I have just read the comments on the site . As I have the same problem 14 years . And told that I am mad in the head as doctors use that excuse to anything that they don't understand . It's started September 2002 and it was impossible to sit down . Only haven was the toilet seat 6 years searching for a answer . I was then diagnosis with PNE . By a very aggressive man named barorniski I had 3 nerve blocks done by him
One worked 25 Aug 2005 or 6 .
Oh it was so good I could walk and run . Next morning bad the same .
Anyway I was booked in for surgery and had both sides done I have two large cuts in each buttock result no good when back to surgeon and all I got was we must of got the diagnosis wrong . A year later I found a man in axeplovence France I fly to see him and he was the first person to examine me !
You have neuralgia of the pelvic floor and a coase of physiotherapy would help .
That sounds good up you have to find the correct person !! Research a month to end up in Dublin I think the l as ladies name was May Welliam she worked on me for a hour through my back passage .and thee was soon relief .
To go to Dublin each week was out of the question but sh had as friend in London called Maria Elliot ( has web site) I was her first man patient .
The story goes on I am now 72 and still in pain burning under Neath and a tennis ball up the rear pain in the tip of the penus .
Still trying to get no looking for help .
Hope this have helped someone with the same problem . And any help I can get as well as anyone have any updates on help please contact me