Hi All,I'm asking the opinion of anyone who has had nerve blocks,of any kind.
I have had one,but i would like to hear the opinion of other people. Mine was a Ganglion nerve block,not that I know the difference.
Don't feel your leading me in any way,I do have my own opinion,but would just like the opinion of others.
I'm up for a Caluneal nerve block in two weeks with fingers crossed. There is an op for in trapping it which I hope to eventually have.
Have you had a Ganglion nerve block. And thanks for the reply.
No I haven't had a Ganglion nerve block, numerous S.I. joint injections, which I may add out of about 6 only one was successful, lasted 3 months then wore off & straight back to being in severe pain again.
Wish you all the luck for the future and hope you find the relief you need. 
Same back to you,all the best.🤞
Have you had The nerve block.
Is it helpful.
Yes I had a Ganglion impar nerve block,I can't say as it made any difference to me at all. I believe there only a temporary solution anyway,and that's if they work.
Thank you for your reply
I am new to this group,
but based on your reading what is the best solution so far. ?!
It s like there is no cure for this pain 
I am planing to try physiotherapy. I am delaying the block nerve because I feel it's only temporary.
I need something so I can at least go back to work and move on with my life.
Hope all suffers will find a solution for there pain.
I sincerely believe if you do not have my complications,Physiotherapist is the way to go. I only wish I had known this years ago. But you do have to try to help yourself.
First find a good woman's Physio,preferably recommended.
Thank you so much for your advice.
My pain is due to neglecting dr s in Canada. They just dismissed me after a bad hemorrhoid banding , for almost 2 year till I read online about my symptoms.
I ll do physiotherapy first.
I ll start to see a recomended one in my area.
I live in canada but I can go to Michigan
If any one has recommendations. I would appreciate it.
Prayers for all.
If I were you I would put your own post on here asking anyone who could recommend a Physiotherapist near you. Then the post will stand out.
Good luck,I hope you get the help you need.👍
Oh I'm sorry you have,that's me reading emails in the wrong order.
Hope someone responds.🙏🏼
Hi, I had a nerve block, it made no difference to me. It works different for everybody. I've got severe SPD since the birth of my daughter who is 7yrs.
I had a pudendal nerve injection and then a ganglion impar injection. Neither one helped for my symptoms which are non-stop pelvic floor/rectal spasms/neuralgia. I DID find out that my tailbone is loaded with arthritis, which might be one more piece of the puzzle. The pudendal injection totally numbed my legs, but didn't affect the spasms at all. Ganglion impar seemed to have no effect on anything.
I am glad I tried them..........there is always hope that it could give relief.........my doctor recommended spinal neuromodulator implant after that, but I didn't want to go through that.
Good luck and best wishes to you!
I didn’t want the neuromodulator implant either.
I had a true entrapment of my right inferior rectal nerve caused by a migrated titanium metal Filshie clip used in my tubal ligation ten years prior.
It started with rectal tingling after lengthy commutes. It always subsided.
My doctor thought it was tenesmus. She recommended a colonoscopy because I was nearing 50. BIG MISTAKE! That was March 2007.
Ten months after the colonoscopy I couldn’t sit. It burned and my rectum felt electrocuted! Last day I ever sat normally was February 18, 2008.
After three and a half years of brutal hell and life threatening pain, physiotherapy made everything worse( I couldn’t lie down anymore ! ), severe sleep deprivation, being gaslighted, dismissed, and misrepresented by EVERY specialist I saw, having improper pain control, experiencing terrible side effects to Gabpentin, Lyrica, Cymbalta ( I lost cognitive function by early December 2008 ), high dose 30mg codeine, standing up all day with orthopaedic shoes, burning my inner upper thighs and pelvic floor with a heating pad, getting answers in Minnesota from an expert urologist who sub specialized in pudendal neuralgia and entrapment....and whom my GP did NOT believe AND my pain specialist dropped me as a patient......I met a registered nurse consultant. She procured my surgery....no doctor helped me.
This has left me disabled and I will suffer terrible pain forever. They knew a Filshie clip was adjacent to my rectum.....they didn’t remove it. They said I had a nerve imbalance...NOT! They committed fraud by not reporting it on the MRI report on September 2008. Criminal behaviour. I still believe another clip is embedded inside my levator ani muscles at the top of my vagina where it intersects with my inner perineal tissues and my anus. It hurts! A new therapist has said the top of my vagina and rectum are in chronic spasm.
Hi, Norma,from one Norma to another,you have been a great help thanks.
I think I've decided to go down the Physiotherapist route. I just thought it would be nice to get a take on other people's experience.
Thank you.🤞
Hello again Norma! I had a wonderful experience with pelvic floor phys therapy. The therapist was so kind, knowledgeable and reassuring. She gave lots of management info and stretches to do at home. I have to say I lapsed in keeping up with it all. Lots of emotional struggles in my life at this time, so I had a hard time being disciplined to do what I was supposed to do. In my situation, she said there was more going on than just relaxing the muscles............that's when I tried the injections.
I am currently looking at a wonderful site about our thoughts and relaxing the body. I get carried away with researching causes, medications, therapies and get overwhelmed and confused and sometimes hopeless. There are lots of helpful articles here and I watched an introductory video about her online course. I am considering registering for it. The key would be whether I would actually work it and stick with it.
radiantlifedesign.com/train...
The good news for all of us is that we know we aren't alone and more and more is being studied and discovered every day. Years ago, no one even discussed or maybe didn't know about all of these pelvic floor complications.
Stay in hope...........I hope you meet with a loving, upbeat and knowledgeable therapist and she can give you lots of help!
Blessings! the other Norma...
Thank you Norma.Im exactly the same researching all I can to help myself,I get to a stage where it's just taking up my time and energy everyday. But my GP agrees with me that as long as I'm getting my advise off decent sites,and don't do anything silly she agrees they don't know everything. I usually discuss what I think with her anyway. I seen her Friday and mentioned Physiotherapy and she said as long as they have all there qualifications it's worth a try. Well the lady I've booked with I've had recommended to me twice,so we'll see. But I'm praying that's the course of my pain,because as I say it just rules my life,like a lot of people on here. So blessings back to you to Norma. I hope you can find peace.🙏🏼🙏🏼🤞🤞
Do you know where the ganglion nerve block injection was directed? Which nerve(s) was/were the doctor hoping to calm down? Did you get an ‘Impar’ ganglion nerve injection? .....this calms down coxxygeal nerves.
How much steroid was used? If not enough is injected the block will fail. Did you get relief? My U.S. specialist used 80mg methylprednisone. I had a fluoroscopy guided pudendal nerve block into my sacrotuberous ligament in my right buttock. I sat for the first time in 20 months pain free.
Where is your pain? Can you describe it? Electrocuted? Pulsing? Burning?
What activities cause you pain? Can you sit? Can you lift? Can you have intercourse?
I feel you need to explain your case in more depth.
Hi,Yes it is a Ganglion nerve injection,I've had one once before,and it had no effect. It's the Prudendal nerve. I get severe Pelvic pain,that goes under my Virginia into my anus. ( excuse the honesty). But mainly I have severe spasms in the pelvic area real painful,sometimes like electric shocks. I can sit for a while with a lot of discomfort,when I'm standing it don't feel so bad.
But the thing I find hard to understand is when I get to sleep the pain does not wake me. Which leads me to believe it's Prudendal Neuralgia. I may be wrong,but I don't want nerve blocks that do no good,I would rather get to the bottom of the problem. But thank you for your reply.
I agree....start with physiotherapy. Good luck,
You can lie down. Lucky gal. After four internal pelvic physio sessions, I could no longer lie down and sleep. Physio made my condition deteriorate. I do not think gynaecologists ever think about the rear part of the nerve that has its root in the buttock.
Hi,In the post you put on a day ago,you said you thought Physiotherapy was a good place to start.
But today your telling me it made your condition deteriorate, so now I'm confused.🤔
I may have been tired and wrote incorrectly. I do make mistakes because of the immense fatigue I live with. Physiotherapy is a conservative good step to take IN MOST CASES but definitely not with what I was dealing with. Sorry for any confusion.
No worries,we're all human,we can all make mistakes.
It's been a long time hearing from you,I only hope your coping as best we can. You take care.
My son and I are in the process of moving. We have been very busy packing. What a job! I have had to pace myself because of my neuropathy and a brutal flare up slowed me down in July. I keep trying to move, lift, bend over more and more and my body isn’t healed enough yet.
How are you? That was sweet of you to be concerned for me. Thank you. Bless you. 😌
Oh what a job,moving alone is stressful when your feeling fit,but to move when your unwell,I can only imagine how you feel.
Take your time,your health comes first.
As for me I'm not running around like a chicken,but like us all on here,I'm having to cope. I seen my pain Specialist last week and he said there's no more he can do for me. So I'll just stick with the Physiotherapist for the moment see where that takes me.
Much love and Hugs coming your way.❤️
I have help. Do not worry about me. I am pacing myself and the work I do. I hired cleaning ladies. I worked for 31 years, saved money and I am a good budgeter.
I simply cannot take care of the property anymore.....I need a bungalow and a smaller eco home.
I hope physiotherapy helps you!
My pain is worse anally too, Though through the years it is all over my pelvic floor then some. Lying down hurts too!
It seems the physio has made my condition worse, so I am going to stop them for a while. I think I will have to start pool therapy. Maybe some soft exercises in water will help. What specialist are you seeing? What are you taking/doing for the pain? Just don't know where to start. I do not currently treat with anyone. I think I am going to try for the steroid injection. Maybe it will help as it has done some as a therapeutic treatment.
I have had the nerve released via surgery done 3.5 years too late. My pain is now managed somewhat with Nortriptyline ( a great nerve pain modulator ), Hydroxizine Hydrochloride, CBD oil and THC oil. I still require a sleeping pill every night and I pray for the day when I do not need it. I also use custom made expensive vaginal suppositories at bedtime. I think they help because I still feel something under my vagina.....I think another clip is embedded in levator ani muscles. Who knows? It could just be the permanently damaged rectal branch of my right pudendal nerve. Neuralgia is VERY hard to live with.
I sent you a private message.
I had ‘atypical’ pudendal nerve entrapment.
The two Filshie clips used in my tubal ligation had fallen off and migrated. The internal pelvic physiotherapy made one end up sitting on my rectum! I needed stat fluoroscopy-guided nerve blocks and decompression surgery but unfortunately most doctors think of the branch of the pudendal nerve that enervates the genitalia.
I was 51 years old and I had not recently delivered a baby. The physiotherapist thought I was post delivery because I look young for my age...no wrinkles. She tried to manipulate an 18 year old C-section scar!
If you have not had a tubal ligation with metal clips....you should be fine. Sorry for any confusion. Good luck.
Hello,
I have had sooooo many nerve blocks including Pudendal and ganglion impar blocks. They did help me to be pain free in the rectum and the vagina region. The most it ever lasted on me was 7 days and that was great for all of the rest of them it last any where from 2-3 days but I am painfree. Here is my thoughts. I get them done every 2 weeks now but without the steroids just the anesthetic. If it gives me 2-3 days relief of longer for 4-6 days out of a month it’s worth it to live normal for those days. But here is my other thoughts on it. When you have no pain for those days I have to keep in mind and I try to convince myself that the pain won’t come back but it does like clockwork and when it does it’s horrific. I have to try and get use to the pain again. Not that I think the pain got any worse but I had no pain and now my body is saying what the heck is this again. In theory I almost say to myself it’s not worth the entire ordeal of going under anesthesia twice a month for 4-6 days of no pain when I it’s gonna come back and I have to get use to it again. Also keep this in mind. Even though we all suffer the same way with the pain everyone is different. We all respond differently to treatment. I’ve said it before it’s not like a cookbook and we all have the same recipe. What works for one may not work for another. A friend of mine got a nerve block and it lasted 6 weeks and my other friend she got a nerve block and it did nothing for her only worked for 2 hours. Mine lasted the most for 7 days. We all need to find what helps us the most. I’m finding that holistic things are working now for me. I just started using oils and of course my over the counter medication like tumerac and garlic pills etc. I feel these things are helping with the inflammation and I can see a difference. I’ve actually been able to lower my gabapentin now. Best of luck to you. Just keep in mind we are all the same yet very much different with treatments. I would definitely give physical therapy a try as well. I do that also. It helps me too. Hope that helps. Feel free to contact me anytime. God bless you Deb. 👍🙏🤗
Spot on Debra,we are all different. But I think when you hear other people's experiences it does two things. 1, You know your not alone. And 2,It can give you ideas on things that just may help you.
So I'm hoping someday you will get some relief from this ongoing misery.🙏🏼🙏🏼
No worries, I wish you all the peace in the world.🙏🏼
Thank you so much. I agree. I just wanted her to know my story and nerve blocks so it may help her make a decision on it. Thank you for the kind words. It stinks suffering for this long but I’m still fighting as we all should. Some day I believe someone will hit on something. Prayers and hugs Deb.
Hi Debra,I've been suffering now for well over 13yrs. I've tried and tested everything,and nothing makes any difference. I didnt even know why he treated me with a ganglion block,I now believe it was possible saddle pain. But it's not, because it does go under to my bum sometimes,but the main pain is in my Pelvis,so I'm gambling on Neuralgia. But because I've had all that's been on offer,including medication that don't work but I'm stuck with,I thought Physiotherapy may just be the answer. Like you the pain really gets me down. I was due another block next Saturday,but I've postponed it to give Physiotherapy a try.
I'm at a stage now where I'm fed up of being a guinea pig.
But I still feel my pain is due to nerves,but I'm no doctor so I don't know what nerves. And I don't want relief,I want an answer.
I do realise everyone's suffering on this forum in some way or other,and chatting does help,because we're all in pain. And it gives my hubby a rest,from seeing me cry,or complain and he don't understand and he can't help.😥. Just wish some days I could wave a magic wand,and all the suffering would be over.
Sorry for the rant. I hope your on a good day.💕
Oh and I sooo hope someone would hit on something soon,enough of my life has gone from this suffering.
Hi I have had 2 sympathetic (ganglion)nerve blocks the second one with sedation because the consultant wanted to go even deeper. Well I won't be going there again. The side effects were horrendous, the pain was so much worse for around 2 weeks. The extra stress on my body so the doctor says caused the roof of my mouth to become covered in sores and also the corners of my mouth were covered in cold sores. Just when I thought the worst was over my back went. All I wanted was to go to sleep and not wake up. I've had this bout of chronic pain now for exactly 8 years,am now house bound with this chronic pelvic neuropathic pain with what seems like no light at the end of the tunnel and no the nerve blocks have not worked. But always find myself saying what if ?
I hope you had a more positive outcome and life is better for you ?
Fingers crossed!!
No,I'm afraid to say life isn't better for me. But I have learned from past mistakes,so I now question everything. Saying that ,being the reason I was asking peoples opinion on nerve blocks. We tend to think doctors are miracle workers,when I believe sometimes we're just there guinea pigs.
I have one of the best pain Specialist in the UK,and the same with my Gastroenterologist,but there both at a loss with me,apart from nerve blocks,but I won't have nothing done to me again unless I've thoroughly done my homework. You can't always go by others,but you can get an idea of where to go for yourself. Don't give up,keep looking stuff up,and double checking,and ask professional advice. But always come to your own decision. Best of luck and keep reading other people's experiences you may see something that you think may work for you. But please don't give up.x
I did twice and they didn’t work. The doctor just gave up on me and never heard from her again.
I was dismissed, purposely misdiagnosed, given the wrong treatment, neglected and left to die in agony. The doctors here in Vancouver utterly failed me. ( they all thought I had a personality disorder and some kind of cyclothymia.....NOT!.....I had a rectal nerve being pinched every time I sat and lay down.) It hurt like hell! They dismissed me!
I am a very happy loving person. I love life! I became quarrelous BECAUSE NO DOCTOR WHERE I LIVE WAS BELEIVING ME OR TAKING ME SERIOSLY! I went above and beyond to get answers out of province in Toronto and Minnesota and still I was not believed and was neglected and left sedated!
What I have learned is anyone who is designated ‘ chronic pain’ whether they have a true injury or not....once they are labeled ‘ chronic pain’ we seem to have no rights to acquiring quality health care. I had to hire and pay a registered nurse consultant to get the decompression surgery I so desperately needed. No doctor did that for me when the said they would. I have lost faith in Western medicine.
My fervent prayers are with the minds and hearts of the medical personnel to come up with a treatment which will take our pelvic pain away.
Oh yes,That would be a miracle.🙏🏼
I am hurting so bad right now, nothing will take most of this pain away. I have back problems as well as pudendal nerve damage. I just don't know what else to do. I only take Cymbalta 60 mg. and Gabepentin at 1800 mg per daily spread out through the day, and usually one Klonopin .50 mg. I don't take more Klonopin, but I can take two of them daily. I have been taking 500 mg of Naproxen every day as that is the only thing I have. Any help? I am going to try relaxation exercises now and see what that can do.
Hi,I don't think I can be of a great help,because no one feels your pain but you. Just a few suggestions,have you tried a Physiotherapist? Meditation?
Is your pain worse when sitting,like mine,that's when I can't relax. I take Diazapam for when I'm sitting trying to watch the television,which helps because it relaxes the muscles when I start to get anxious about the pain.
I so wish I could help everyone on this forum,but I think we're all in a different category of pain. I just take the bits out of what I think may work for me,then read up on it. But I don't actually think I'll ever be free of this pain. I have all my hope on Physiotherapist but I think even she may only be able to reduce the pain I have.🤞🍀 hope I've been of a little help🤞🍀.I think it helps to keep talking on this forum,you just never know,what may turn up. Believe me I sooo Empathise with you,my pain is also getting unbearable,and I don't know what else I can do.
Would Zopiclone for sleep help you? You must be getting VERY fatigued?
The relaxation therapy worked yesterday afternoon. I even fell asleep. When I wake up the pain begins to be intense within an hour. I do hurt when I lie down, but the relaxation along with the Klonopin I had taken about an hour earlier made it possible. Yes, I am having pelvic floor therapy now with some of the best therapist at Shands Hospital in Gainesville, FL. The internals do seem to stir up the nerves and seem to exacerbate the pain. I am doing the home exercises as well. They hurt more than I think they should and they seem to make the back pain worse. I will continue to do them, but not as long or strenuous. I posted the pain medication I take now. Opioids didn't seem to help at any dose and type; that I took earlier on. Yes, my worse pain is sitting, the next worse is lying down. In the beginning I could get some relief lying down, but not now. I have had a coccygectomy , an SI joint fusion, three trials of different neurostimulators, short session of acupuncture, massage, patches of all kinds, rubs of natural and medical. I have tried most things I have heard of. I am still searching, and determined not to give up. I can not sit after taking the Klonopin without terrific pain. You mention using the Diazapam when you want to sit watching TV or something. I wish I had that much relief. I haven't been able to sit and read, watch TV or anything in about 3-4 years. We all pray for an end to this debilitating condition.
Have a happy Sunday.
Sorry I didn't quite word that properly. What I mean is when I'm TRYING to watch TV at night,I take a Diazapam,it does relax muscles,but it does not take the pain away,in fact I usually doze off. No I'm no different from you in that respect,if I don't drop to sleep,I'm up and down,knees up,lie down,turn on my tum. The only time the pain stops is when and if I can get to sleep. Sorry for not explaining myself properly.
I just had ilioinguinal nerve block and tbh I had a very bad experience. It triggered my usual pain plus vomiting, followed by sharp nerve pain a day later.
My hospital were very unhelpful but my gp spoke to me over the phone and thinks they just pringed a nerve so I’m riding it out.
Tbh my pain is sharp rightside pain and less pelvic.
Just reading this now as the site popped up on my phone. I did try nerve blocks - none of which worked. I eventually got help from a pelvic physio and combined with yoga, meditation and baths got complete relief. However stupidly I did an exercise on a Roman chair under the advice of a personal trainer last April and the pain returned. ! To date I have not been able to get it under control which is so annoying given that the pelvic physio had sorted it out the last time. Diazepam worked for a while but not any more.
Tried an ostepath yesterday as last resort. He said I was the worst case ever of a hypertoned pelvis,!
I hope you have had some relief.
It's a nightmare of an area to have pain in I know. Wears you down.
Thanks for that. I'm now going down the road of a Physiotherapist.
But I haven't been with her long enough yet to tell any difference.
But I think if I had seen her years ago,she would have been my best option.
Personally I think people underestimate Physiotherapist. I also take Diazapam ,more for keeping me calm when the pain is so bad I get stressed,and we all know that makes the pain worse.
Yes - stick with the physio - mine has been great and I have great faith in their ability. They specialise in pelvic pain and have a multi faceted approach. She does dry needling and acupuncture with me which can be very effective (as well as the horrible internal stuff - at this stage I dont care though. )
Hope you sort it out soon and we all can get back to normal.
Thank you. My biggest problem is I suffer with Emphysema,and Pelvic floor exercises work best with breathing. But I've seen her today and she's given me a few tips. So onwards and upwards.
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