Pelvic Pain Support Network
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Nerve Blocks

Nerve Blocks

Hi All,I'm asking the opinion of anyone who has had nerve blocks,of any kind.

I have had one,but i would like to hear the opinion of other people. Mine was a Ganglion nerve block,not that I know the difference.

Don't feel your leading me in any way,I do have my own opinion,but would just like the opinion of others.

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Hi Gemini71,

I have had numerous nerve blocks, some are more successful than others. I'

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I'm up for a Caluneal nerve block in two weeks with fingers crossed. There is an op for in trapping it which I hope to eventually have.

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Have you had a Ganglion nerve block. And thanks for the reply.

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No I haven't had a Ganglion nerve block, numerous S.I. joint injections, which I may add out of about 6 only one was successful, lasted 3 months then wore off & straight back to being in severe pain again.

Wish you all the luck for the future and hope you find the relief you need. :-)

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Same back to you,all the best.🤞

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Hi, I had a nerve block, it made no difference to me. It works different for everybody. I've got severe SPD since the birth of my daughter who is 7yrs.

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I had a pudendal nerve injection and then a ganglion impar injection. Neither one helped for my symptoms which are non-stop pelvic floor/rectal spasms/neuralgia. I DID find out that my tailbone is loaded with arthritis, which might be one more piece of the puzzle. The pudendal injection totally numbed my legs, but didn't affect the spasms at all. Ganglion impar seemed to have no effect on anything.

I am glad I tried them..........there is always hope that it could give relief.........my doctor recommended spinal neuromodulator implant after that, but I didn't want to go through that.

Good luck and best wishes to you!

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Hi, Norma,from one Norma to another,you have been a great help thanks.

I think I've decided to go down the Physiotherapist route. I just thought it would be nice to get a take on other people's experience.

Thank you.🤞

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Hello again Norma! I had a wonderful experience with pelvic floor phys therapy. The therapist was so kind, knowledgeable and reassuring. She gave lots of management info and stretches to do at home. I have to say I lapsed in keeping up with it all. Lots of emotional struggles in my life at this time, so I had a hard time being disciplined to do what I was supposed to do. In my situation, she said there was more going on than just relaxing the muscles............that's when I tried the injections.

I am currently looking at a wonderful site about our thoughts and relaxing the body. I get carried away with researching causes, medications, therapies and get overwhelmed and confused and sometimes hopeless. There are lots of helpful articles here and I watched an introductory video about her online course. I am considering registering for it. The key would be whether I would actually work it and stick with it.

radiantlifedesign.com/train...

The good news for all of us is that we know we aren't alone and more and more is being studied and discovered every day. Years ago, no one even discussed or maybe didn't know about all of these pelvic floor complications.

Stay in hope...........I hope you meet with a loving, upbeat and knowledgeable therapist and she can give you lots of help!

Blessings! the other Norma...

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Thank you Norma.Im exactly the same researching all I can to help myself,I get to a stage where it's just taking up my time and energy everyday. But my GP agrees with me that as long as I'm getting my advise off decent sites,and don't do anything silly she agrees they don't know everything. I usually discuss what I think with her anyway. I seen her Friday and mentioned Physiotherapy and she said as long as they have all there qualifications it's worth a try. Well the lady I've booked with I've had recommended to me twice,so we'll see. But I'm praying that's the course of my pain,because as I say it just rules my life,like a lot of people on here. So blessings back to you to Norma. I hope you can find peace.🙏🏼🙏🏼🤞🤞

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Do you know where the ganglion nerve block injection was directed? Which nerve(s) was/were the doctor hoping to calm down? Did you get an ‘Impar’ ganglion nerve injection? .....this calms down coxxygeal nerves.

How much steroid was used? If not enough is injected the block will fail. Did you get relief? My U.S. specialist used 80mg methylprednisone. I had a fluoroscopy guided pudendal nerve block into my sacrotuberous ligament in my right buttock. I sat for the first time in 20 mo this pain free.

Where is your pain? Can you describe it? Electrocuted? Pulsing? Burning?

What activities cause you pain? Can you sit? Can you lift? Can you have intercourse?

I feel you need to explain your case in more depth.

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Hi,Yes it is a Ganglion nerve injection,I've had one once before,and it had no effect. It's the Prudendal nerve. I get severe Pelvic pain,that goes under my Virginia into my anus. ( excuse the honesty). But mainly I have severe spasms in the pelvic area real painful,sometimes like electric shocks. I can sit for a while with a lot of discomfort,when I'm standing it don't feel so bad.

But the thing I find hard to understand is when I get to sleep the pain does not wake me. Which leads me to believe it's Prudendal Neuralgia. I may be wrong,but I don't want nerve blocks that do no good,I would rather get to the bottom of the problem. But thank you for your reply.

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I agree....start with physiotherapy. Good luck,

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You can lie down. Lucky gal. After four internal pelvic physio sessions, I could no longer lie down and sleep. Physio made my condition deteriorate. I do not think gynaecologists ever think about the rear part of the nerve that has its root in the buttock.

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Hi,In the post you put on a day ago,you said you thought Physiotherapy was a good place to start.

But today your telling me it made your condition deteriorate, so now I'm confused.🤔

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I had ‘atypical’ pudendal nerve entrapment.

The two Filshie clips used in my tubal ligation had fallen off and migrated. The internal pelvic physiotherapy made one end up sitting on my rectum! I needed stat fluoroscopy-guided nerve blocks and decompression surgery but unfortunately most doctors think of the branch of the pudendal nerve that enervates the genitalia.

I was 51 years old and I had not recently delivered a baby. The physiotherapist thought I was post delivery because I look young for my age...no wrinkles. She tried to manipulate an 18 year old C-section scar!

If you have not had a tubal ligation with metal clips....you should be fine. Sorry for any confusion. Good luck.

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Hello,

I have had sooooo many nerve blocks including Pudendal and ganglion impar blocks. They did help me to be pain free in the rectum and the vagina region. The most it ever lasted on me was 7 days and that was great for all of the rest of them it last any where from 2-3 days but I am painfree. Here is my thoughts. I get them done every 2 weeks now but without the steroids just the anesthetic. If it gives me 2-3 days relief of longer for 4-6 days out of a month it’s worth it to live normal for those days. But here is my other thoughts on it. When you have no pain for those days I have to keep in mind and I try to convince myself that the pain won’t come back but it does like clockwork and when it does it’s horrific. I have to try and get use to the pain again. Not that I think the pain got any worse but I had no pain and now my body is saying what the heck is this again. In theory I almost say to myself it’s not worth the entire ordeal of going under anesthesia twice a month for 4-6 days of no pain when I it’s gonna come back and I have to get use to it again. Also keep this in mind. Even though we all suffer the same way with the pain everyone is different. We all respond differently to treatment. I’ve said it before it’s not like a cookbook and we all have the same recipe. What works for one may not work for another. A friend of mine got a nerve block and it lasted 6 weeks and my other friend she got a nerve block and it did nothing for her only worked for 2 hours. Mine lasted the most for 7 days. We all need to find what helps us the most. I’m finding that holistic things are working now for me. I just started using oils and of course my over the counter medication like tumerac and garlic pills etc. I feel these things are helping with the inflammation and I can see a difference. I’ve actually been able to lower my gabapentin now. Best of luck to you. Just keep in mind we are all the same yet very much different with treatments. I would definitely give physical therapy a try as well. I do that also. It helps me too. Hope that helps. Feel free to contact me anytime. God bless you Deb. 👍🙏🤗

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Spot on Debra,we are all different. But I think when you hear other people's experiences it does two things. 1, You know your not alone. And 2,It can give you ideas on things that just may help you.

So I'm hoping someday you will get some relief from this ongoing misery.🙏🏼🙏🏼

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No worries, I wish you all the peace in the world.🙏🏼

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Thank you so much. I agree. I just wanted her to know my story and nerve blocks so it may help her make a decision on it. Thank you for the kind words. It stinks suffering for this long but I’m still fighting as we all should. Some day I believe someone will hit on something. Prayers and hugs Deb.

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Hi Debra,I've been suffering now for well over 13yrs. I've tried and tested everything,and nothing makes any difference. I didnt even know why he treated me with a ganglion block,I now believe it was possible saddle pain. But it's not, because it does go under to my bum sometimes,but the main pain is in my Pelvis,so I'm gambling on Neuralgia. But because I've had all that's been on offer,including medication that don't work but I'm stuck with,I thought Physiotherapy may just be the answer. Like you the pain really gets me down. I was due another block next Saturday,but I've postponed it to give Physiotherapy a try.

I'm at a stage now where I'm fed up of being a guinea pig.

But I still feel my pain is due to nerves,but I'm no doctor so I don't know what nerves. And I don't want relief,I want an answer.

I do realise everyone's suffering on this forum in some way or other,and chatting does help,because we're all in pain. And it gives my hubby a rest,from seeing me cry,or complain and he don't understand and he can't help.😥. Just wish some days I could wave a magic wand,and all the suffering would be over.

Sorry for the rant. I hope your on a good day.💕

Oh and I sooo hope someone would hit on something soon,enough of my life has gone from this suffering.

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Hi I have had 2 sympathetic (ganglion)nerve blocks the second one with sedation because the consultant wanted to go even deeper. Well I won't be going there again. The side effects were horrendous, the pain was so much worse for around 2 weeks. The extra stress on my body so the doctor says caused the roof of my mouth to become covered in sores and also the corners of my mouth were covered in cold sores. Just when I thought the worst was over my back went. All I wanted was to go to sleep and not wake up. I've had this bout of chronic pain now for exactly 8 years,am now house bound with this chronic pelvic neuropathic pain with what seems like no light at the end of the tunnel and no the nerve blocks have not worked. But always find myself saying what if ?

I hope you had a more positive outcome and life is better for you ?

Fingers crossed!!

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No,I'm afraid to say life isn't better for me. But I have learned from past mistakes,so I now question everything. Saying that ,being the reason I was asking peoples opinion on nerve blocks. We tend to think doctors are miracle workers,when I believe sometimes we're just there guinea pigs.

I have one of the best pain Specialist in the UK,and the same with my Gastroenterologist,but there both at a loss with me,apart from nerve blocks,but I won't have nothing done to me again unless I've thoroughly done my homework. You can't always go by others,but you can get an idea of where to go for yourself. Don't give up,keep looking stuff up,and double checking,and ask professional advice. But always come to your own decision. Best of luck and keep reading other people's experiences you may see something that you think may work for you. But please don't give up.x

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I did twice and they didn’t work. The doctor just gave up on me and never heard from her again.

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