Hi everyone, just wanted to share something that's working for us. J has been having a horrible time with constipation. We were on prunes, fruit, Movicol etc, which was all working for a while. Until they eventually all became less useful and poor J was getting terribly blocked up. Our wonderful new doctor started us on additional meds to try and get things moving. We added Clopamon tablets as well as Lacson syrup. She explained that laxatives do 1 of 2 things: either make the colon work, ie encourage peristalsis (this is what Movicol does) or draw liquid out of the body into the bowels to make the faecal matter more moist and 'slippery'. This type of laxative is better for PSP patients. Things still weren't working so we added Evax capsules, which are apparently only for hectic cases. She also advised us to try tummy massages, which I now give to J every night for 5 to 10 minutes. This massage seems to have made all the difference! After a month of being blocked up, the Evax got the first evacuation underway. Since then the tummy massages seem to be helping things keep moving. We've stopped the evax completely and halved the other meds and J is now having a bowel movement every 2 to 4 days which is great. He is so much brighter and more comfortable.
The massage is really simple. Just using your fingers or thumbs, start under the left ribcage where the stomach empties into the colon. Run your fingers across to the right ribcage, then down to above the hip bone, across to inside the left hip bone and up again to the left ribcage. From there to under the sternum and then a zig zag down to the public bone. So it's basically a picture frame with a squiggle in the middle. You're basically tracing the path of the colon and encouraging matter to move along. You don't need to press too hard as you will then be working too deep. Try it out. J finds it quite enjoyable and he's convinced it's helping to keep him regular. It's a simple enough thing to try. Hope it helps someone else!