pudendal pain and xtreme sweats

[Ladouleur]

Anyone inflicted with severe sweats? Like coming out of the shower soaked, almost every 3-4 hrs with increased pudendal pain. I take hydrocodone & morphine. Nights are horrible as I wake up completely drenched, to the point I have to sleep in another bed as mine is soaked.

Going on 5 yrs now, with PN & GSA and this recent xtreme sweating (had a very large ventricular hernia removed, results of a major surgery) is really disabilitating. From researching, medications are mentioned, is it due to the opioids and is there a proper dosage to alleviate these wrenching sweats?

Any input would be greatly appreciated

Thank you

[Konagirl60]

I’m sorry I saw this so late. I’m wondering why you are not using Amytriptyline or Nortriptyline for your pudendal nerve pain. Have you been prescribed either to try out?

I had pudendal nerve entrapment and no opioid truly relieved me of any pain except fentanyl duragesic patches. I was fortunate enough to get the decompression surgery I needed and now all I use is Amytriptyline and a sleeping pill at bedtime.

I’ve read that morphine can cause heavy sweating in some people. Does the hydrocodone make you constipated as that can exacerbate pudendal nerve pain. Keep hydrated.

[Ladouleur in reply to Konagirl60]

Better late than never and Thank you for your reply. No, I was never prescribed Amytriptyline or Nortriptyline, they started me on Gapatin, some anti depressant (forgot the name) and it took almost a year arguing it didn’t help at all.

Fentanyl patches were prescribed but declined by my insurance, so we go that route. My prior pain management refused to discuss fentanyl patches as he stated it is only prescribed for cancer patients.

I never saw the Dr. at my pain management only the RN and based on different drs. opinion I finally was ble to obtain, my meds need to be adjusted for the heavy sweating and the increased pain to which she flats out refuses.

Morphine & hydrocodone with compounded ketamine suppositories helps tame the spasms, stabbing at their worst. Not many of us have that pga side effect that comes with pudendal neuralgia, it’s agonizing.

Tried to see an actual Dr. there but never been able to actually schedule an appointment, excuses after excuses.

My insurance offers an extreme limited choice for pain management and driving over an hour plus wait time is not manageable for me at this time as I am still recovering from 3 major surgeries but not related to this matter. 1 including life threatening.

For constipation I rely on Magnesium complex which in the long run is better than petroleum based medication. My insurance also had denied any meds in regard of this situation.

I hope in the future to try nerve decompression and I thank you sincerely for your recommendation which I will bring up with my specialist on my next visit.

I am still amazed at the amount of care givers in this country (USA) who never heard of pudendal neuralgia and their lack of empathy when mentioning the pga associated with this condition.

Maybe one day!

[Konagirl60 in reply to Ladouleur]

The only doctors whom my retired doctor/ surgeon in Minnesota recommended when he retired were Dr. Hibner in Phoenix and Dr. Conway in Nashua, New Hampshire. This was 12 years ago.

I agree, way too many people have this condition and no research has been done on it. We are being neglected. There is no standardization in pudendal neuropathy care and treatment.

I pray you get proper nerve blocks and decompression surgery if it is needed. Keep me posted.