Will be discussing on Monday with my pain management doc something I found that they are doing on the trigeminal nerve. Please read below

Hey guys.

I've been really desperate here. I've now changed my diet to more of a vegetarian diet, no meat. I've been drinking a ton of water and I'm about to start juicing. I've suddenly found out and should have known better myself that the amount of nerve blocks I've received is really not good because of the steroids in it. So, I'm scheduled for another nerve block tomorrow actually after having one two weeks ago. However, this one is going to be different. I have already emailed my doctor about this and sent him the research article that they are doing the trigeminal nerve in the face. For those of you who don't know. It's a very similar condition to ours only it's In the face. Usually affects one side. In this research article the are using a block with just pain medication to the nerve under sedation. They do about 10 of them over the course of a 9 month to a year period. From what I have read pain levels ha don't dropped from 10/10 when flared from chewing and baseline pain of 7/10 to a 3-5/10 over the first few months of doing this. If I recall it was like 3 months. And then they repeated the blocks for an additional 5 months and pain never returned. I told my doctor I would be the first to try it if it's never been done on the Pudendal nerve. I'm going in on Monday at 6 pm. I'm at my wits end and like many of you can't take it anymore. So, I'm not just doing this for me. I'm doing this for all of us. Ok please pray for me that the pain doesn't get any worse if it doesn't work. Please. I haven't told my family about this. The only one who knows is my fiancé and now all of you. I don't want them to worry. I'm not sure if they have done this before. I guess the closest thing to it would be the pump. So, please pray for me and for all of us that it works. If you want the site of the article. I have the entire article on my personal email. PM me and I'll send it to you. As always praying for us all. 🙏👍🦋Deb

8 Replies

  • Good luck Deb! I will be praying for you:)

  • Thank you Ann. I made that phone call by the way. Have that phone consultation on May 1st. Thank you so much. We will see what happens. I'll. Keep you posted ok about tomorrow ok. God bless Deb

  • Thanks Deb, good luck:)

  • Sounds fascinating and wish you the very best of luck.

    Would like to read the research article but not being v familiar with site don't understand "PM me" so I can send you my email.

  • Good luck really hope this works. Good on you for finding this x

  • I'll be praying for you that God will heal you and everyone else here .

  • Thank you. Everyone say the pray at 6 pm New York time ok. Lots of prayers for everyone. Deb

  • Will do Deb .

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