Hi, Im 59 and have just developed pudendal neuralgia-April 2019, I also have had Piraformus Syndrome -7 yrs(although not diagnosed).have been going to Osteopath for Piraformis, helps a bit. But, the burning for PN started I believe after a routine Smear Test, the Nurse really hurt me doing it, I did say to her at the time. She twisted the sample brush about 20 times high inside me to collect the sample, never have I had the brush twisted 20 times. So I think myself she has inadvertently upset some nerves down there with the movement of the Speculum stretching also hurting me, since had this dreadful burning pain from my Vulva to my rectum & sitting is painful. Have trigger point areas too which hurt on pressing.
I too don’t know where to start getting help. I live the UK, and can’t find many forums with people from UK..(for Drs,specialist help where to start in UK) My Dr send me for an MRI - sacrel, spine, lumbar, but it did not show either of the areas I have pain in! So the MRI although showed my spine is fine, I will now have to go back & see if they will do another MRI showing the correct areas!
Taking 2 x 75mg Pregablin, 1 x 10mg Nortryptline, which has helped the burning for PN but gets worse as day goes on so may need to up meds, not sure if I can just do this myself or get Drs opinion first. Going to my Drs is traumatic too as usually can not get an appointment for weeks in advance! Have to say it’s a medical emergency to get appointment the same week.
I don’t have health insurance in UK, so rely on NHS. Who do I need to be referred to? Neuro Muscular? of Gynaecologist? Hope I can get some advice and has anyone here got both Piraformis Syndrome and PN? , hoping to hear from someone, many thanks in advance of reply’s.