Had a meeting re: J's PSP with our Parkinson's Nurse and someone from the Neurology support team. Lovely people, who understood our problems and said I could call them any time. This made me feel better. However, things that worried me are are still there re: care for J if I fall ill, - me to check out a couple of Nursing homes,( which we will have to pay for) so the SS who have a duty of care, will know where to send him, no help there then, re: CHC not v. likely, as "they have tightened up the guidelines." no help there then, re: tablets making J v. tired - if he comes off them, his swallowing may become worse than it is. No help there then.
I had asked the Doc. to refer us to the hospice, for day care. I was told that we can go, but only for eight sessions, and one of those is an assessment, still at least it's a result unlike the other things.
On reflection, one clear thing came out of the meeting, -- it's down to me, as usual. X