I am currently under Dr Jones in Wythenshawe Hospital in Manchester, I end up seeing different doctors every time I go. To be honest I really don't think they know or understand what PCD is and what treatment is needed. I went in January after suffering with pneumonia and pleurisy. I told them I still didn't feel like I was back to normal for me and all they did was send me for an xray and booked a further appointment in 4 months time. I have since been off work again with pleurisy and even ended up going to A&E in Bolton on one day as I was having chest pains, palpitations and really struggling breathing. They did some tests and then just got sent home and told to rest.
I don't feel I am getting the right care at the moment, I know PCD isnt curable. Can anyone please tell me if you live in the north West who you see and what they do for you in your treatment plan. I appreciate this is personal but any help would really help me understand what else I can do to keep the condition under control as much as possible.
Thank You xx