Looking for specialist in the US - Pelvic Pain Suppo...

Pelvic Pain Support Network

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Looking for specialist in the US

sheweaves profile image
4 Replies

I have PNE since a back surgery last February. I am on 150 mg of Lyrica daily and ibuprophen every 6 hours. I can pretty much only stand up all day, though I do sit for short periods of time. It is almost impossible to sleep. I have rented a hospital bed for now but get up every two hours to pace my house. I had a pudendal nerve block last month with very little relief, some but not much. I am at a loss as to what to do next. I am sure I have scar tissue around the nerve (just a hunch) as I tend to make a lot of scar tissue. QUESTION: Are there any doctors in the US who specialize in pudendal nerve decompression? Thank you.

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sheweaves
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pizon profile image
pizon

hello and I am so sorry for your pain...I have PNE du2 pelvic surgery and I feel your pain I saw a Dr. in Annapolis MD his name is Richard Marvel and as I understand he is one of a few dr.'s that can do surgery for the PN his info is 130 Lubrano Dr suite 111 Annapolis MD 21401...phone 410 573 1436///good luck and many prayers

sheweaves profile image
sheweaves in reply to pizon

Thank you

saintonhigh profile image
saintonhigh

You can look on pudendal hope. They give a list.

Arbust91 profile image
Arbust91

Dr Hibbner in Phoenix AZ. Look into botox injections as well

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