Today the district nurse called at my requ... - PSP Association

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Today the district nurse called at my request.

NannaB profile image
63 Replies

Some of you know that my husband suffers from ulcerative colitis as well as PSP. It started in 1977 and he was hospitalised 4 times. However, he hadn't had any symptoms for 10 years. In December he had a UTI and I told the GP penicillin would start the UC up again. He was put on alternative antibiotics and we found out that any anti B starts it off. Since Christmas he has been on steroids of various doses and started to improve but had an upper respiratory tract infection so had to have anti B again and the cycle began again. He uses 6/7 pads a day and several changes of clothes. Up until now I have bought the pads from the Internet but carers have told me to request them. Today C was assessed. I had to complete a chart over the last 3 days, giving details of bowel movements, date, time, texture, and number 1-7 comparing it to pictures of different "stools" ( we had a laugh about that). The district nurse came today and after a long chat said she thought we would be entitled to receive incontinence pads. I got quite excited, then she said she would have to write her report and the powers that be would receive it on Friday. A decision would then have to be made and if it is agreed we would receive the pads in 12 WEEKS. If, when we receive them, they are the wrong size or not suitable, C would have to be reassessed, I would have to complete another chart and we would have to wait another 12 weeks. She also said they would only give U.S. 4 a day. I'm running short of pads and was hoping I'd get some within the next few days. I'm also hoping the steroids will soon do the job and he won't need them for long. It's now they are needed. My dear old dad used to say they make you wait for everything in the hope that you will either get better or die. Oh well, back to the Internet to order more.

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NannaB
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63 Replies
Heady profile image
Heady

Hi NannaB, you must be spitting feathers!!! It's ridiculous that we can't have access to decent pads. I have tried every brand on the market, well in the normal chemists. They are useless. I am now buying from my local disabled shop, they aren't too bad, but no good for Colin! My daughter, who use to be a nurse, says I must go to the doctor to get some on prescription. Continence nurse did give us some,but they were hopeless, a new born baby would soon soak them!!! If there are products on the market, why can't we have access to them. Even if we have to buy them. What use is 4 pads a day, for a grown man with severe problems? Or are people who are ill, not meant to produce waste matter!!!

Really feel for you at the moment, I have never thought why us, or stamped my foot shouting, it's not fair. But the way we are treated definitely IS NOT FAIR!!!!!!

Sending you lots of love and a huge hug, 'cause I know you need it!

Lots of love

Heady

NannaB profile image
NannaB in reply to Heady

Thanks for the hug Heady, yes I need it. I have also tried loads of pads and now get Lille healthcare Classic form from Incontinence Choice on the Internet. They are delivered the next weekday and the more you buy, up to 5 packs of 28, the cheaper they are. They are much cheaper than any shops near us. He used two in the night.

Hope your day is good, very wet and windy here.

X

Yvonneandgeorge profile image
Yvonneandgeorge

NannaB how silly, can't understand the system, so silly if you need the pads, why should you have to be assessed, and why would they get the size wrong? This is there job, they have been doing it Long enough to get the sizes right, George gets the pads, he did not have to be assessed. Do they not realise how stressful our carers job, is without giving people more stress?

I think you dad was right. The nurse phoned me and said she would get us some cream etc she asked which chemist we used, and she would get them sent to us, that was three weeks ago, and we are still waiting, it is so stressful looking after someone with this horrible illness, feel like screaming.

NannaB look after yourself and I hope you get the pads and they fit.

Yvonne xxxxxxxxx

NannaB profile image
NannaB in reply to Yvonneandgeorge

Hi Yvonne, I showed the nurse the ones I use and told her to make sure those I get ( if I ever do) are the same size. I hope you get your cream soon but maybe she needs a reminder.

Have a good a day as possible.

X

Doglinton profile image
Doglinton

Oh, Bev, So sorry to read all this. What a fiasco it is !! It makes me so angry. We are exploited, aren't we ?

I hope you are surviving and playing your ukelele.

Thinking of you both. hugs. Jean and Chris x

NannaB profile image
NannaB in reply to Doglinton

Hi Jean, it is frustrating but I do get more than a lot of people. I only have one night without a carer now and never get more than 3 hours sleep, if I add all the 20 minute naps together and when I'm feeling awful in the morning, think of all of you who don't get that help.

I hope Colin improves soon on the higher dose of steroids he is taking as he wants to go to the next support group meeting. He can't go out for longer than 2 hours now, except for the hospice.

I played the ukulele with the group yesterday and my left hand really aches now. Probably because I don't play every day.

Returning your hug, thanks.

X

abirke profile image
abirke

I am so sorry you all have to wait so long.....We had to wait two years for B to get on disability. We were living off of our savings and were pretty dry when we heard that they had accepted his paperwork. We were so happy and did not mind the other however many months more we would have to wait....oh and more paper work or something. But the most amazing part was that not only did he start receiving monthly checks but they paid him "backpay" for the 2 years he had to wait while they reviewed his situation....WOW! we were shocked. So once we got on disability, stuff they said would take 6 weeks, were received in 6 days...So, all this said to tell you that maybe you too will receive what you need when you need it....keep a good stiff upper....and Maybe you ouhta take your own "crappy" pictures....you can give the powers that be a first hand experience to why you need the pads and the immediacy thereof! hahaha

AVB

NannaB profile image
NannaB in reply to abirke

Your last sentence is funny because I actually did take a picture of the contents of the commode but for the GP when medication wasn't working. As it was very far from normal, ( he loses a lot of blood) I thought it important the GP knew what was going on. I used my IPad and when the GP visited and asked me to describe it, I felt very clever to think I didn't need to describe it, I could show him. Guess what, he wouldn't look at it. I think we have a squeamish GP. When I turned on the IPad and said I'd show him he said he couldn't believe I'd taken a picture and my description would be enough. I suppose to someone who doesn't see it many times a day it probably is a strange thing to do.

We received back pay of Disability Living Allowance as well. Perhaps we will get 12 weeks supply of pads, or perhaps not!

X

abirke profile image
abirke in reply to NannaB

A squeamish GP ...when they make you look at others crap? What are THEY too good to assess first hand....Maybe you ought to just bring the pad in.....tell me these pads, do you place them in his underwear or are they a diaper or they placed on the bed above the sheet...

I cannot imagine a mere pad able to do the job.....

I wrote another that I though a full diaper might be the answer.....but maybe a pad is a diaper......enlighten me won't you...uhm don't need any pictures hahahahaha

AVB

NannaB profile image
NannaB in reply to abirke

They are like a diaper but shaped wide at the back and front, narrowing where they go through the legs. To keep them in place he wears a light weight, very stretchy pair of pants/ shorts which keep the pad close to the skin. The pants can be washed but they came in a pack of 50 and were very inexpensive so if they are very soiled I get rid of them. There are lots of different shapes and sizes, I tried lots of different ones before deciding on these.

X

abirke profile image
abirke in reply to NannaB

does the pant give enough room for a bm? Sorry to be so forward. It does sound like you and Heady have searched long and hard for the proper garment. B is not at that juncture yet maybe I should start stocking up now.

Thank you for the reply,

AVB

NannaB profile image
NannaB in reply to abirke

They are made from a very stretchy material. Before use, they just look like a narrow piece of fabric. I wondered what they were but as you pull them into shape they expand to any size. There are more expensive ones available that are also stretchy but look like pants but I wanted something cheap enough to throw away if necessary.

X

abirke profile image
abirke in reply to NannaB

ok so they do expend sort of fan out to cover more space in front and back....thats good....but I remember my children going through 5 diapers a day 2 in morn 2 in eve and one at night. They were not $1.00 each yet! but still expensive!

AVB

NannaB profile image
NannaB in reply to abirke

On some sites on the Internet, the more you buy, the better the price.

X

laila123 profile image
laila123

ha i have waited 12 moths still not recieved them

NannaB profile image
NannaB in reply to laila123

Oh no! Maybe a phone call is needed.

X

loppylugs5 profile image
loppylugs5

Oh so sorry Nana B,I was cross when Highways told me there was a two year wait for a dropped pavement to get the wheel chair to the car but easily solved a once (I hope) expense of some rubber ones on line.The incontinence pads are much more important I mustn't moan.The next problem an eye test,Des is so slow to answer, a little quicker if he writes replies but not always legible.I don't know who suggested the mirror for helping with eating but thank you so much.His shaving mirror sits on a box on the kitchen table and at least half of the food gets to the mouth.Tho if he is tired I feed him but so much nicer to pick your own way thro' a meal After my hysterectomy Chemo was advised and I am now Bald I find I am getting much more cooperation from people who see my bald head and it is diverted to Des as well I wondered if I should tell highways dept I was bald on the phone! Half way for me we hope and it has been harder for Des to wait at home while I get the treatment. He keeps asking how long I will be having the treatment.I tell him but a minute later he asks again.Please can we have a few sunny days to cheer us up.and help with the washing loads.P

NannaB profile image
NannaB in reply to loppylugs5

When I read what you are going through, I realise how fortunate I am to be fit and healthy. Having to buy pads is nothing really is it?

I didn't realise you can buy rubber ramps for pavements. Ours is dropped outside our house but so many times I drive somewhere and can't park near a dropped pavement. It would be good to keep one in the car.

I think it will be another tumble dryer day today. I too hope we soon get some warm sun.

It's a shame you had to go through what you are going through to get cooperation but hope you are getting all the help you need and it won't be long before the treatment is over and your hair grows back.

Take care of yourself.

X

abirke profile image
abirke in reply to loppylugs5

Wow I am sorry you both have to go through such a toll on your bodies, mind and spirits.....and the Hwy Dept. Gees... I remember B's last eye test...(I think it was before or just after diagnosis) Dr. said he sees perfectly fine. When I told her of PSP and that he doesn't seem to be able to see lower half......she disagreed..... as the chart she used, way up on the wall, was read fine. As with everyone, she was oblivious. So now I don't really expect anything from anyone and am happy and excited when something nice happens...even getting my own daughter to visit is like Christmas.....

God Speed on all of your endeavors

AVB

cabbagecottage profile image
cabbagecottage

Do you all live in England . We love in Wales . I asked the Gp eighteen months ago and he arranged for the continence or rather he called her the Nightingale nurse who assessed John and gave hi sheaths and bags which I could order when necessary .

When he Bec are retracted and couldn't use the sheath anymore I found the gel No of a continence nurse who came and scanned to see if bladder was emptying and she arranged for pad delivery every three months . It was two lads for day and one at night .

I haven't actually ordered any for. While because I thought I would try and buy some myself and see the difference . I wanted to try out different sizes , I haven't actually ordered anymore since but have bought our own . I am lucky for all John difficulties in that are he is no where as bad as Coling Nanna B I do feel for you .

I don't know how long any one can carry on fighting to get thing right . it isn't fair go and give your feet a good stamp . I often do .

please excuse the spelling LOL .

I am fight with the care company at the moment , well it's continuous , our visits are getting later at night and earlier in the mornings . Soon won't be going to bed at all

NannaB profile image
NannaB in reply to cabbagecottage

We are in Kent. As C uses a convene, I'm hoping the colitis will eventually clear up and we won't need pads but as he has had it since Christmas I'm not holding my breath.

I never get to bed before 11.30 and am up at 6.45. 6.15 on Sunday mornings. I am not a morning person. When I was at work I told C that when we retired I wasn't getting up before 9 am. Oh to be able to wake up, smile, turn over, snuggle into my duvet and go back to sleep again. Bliss.

X

cabbagecottage profile image
cabbagecottage in reply to NannaB

you sound very much like me , I keep telling everyone that I am not a morning person , never have been . It's a bit like robots , we are programmed to roll over throw yourself out of bed , my clothes are all ready nearby to throw on . I so put the kettle on first for my tea . without that I wouldn't function any further , I can't say I ever finish it though do you . what time is your last call. mine was 11 last night . can never rely on them . by then I had hoisted John into bed myself .

are you getting the same regular carers . I am now in the mornings and afternoon , it has taken me two years to get that though .

do you have direct payment Nanna . . I didn't because I thought it would be one less thing for me to worry about and control .

NannaB profile image
NannaB in reply to cabbagecottage

I count myself very fortunate as I have night carers 6 nights a week. They arrive At 10 pm. The one we have from Tuesday- Saturday night has been coming for 18 months. I've only just started having one on Sunday night and she is the one who comes on Monday so now they are constant. On Saturday night I am on my own. I can get C into bed with the hoist but someone comes at 7am Sunday morning as I can't get him out of bed alone. They are different most weeks but as I have had them all at some time, they do know C. When the night staff arrive they make us all a drink and we chat for a bit. They clean his teeth and get him undressed (top half). We then lift him together and try to get him to the commode before the explosion but never succeed. By the time he has sat there for a bit and we have cleaned him and anything else within firing range, changed the convene bag, new pad on and into bed it's getting on for 11.30. He wakes every hour and starts climbing out at 5 am. One carer gets him up silently and I come down at 7.15 to find him up, showered, dressed and in his chair. The other one crashes about and wakes me up every morning but I sometimes go back to sleep before the alarm goes off at 6.45.

I was never offered direct payments. I had a letter saying DLA was changing but that it wouldn't affect us. I don't know why. A friend who retired from the KCC just before it started advised me not to take it if I had a choice. I think for the same reason you gave. I would be responsible for how the money was spent and if anything went wrong with carers etc, I would have to sort it out. I'm sure it works for some though.

It's pouring with rain here and is very windy. Just outside our house some poor workmen dressed a bit like captain Birdseye in bright yellow full body waterproofs are changing the street lamp to an LED one. There are 2 vans and a lorry along the front of the house and blocking the drive. I don't think they will be doing the electrics today but I may be wrong.

X

cabbagecottage profile image
cabbagecottage in reply to NannaB

they have changed Johns sisters light in their street . she told me hpthey are a lot dimmer .

We all have problems but different , j can imagine how u would need night care , I have had nights like that but he has calmed down . it's mainly if an infection or change of medication .

I wish they would allow me to help the carer I would only need one then . I am quite capable considering my age ,

My back and neck is very stiff and arthritic but I keep going by stretching and taking pain killers .I am careful not to take too many .

..

john is hoisted at all time but ceiling so I find I manage that as good or even better than the two carers . I concentrate more .

A have thought of getting someone to move in with me . Wouldn't need any carers then . only joking . Maybe an ex nurse who wanted company .

john has been sleeping pretty good and even better lately , getting him to wake is the problem .

Di u get any problems with sore bottom .

I started to use the Bethapam cream for babies , find it excellent as soon as I see any sign of pressure or skin about to break I use Coloplast Comfeel plus transparent dressings . have had very little trouble since. if if does break I use Suda creme

cabbagecottage profile image
cabbagecottage in reply to cabbagecottage

the district nurses used them and gave me some to change , I have looked on line and ordered some .

NannaB profile image
NannaB in reply to cabbagecottage

Both of our night carers were live in carers before coming to us so not such a bad idea. Would cost a fortune though if you had to pay yourself.

C has had a couple of sores. I felt terrible about the second one. He developed a small one earlier this year and I called the district nurse immediately the skin broke. It was tiny but I made sure he was cleaned and creamed every time he used the commode. It didn't take long to go but then realised he had a bigger one on the other side, in the folds of loose skin. It was bigger but not visible when he was standing with the hoist as his skin is loose now he has lost a bit of weight. I use Proshield Foam Spray to clean him at every pad change instead of water or wipes and then Proshield cream. We get them both on prescription. I did use suda creme but as I have to clean him so often, was given the spray and cream. They recommend I use it even when there is no sore.

X

jillannf6 profile image
jillannf6 in reply to cabbagecottage

I GET DIREFT PAYMENTS AND IT IS FINE APART FM WHEN I HAVE TO FILL OUT THE RETURNS EVERY 3 MONTHS AS I CANNOT WRITE ANYTHING AND MY CARER DOES IT WITH ME - SHE IS GREAT IN THAT RESPECT AND WILL TURN HER HAND TO ANYTHING TO HELP ME = LIKE FEEDING THE Cat AND CLEANING HSI BOWLS OUT OR EMPTYING THE COMMODE ; STAYING IWHT ME AT CHOIR PRACTICE AS I USE A WHEELCHAIR NOW AND NEED SOMEONE TO BE THERE WITH EM ' C;EANING MH SPECS FOR ME GETTING THE TISSUE BOX ReEADY FOR ME AND LOTS OF LITTLE THINGS THAT I CANOT DO MYSELF (OR IT WOUL D TAKE ME FOR EVER TO DO IT MYSELF )

IF YOU EVER EANT TO "CHAT"USE THE MESSAGING PART OF THE SITE IT IS GOOD TOO

LOL JILL:-)

cabbagecottage profile image
cabbagecottage in reply to jillannf6

Thank you Jillian.. it's all the little things I need done for John especially so that I a, able to go out .

did you advertise yourself or go through a care company to find a carer.

they are looking to see if john can have direct payment . it takes some time believe . the Nuese came to assess him and has been referred now to a another assessment . So I am keeping my fingers crossed , o what ground do you think you received it Jillian

jillannf6 profile image
jillannf6 in reply to cabbagecottage

i use a carer company home instead senior care which give me 2 carers 1 for daytime and 1 for evening and they are great quite different but each good in their own way and are natural carers

dired tpayments si avalabele af fo right but CHC IS a differen4t matteer

u need to download the forms for CHC and take it form there with the CM RO NURSE

I GOT IT THRO THE HOSPICE WHERE I WA`S GOING For DAY CARE

lol jill

:-)

cabbagecottage profile image
cabbagecottage

it's very wet and windy here this morning and cold .

kryste profile image
kryste

I am sorry you are having such a time if you have an address you could email me I would be happy to send you some with a perscription Aunt Bev gets 5 packs and pads we have extra I would be happy to share .

NannaB profile image
NannaB in reply to kryste

That's really kind of you. This morning I ordered 5 packs of 28 from the Internet, they are cheaper if you buy 5. If I haven't received anything when I run low, I'll let you know.

Thanks again.

X

Katiebow profile image
Katiebow

NanaB, Why does my blood continually boil when I hear all of by these terrible injustices, life certainly sucks for some people. I have ordered boxing gloves for Christmas, think I'd better get in training for the long fight ahead ( be it metorphorically or actually physical) I hope that you soon get things sorted. Xxx

NannaB profile image
NannaB in reply to Katiebow

We have a Wii machine. The boxing game is brilliant for getting rid of anger/ frustration etc. It's supposed to use calories as well but if I can't be bothered to get the game sorted when I'm angry, I eat a packet of biscuits instead.

X

Katiebow profile image
Katiebow

Think I had better get something to get rid of my frustrations as poor old Ben sometimes gets the sharp end of my tongue when he doesn't deserve it, poor chap. Note to self, don't buy biscuits cheese and wine when out shopping or the ever increasing waistline will mean more shopping for larger sized clothes. Xx

NannaB profile image
NannaB in reply to Katiebow

My tongue can also be sharp at times. I always apologies and tell him I love him when I say goodnight and say I will try to be patient and it's not him I'm cross with but the situation but then when he disconnects the convene bag and swings it above his head, knowing I'll see it on the monitor and come running, that tongue starts again.

I never buy biscuits for me but several groups meet here, including the wine appreciation group, so I provide goodies for them. I buy before they are due to come and often have to buy again as for some reason the cupboard is bare.

The diet started today.....again!

X

Heady profile image
Heady in reply to Katiebow

Life really sucks doesn't it. The ONLY pleasure left in our lives, causes other problems!!!!! I too am fed up with the scales screaming at me, or my jeans having a go, because I had that cake, when I took S out for coffee! I thought stress was meant to help keep the weight off, not working in my case!!!

Lots of love

Heady

NannaB profile image
NannaB in reply to Heady

Not working in mine either Heady. In 2010 I went to weight watchers and lost 2 1/2 stone. C was diagnosed the week I reached my goal. I now weigh exactly the same as I did the day I joined weight watchers. I got rid of all my size 16 clothes and went on a spending spree for size 14. Fortunately a lot of my trousers have elastic as part of the waist band so I can just about squeeze into them but my tops are definitely too small. I'm not buying bigger ones yet though and writing this I have decided to try really hard to shed a few pounds. Lets see how it goes.

X

abirke profile image
abirke in reply to NannaB

I have never been fat. In fact anorexia was my game. However now that I am post menopausal, don't have a job outside the home and get bored really fast and quite frankly couldn't give a flip at my wt gain....I am getting....fat. We work out at the gym but my calories in are greater than my calories out hahah....we carers got to have something....beer is also my calorie of choice but that comes with too many other issues so trying to cut down on that. And yes my tongue like a sword. I first thought this PSP thing was some sort of passive aggressive behavior against me .

every piece of furniture, anything new, all broken.

I would put in a toilette (and I put them in) and he would crash through it; water spewing body bleeding all the towels sopping and my nerves frazzled....and then the next day, I would have to go to school and teach.....and be ridiculed or hated by the clique teachers....for whatever reason I was not allowed "in" uhhhhhh that's enough.... that part, thank you God is over I quit teaching....but it still makes me shake just talking about it....And I must be thankful that B still can use the loo on his own (I finally got smart and put a metal shelf over the back so he can fall on that before the tank.....(tho he did manage to snap it in two one more time hahaha)

Well I suppose I have vented long enough....too early for a beer and I'm not feeling ready to eat so I think I'll go do something productive Though this site is very productive for my emotions.

AVB...I have got to learn to be more succinct! hahaha

NannaB profile image
NannaB in reply to abirke

If my clothes fitted properly I wouldn't bother about my weight. I used to be called Matchsticks at school as my legs were so skinny. C never broke any toilets. Everything else, including pulling a wash basin off the wall, but not a toilet. You get very good at DIY when your partner has PSP don't you?

I've seen the cliques in school and teachers who couldn't get "in" would often come to my office with their sandwiches to get away from it all or volunteer to be on duty every lunchtime. Pupils would also get upset as they were not let in, especially girls. I've also seen cliques in the civil service, church, anywhere where there are groups of people In fact. I moved a lot with my parents up to the age of 11 and always had a job fitting in as the new girl and it made me very conscious of cliches.

I'd better go and do something productive as well but all I really want to do is go to sleep.

I hope the sun shines tomorrow, I'll feel more like doing something then.

X

jzygirl profile image
jzygirl in reply to NannaB

Your comment made me realise that I'm not the only one to have put the pounds on. Am so glad the fashion last year was for loose tops and leggings. Because this year the loose tops fit quite snug and i no longer look like Nora batty in the leggings. Thinking of giving my jeans to charaty so i don't get depressed every time i try to wear them (i manage half hour before the button is undone). Wish i liked salads Janexx

NannaB profile image
NannaB in reply to jzygirl

I chuckled out loud at the vision of Nora Batty in leggings. My jeans are stretchy with elastic waist so I can get away with them but I bought two tops a couple of months ago, thought I could wear one to the celebration we went to on Sunday and had to squeeze into both of them, not at the same time though! Do you remember the Michelin man? I felt like that and had just as many spare tyres. I haven't eaten any cakes or biscuits today or drank any wine so I can say my diet has started. Just remembered, when C has a sitter tomorrow, I'm having coffee with a friend. Will it be coffee and cake I wonder. Maybe my diet will restart tomorrow afternoon.

X

abirke profile image
abirke in reply to NannaB

What's DIY i know what dementia is since I probably have it..... I too moved around alot as a kid. friends were fleeting if ever....I don't know maybe I have Aspergers or autism (since former name is no longer recognized) and don't know how to relate to ppl. Nanna, what did you do for a career?

I hope the sun shines for you tomorrow as well.

today 2d day it has not rained and have spent half the day mowing the amazing amount of growth due to the amazing amt of water! News just called for flood warning again! Here we go again!

AVB

NannaB profile image
NannaB in reply to abirke

DIY is Do it yourself. So much gets broken by those with PSP, we don't keep calling people in to mend them, we do it ourself.

I worked in a high school, with all students with additional needs of every kind, including those with English as an additional language, emotional, behavioural, dyslexic, autistic etc etc. I'm not a trained teacher, although did teach small groups out of the class when necessary. At the request of teaching staff I would observe students in class, assess, test, whatever I thought was required and then call in outside agencies to look further; Educational Psychologist, speech therapists, behaviour specialists etc etc. when they made recommendations I had to ensure the teachers were actioning them and that progress had been made? I loved the job but not the politics and some of the teachers didn't want to implement suggestions so I grew to be very thick skinned.

The sun is out today so the washing can go on the line outside instead of being tumble dried. Hooray! I do hope the flood doesn't reach you.

Have a nice day.

X

Katiebow profile image
Katiebow

Best of luck with the weight loss regime, I need to get my head around refusing the goodies on offer and of course the extra glasses of wine as you can't possibly not finish the bottle. Oh well !!!

NannaB profile image
NannaB in reply to Katiebow

Isla Negra, Sauvignon Blanc....Yes!

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Heady profile image
Heady in reply to NannaB

Porcupine Ridge, Sauvignon Blanc, but it's mid week, so got to good. It's mid week, must be good! It's mid week, must be good! Must be good, must be good...................................

Like I say a lot , life sucks!!!!!!!

Lots of love

Heady

NannaB profile image
NannaB in reply to Heady

I've just remembered, my diet started today. I'd better be good as well.

Just looked out of the window and a starling has 8 babies all screaming for food at my bird feeding station. And I thought I had problems.

X

abirke profile image
abirke in reply to Heady

I like your mantra...but please know that life can be not so sucky. I so enjoy your posts.....

AVB

Heady profile image
Heady

Doesn't bare thinking about. Eight screaming brats, you would never sleep again!!!!!

Lots of love

Heady

peterjones profile image
peterjones

to all well ladies all I have just read all the posts on here today and you all have my heartfelt thanks for what you are doing and i raise my glass to you each and everyone of you ==== if I had a million bucks id take you all out for an evening to let you unwind and enjoy yourselves ====== but seeing as I don't quite have a million I will have to postpone it for a while --------- a good while but the thought was there believe me and enjoy your wine take care peter jones queensland Australia psp bloke and don't worry about the extra weight

Heady profile image
Heady in reply to peterjones

Oh Peter, get saving!!! I'd love a night out on the town with you!!!

Lots of love

Heady

NannaB profile image
NannaB in reply to Heady

Hi Heady, your reply from Peter came through as being a reply for me so just letting you know in case you don't see it. Can I come too?

X

peterjones profile image
peterjones

thanks heady I shall save hard to get that extra money then to make my million only another 999 thousand to get there wont take me long matey just a few years quite a few years matey I should have said but I am honoured m,y friend but I should not think you would want double trouble matey ones been enough hasn't it mate crickey you would not want two of us falling around the place Sand I

we would look like a pair of book ends mate SEE YER MATEY take care and have a great day peter jones queensland Australia psp bloke

Heady profile image
Heady in reply to peterjones

Have you seen that NannaB wants to come as well! Come on girls, Peter is going to take us out, (once he has saved the money!). Who's coming?

Of course we want to come out with you, at least we all know how to handle PSP, another guy would have another load of problems, that we won't know what to do with. Too old to start learning new tricks!!!!

Looking forward to our date!

Lots of love

Heady

NannaB profile image
NannaB in reply to Heady

YES !!!!!!!!!

jillannf6 profile image
jillannf6 in reply to Heady

HI ALL

I WOULD LOVE TO COME ON T HE DATE TOO !!OK?

LL JILL

:-)

peterjones profile image
peterjones in reply to jillannf6

HI JILL OF COURSE YOU COULD COME EVERYONE CAN BUT !!!!!!!!! I HAVE GOT TO SAVE THE MONEY FIRST MATE

YOU LOT MIGHT BE A TAD EXPENSIVE HA HA PETER JONES QUEENSLAND AUSTRALIA PSP BLOKE AND I WOULD HAVE LOVED TO HAVE SEEN HEADY FACE IF I HAD SAID I WAS COMING OVER THERE SHEER PANIC SEE YER MATE

TAKE CARE

Heady profile image
Heady in reply to peterjones

Of course it's going to be expensive, we have heard that Aussie men can be cheap skates!!! I don't think I would panic if you said you were coming over. If I did, it's not for the reasons you are thinking!!!

Lots of love

Heady

peterjones profile image
peterjones in reply to Heady

HI HEADY MATE IVE NEVER HEARD THAT ABOUT

AUSSIE MEN BEING CHEAP SKATES MATEY THEY MIGHT BE A BIT MORE CAREFUL BUT NOT A CHEAP SKATE NOW WHERE ON EARTH DID YOU HEAR THAT ONE MATE ANYWAY YOUR COUNTRY IS TO COLD FOR ME I WAS OVER THERE IN THE 7OS AND MY EYES WENT BLACK WITH THE COLD MIND YOU THAT WAS AT CHRISTMAS TIME BUT OH SO COLD

WITH THAT I WILL SAY GOODNIGHT TO YOU TAKE CARE REGARDS TO S FOR ME MATE ============= CHEAP SKATE INDEED PETER JONES QUEENSLAND AUSTRALIA PSP BLOKE

NannaB profile image
NannaB in reply to peterjones

I've never done the lottery but maybe I'll buy a ticket. Apparently the Euro one is for quite a few millions this month.

X

jillannf6 profile image
jillannf6 in reply to peterjones

no probs peter j/ reg

it shall be done~~!]]

lol JIll

:-)

peterjones profile image
peterjones

well nanna b I wish you lots of luck mate if you do buy a lottery ticket

mate you know what they say ;;'' YOU HAVE GOT TO BE IN IT TO WIN IT ''

AND YOU HAVE JUST A GOOD CHANCE WITH A LOW COST TICKET AS BUYING AN EXPENSIVE ONE MATEY SO GOOD LUCK WITH THAT I MIGHT GET MYSELF ONE THIS WEEK END SEE YER MATE SAY HI TO COLIN FOR ME I HOPE HE IS BEHAVING HIMSELF PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER

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