Please help!

[Shy_x]

Apologies for the long drawn out/ graphic post that's about to come but I am trying everywhere for answers at this point.

9 months ago I got thrush following sex with a new partner. I treated this but it kept returning. All STD tests came back negative. Then I had a particularly nasty bout of thrush high near my cervix and was put on weekly doses of fluconozole for 3 months. But still had burning pain deep inside even when tests came back negative for thrush. I did a test for ureaplasma which came back positive so was put on Doxycyline for 2 weeks which I got retested for 4 weeks following completed course and came back negative. If anything I saw a worsening of my symptoms and have major increase in thick white discharge (looks like thrush but again all tests negative).

I went to see gynecologist who referred me for cryosurgery and biopsy of cervix to get rid of mild etropion to see if that would decrease my discharge and burning pain. I also had a pelvic ultrasound which came back all clear no further action. I've had countless bloods taken also all of which have come back normal no further action.

Following cryosurgery the burning sensation got significantly worse and the discharge has not decreased. I started taking amatryptaline for the pain which seems to have helped but I after sex I still get a deep and general burning sensation days after which pain killers do not get rid of. Also when I have my period what feels like my cervix/ vagina is in agony.

My biopsy tests came back all clear for anything abnormal or cancerous however 'patchy inflammation' was noted. I asked the gyne about this but he says this is 'normal' and nothing to worry about - but I know that what I am experiencing is not normal and cant help but think this is related.

I've been referred for a second opinion but know they're just going to say everything 'looks normal' and I will go away devastated and frustrated once again.

If anyone has any recommendations of people to visit privately about this I'd really appreciate it. I'm severely depressed at this point and don't know where to go next. Any advice of any kind would be greatly appreciated. Just please don't tell me to 'wear cotton pants, don't use soap and sleep with no underwear on' because I've been doing all of this for years.

Thank you in advance to anyone.

Ps. its also not in my head as many doctors have suggested.

[swarke22]

Read up about Candida. Threelac has always taken things of that nature away for me but it’s a personal choice as some people don’t like it. It does work for me.

[Shy_x]

Hi introuble,

I never did sleep with the partner I believe I caught ureaplasma from again. My new partner is long term and I didn’t sleep with him until I got rid of the infection and got retested. There was no burning when I peed ever my pain is more localised in cervix / vagina. The only bladder issues I seem to have is light leakage every now and again.

I know you can still have symptoms even after the infection is cleared. But I’m wondering how long these can go on for and how to cure them. The burning pain is getting unbarable. It seems to lift and night but then gets worse through the day.

[Jpreston]

I had problems years ago with vaginal burning pain and discharge. Swabs would sometimes be positive for thrush others not, even though I had the same symptoms. Not always a classic thrush discharge, sometimes it was watery. It eventually turned out to be recurrent thrush and I was treated with Boric acid pessaries for quite a while and then cannestan pessaries two a week for at least a year. Things are ok now, although I am still prone to thrush so at the first sign I use a pessary which usually resolves it. I use maybe one a month now if that and have no regular pain or problems.

I think hormones can affect things at different times in your life, or maybe the infection has upset the natural vaginal environment causing you ongoing problems.

I saw doctors in Nottingham, a Dr David Nunns and a Dr Fox. Obviously depends where you live. The Vulval pain society have a database of vulval clinics and services, you may find a good specialist that way who can look at the whole picture for you and plan an approach.

Good luck with finding some answers.

[jquintile]

Don't give up. I don't know where you are located?????? I just found a woman doctor in New Brunswick, NJ at the Robert Wood Johnson hospital. Her name is dr. Nancy Phillips. finally, someone who looked at me and said, yes, you fall under the cover of

vulvodynia......very nice, very knowledgeable............I hope her treatments work. first she's going to look and a Cat Scan and see if I have some "varicose" veins up in my vagina.......if I do, they swell and can press on nerves that cause me pain and then she will cut and tie them off, I guess.......it's another hope. Doctor #34..................................