My Mum has PSP I belong to the association, I read up on research and follow this horrid disease. But when it come to how do I talk to and treat Mum.....family members around her seem to stick their head in the sand like denial. I always ask how she and she always say she's ok.... but she has never spoken of it like she doesn't want to know the outcome. I don't want to talk about what's going to happen in fear of upsetting her. I don't want to treat her like she's an old and dying lady. So I just carry on as normal (NOT in denial though) and in a way I make jokes with her with things that have happened due to PSP. It breaks my heart knowing what is too come (let alone Mum who is the sufferer!) and I don't want to be someone to remind her everyday that she has PSP...but should she talk? 3yrs on Mum hasn't really spoken about it...... "PSP sufferers how do you want to be treated? do you want to talk about it? do you want us to treat you old and dying? or live day to day?" I know everyone is different but can you let me in on how you feel and how you want to be treated......so I can maybe approach my mum more to her needs she may be fine how things are? I don't know or avoiding it. Sadly I can only do this through skype or email as I am across the miles.......I have joined mum to the PSP association and I know there is lots of help out there.....its the how to approach her. It like when someone dies people tend to avoid you but is this the right thing to do?
Thank you in advance