'm looking for.
Love and hugs to you both, hoping things become a little clearer and brighter for you.
Good for you Althea. You are your loved ones only true advocate. sometimes you just have to take the bull by the rings and swing everyone off! We here at PSP have found this to be true time and again! I mean when you have to tell the doctor what the illness is and the symptoms thereof....you realize right quick they and their minions are not gods!
I am glad that your husband is fairing somewhat better. Tel me what does the cannabis oil do? May you continue to have good luck with this nurse and your mans health
Do you pay for your full time nurse. I hope you don't mind me asking but I can't seem to get any help because we have more than £23,500 capital in our flat. Well done you for getting him out of there. Xx
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