Hi, I’m on pred for PMR since April this year, presently on 13mg, and thanks to this forum I have learnt a lot about managing the condition and what questions to ask. Had posted before about the importance of asking for numbers re CRP & ESR blood tests rather than the doctor’s comment as ‘normal’ can encompass a very wide range. Didn’t follow my own advice though when asking for Hba1c results. Was told ‘normal’ but since have phoned back again and it was 41 which is not far from pre-diabetes range of 42 upwards. When I spoke to my GP saying I would like to have been told this as it’s not a great result she just said it’s not unusual!! I replied that now I know, I can act accordingly whereas I had been lulled into a false sense of security. What is it about being so secretive with results! She actually said that if numbers were given out, people would be querying what they mean. So why not say what they mean then! Aargh!!!
In other news, my dexa scan today showed my bones were the same as 2 years ago, -2.2 hip and spine, still osteopaenic rather than osteoporotic! I fully expected them to have crossed the line of -2.5 as the nurse more or less told me to expect that, at my previous scan, based on the percentage decreases I had been experiencing. Also I expected the pred would have drained them even further. Since April, have discovered a Solgar Calcium Citrate + magnesium supplement which doesn’t cause me extreme constipation like the Adcal D3 which I had given up on, quite the opposite in fact. Also taking Vit K2 with my vit D after reading advice on this forum. Could it be that this has made a difference in a relatively short time? Sorry this is such a long post but maybe it will be helpful to someone.