Wider area pelvic pain - vague!

[Cook5]

HI, new to this forum. I have Ischial tuberosity (sit bone pane, but not bursa, it's like sitting on bone) and glute pain. Mainly down one side but not always by any means. This effects the lower back and feels horribly awkward and often painful to sit or walk etc. I cannot walk far or drive far etc and my work will be a huge struggle I can see. I have seen a clinician and after what seemed a thorough exam he gave me a steroid injection but this had no effect at all and neither have any meds like naproxen, ibruproven etc, chiropractor, massage etc. His comments 'if this does not work little can be done'. His dianosis 'wider area pelvic pain' and little could be done more. That all sounds very vague indeed and he said a scan was not needed. Surely this can be narowed down ? Well this is rather depressing and I next see him in early April so according to his thinking, that's it. So how do I know if I have to accept being imomilised or not sleeping for good, or if another clinician , perhaps at a more specialist NHS centre woudl help?Or France? I do not wish to upset this chap who seemed competent but I do not for good reason always accept what any one medic tells me. Does anyone have any thoughts? I mean can you ask for a referral to say Birmingham that I see has a specialist team or what? Without a more accurate diagnosis it feels rather hopeless.

[kalecolbe12]

No you most certainly should not accept what he says....always always get a second opinion!! I have learned that the very hard way... Just keep on until they give you a different referral you should be able to go where you want to go

[Cook5 in reply to kalecolbe12]

Thank you, you start doubting yourself

[kalecolbe12]

And I want to add that there's a lot more can be done it's ridiculous that he said there isn't

[Hidden]

I agree wholeheartedly with other response.

I had same response from my GP. Banished to life of pain by her.

I am now seeing a very competent osteopath. Still considering Switzerland or France if no improvement.

Best wishes to you. You are not alone.

Korin

[Cook5 in reply to Hidden]

Thank you. The GP was rather disinterested to be honest but this was the consultant who gave this and left me feeling when I see him in April nothing more could be done or investigated . It's one thing knowing what is wrong but a very vague definition is not helpful. So I feel confident I can explore this further. I need to work out then who can make a second referral.

[Hidden in reply to Cook5]

Consultants can be just as ignorant. They seem to think that we're just a load of organs and forget about nerves. One gynae admitted she wouldn't have a clue about Pudendal Nerve. Worrying as these are the people who are doing operations likely to damage the Pudendal Nerve.

These are the the experts who've been telling us to tighten our pelvic floor to prevent problems but physios now saying tight is bad as it's weak and can't move as it should.

They're crazy. Not you.

Best wishes in finding someone to help.

Korin

[susieqblue]

I am so sorry you are going through this. You need a gyn that knows about pelvic pain and PN. I have some of the same pain that you have. Mine is horrible.

[Pattimoe]

Please ask a gynecologist for a referral to a uro-gynecologist. That’s who had helped me tremendously.

Also, woman’s physical therapist should help. 💗

[glenbanchor]

Two practitioners told me I had a prolapse however the gynocologist said I did not so GP are not always right. Nor is my pelvic floor problem despite the GP sending me to physiology department. The gynocologist said I had a skin tag which is not usually cancerous but told me and not the GP this. I still have pain left side of perietum not sure why. Problem and pain when urinating often.