Yes, spent a fabulous evening at Bristols hot spot for entertainment. Southmead Hospital! The girl at Costa even told me to "enjoy my evening"!
Tried to wake S up in the morning to give him his breakfast before the carers and DN arrived. He wouldn't wake. The carers again tried, but he still didn't respond. He had a bit a temperature. So they gave him a bed bath, changed his wet clothes and bedding. Still wouldn't wake. The DN arrived, to give him his enema, obviously that didn't happen, but she took his temperature and said she would go back and report this to the doctor. An assistant/paramedic came out. All his obs were fine except his temperature. Still no sign of his waking. The doctor phoned, said he could take him into hospital, but suggested we wait a few hours. Eventually, late afternoon, no real sign of any improvement and allowing that he had had nothing to drink since tea time the previous day, apart from a couple of spoonfuls of water, that I had managed to get down him. Called to get the doctor to come and see him. He, quite obviously, had a Christmas party to go to, or something, just called the ambulance, without bothering to come and see him.
So we spent 5 hours in a very crafty corridor, windows wide open. Did get his temperature down, almost too low! No doctor, no fluids, no nothing. Finally had to do my Oscar performance, you know the one, I am his main Carer, I have been up for hours, need my rest, blah, blah blah! Well it worked, Doctor came, examined him, couldn't find anything. Said they would have to run a load of tests and I was to go home. Leaving S lying in this corridor. As by then it was 1.00am, I had no choice. Demanded to hand over to the sister in charge. Extremely lovely nurse, old school, explained about the joys of PSP and how he would almost certainly, get out of his bed and fall, if left alone. Which, I took she didn't want to happen on such a busy night. Then said good night and left her to it. Fully confident she would make sure he got full attention, which he wouldn't receive, if I hung around.
He is home now, they couldn't find any reason for the high temperature, or the pain in his stomach. Given him some pills, which I have to get into him an hour before food. Not sure how I will manage that, as soon as he has finished one meal, the next one is due.
Still that, for the next week, will be the nursing home's problem.
This really has to stop, I just can't go on any longer. I am going to try and see the manager of the home and talk about a permanent place. S needs 24/7 medical attention, I can't provide that. I am not sure how much he even knows what is going on anymore. The lights are on, but nobody is at home, beginning to look as if nobody as been around for a while.
I had hope to get to the new year, but if they have space now, I will have to seriously consider it.
The good news is, I am off all next week, nothing much to do, except sort the house out, cook a load of meals, get Christmas sorted, bought, wrapped and what ever we spend hours doing. S's daughter and family arrive on Sunday, five of them. Think I ought to book a double place at the nursing home!
The really, really good news, just to make you all jealous, I went to a party last night! You know, doing what normal grown up folks do. Spent a very pleasant couple of hours, having a laugh with a widow, while we swapped gruesome stories.
Sorry to drivel on, but a whole weekend of not being on here, I had a lot to say!
Sending big group hugs.
Lots of love