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Pelvic Pain Support Network

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LNLPANDORAS profile image
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am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several different types of suppositories, creams, E Stem, TENS, 4 different nerve blocks, etc. I have seen 17 different types of doctors. I have been told that I have Hypertonic Pelvic Floor Dysfunction. Nothing has helped and the pain has gotten debilitating. Does anyone know of or had any treatment that has worked. I am at the end of my rope and feel like I am losing my mind. PLEASE SHARE!!!

Above posted posted 4 months ago. I have had several more different types of blocks blocks, more drugs, more physical therapy , botox, still no changes. I had a CT guided nerve diagnoses last week which determined that I do NOT have Pudendal Neuralgia. I don't know what to do, where go. 19 doctors haven't helped. Not sure I can make it to 69 years old. How do people find doctors who help? I'm in Alabama and have been to beents recommended Pelvic Clinic in Nashville , TN but it didn't help. Ideas?

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LNLPANDORAS

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LNLPANDORAS
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Boingi200 profile image
Boingi200

I really feel for you I Am too In hell being tortured . Same road 2.5 years

Kiwistrong profile image
Kiwistrong

Hi. Just a question, have that looked at your pubic bone? I have had 4 years of lower abdominal and groin pain with so many investigations for gynaecology, trapped nerves, C section redo, all sorts of treatments including all the injections and alternative treatments you can name. All sorts of meds. Can hardly walk or move etc. I'm 48 now with grown kids and was very fit and active. It is devastating as you say. Anyway last year one doc pushed my pubic symphysis which hurt a lot. They did an MRI and nuclear scan with no issues found. A year after that went to a sports medicine physician who did another MRI asking for a specific look at pubic symphysis and found osteitis pubic with no real cause. Still have same issues but can now focus on that with treatment. As tendons join the bones around the groin I also get pain in vagina area and clitoris. Also lower back pain. It's all to do with how you move. Common in sports people but as I say mine is cause unknown. Kellie

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