When Colin could communicate properly he signed a statement saying he wanted a PEG fitted when it was absolutely necessary. We had quite a discussion and I told him I wouldn't want one and when the time came I'd rather let nature takes it's course.
Little did I know then that things aren't as black and white as I thought. Colin is still eating quite large meals that I cook and liquidize. He takes over an hour for a main course and always wants a pudding, another half hour, and I am willing to take the time but getting enough fluid into him is a nightmare. For him not to choke, it has to be thickened to almost the consistency of his liquidized meals. It wasn't a case of him just drifting off into a forever sleep; he was very dehydrated which made his skin crack causing painful open sores. One of his carers also works in a care home and she said that all those with PEGs have lovely skin as the feed contains all the nutrients required and administering water is so easy.
Today I had to get him to hospital by 8.15 am. Fortunately he was nil by mouth and the hospital is only a 5 minute drive away, even with 2 sets of traffic lights, but I still had to get up at 6. Everything went well and he slept all afternoon in his own bed. I had things explained to me but I still haven't used the PEG yet, he has had a proper meal. I'm still a bit scared and will read the booklet again. Tim, I expect you could do it with your eyes closed now, well maybe not but you are the expert. I have to flush it through this evening So hope I do it correctly.
The PEG was first mentioned by the Hospice in September 2014 and Colin said no then and I'm pleased we had over a year of extra time without it. At that time, I thought it would never happen but it has so we'll have to get used to this next stage.
I told Colin tonight that I was going to put boxing gloves on him; he has already started fiddling with it.