I was alarmed as have had numerous uti tests that came back negative ! But tremendous pain ..what has upset me is that iv'e read this is a sti ...and i am not sexually active ...and have not been in that kind of relationship for two years ..!
Has anyone else had this diagnosis without any tests ...i have no discharge ..just feel very unwell chronic pain in tummy low down ...left side ..i do have to stimes self catherterisemy bladder will go into retention and then will be fine for days
Any help would be appreciated
Babz
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Babz7019
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I am a bit concerned about your symptoms. Please consider the possibility of Vulvodynia. Read up on the condition. Causes bladder problem symptoms and the feeling of burning pee. The treatment is acupuncture.
Hi after 40 years ,4 cystoscopies,trial s of various things , oxybutinin is the only thing that helps , I am lucky to only get it sporadically . My new gp has suspected pudendal nerve as I had two forcep deliveries with episiotomy. Tried lyrica for a while but it is a long term thing and couldn’t really tell if it made a difference. I get both conditions , coming back as a man next time! Take care.
You are entitled to a second opinion, meanwhile look at the alternative possibilities mentioned above, such as IC and/or PN. I was misdiagnosed 12 years even after investigations. Finally, went back to another urologist, where the first diagnosis was discredited, but no offer of another diagnosis was offered. My new Gp thinks it may be Pudendal Neuralgia. I have an appointment with the pain clinic, God knows when this will come through, so meanwhile I’m going to a Specialist physio, who will be able to inform the diagnosis, but who is also working to reduce the pain.
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