We need more of this for pelvic pain - Pelvic Pain Suppo...
We need more of this for pelvic pain
Yes but how do you persuade them? The medical world seems to grind to a halt.
We organized an interactive workshop for health professionals, researchers and patients from several countries at the 1st World Congress on Pelvic Pain which was in Amsterdam this year. We captured the content of the discussions in a report and several joint research funding applications have been made for public health funding by a number of universities this year. We are involved in supporting these applications and hope that there will be more opportunities like this and an increase in good quality research which has been lacking in the past. It would be good to hear more patients views on this and what the priorities should be.
That's excellent news.
After some thought, I think their 3 priorities should be :-
1. To link up the research that has already been done and the procedures being done worldwide (just like they announced in the media the other day for dementia) and evaluate what actually works or not. Because at the moment it appears very much a stab in the dark depending on who you see as to what you get or don't get. Nor is it right for males to be ignored! I also fear people are being subjected to surgery that could make them worse or have no effect at all. Some of those procedures on women in particular, are life changing!
2. To understand and evaluate the anatomy and physiology of the PN and to get a thorough understanding of what surgical techniques and medications will work. Surely someone has found something new that is not in the book "Grey's Anatomy"? Which was written a very long time ago! I studied from it in 1977 when I was doing my anatomy and physiology exams!
3. To develop a medicine specifically for neuralgia pain that is effective and without side effects.
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