Hi, my husband has just been prescribed the above medication. Has anybody tried it and has it been helpful.
Also, has anybody been prescribed Steroids? We have just come back from South Africa where my husband had an injection for Gout. The difference in him within a couple hours was quite noticeable. Even the physio, asked what he was taking, as she could see the difference. We went back to the doctor (who by the way had had a patient with PSP) and he said the injection contained a steroid, so wrote a letter to our GP. Have just come back from seeing a neurologist today, who just laughed and said he also would feel better if he had some steroids! So we don't know what to think. My mother has had steroids for a completely different illness, but basically the steroids helped with the stiffness and pain she was going through. So what is the difference with PSP? Surely, anything that helps so be considered! He has been a lot better since then. Has not fallen for three weeks now.(touch wood) and his mood has been a lot brighter. I know there a lot of side effects, but I thought we should be thinking quality of life, not necessarily quantity. If he is not falling and can move better, that's got to be a good thing.
Thoughts please from those of you who seem to have a lot more knowledge than me!