I am new to the forum and was advised to order my question on the forum, so I hope someone can help. My mother was diagnosed with PSP about 9 months ago but has been exhibiting systems for the last 3 years. She deteriorated rapidly in the last 6 months and we are fast approaching a time when she will lose all mobility. My father and i care for her at home with no carers. We do not want to send her into a nursing home but have been advised by our GP that we will not have that option due to the level of care she will need.
Has anyone got any experience of keeping a loved one at home with care for end of life treatment. A nursing home is not an option for us and Mum would never want it.
Any advice is welcome.