I'm really struggling at the moment, my husband has taken a turn for the worse with his condition and has been on constant IV's in the home for the part 5-6 weeks.
I've spoken with the PCD consultant at the Royal Brompton and he is more than willing to see Paul but his Consultant wont entertain sending a referral because he is a "chest doctor". I can appreciate this but my argument is that Brompton specialise in this condition and will have more information etc. I'm just so frustrated and upset. Paul's had to give up work because he just cant get his oxygen levels to stay up, I've gone part time in work to do the school run with our 4 year old and take Paul back and fore the hospital which is fine, he's my husband and I love him. But we're struggling financially and i'm struggling emotionally. We live in a house and Paul has to sleep down stairs. I have been on at the council for the past 4 years for a bungalow for him and have been trying to find a private rent in our price range but theres is nothing. We've been advised to get rid of our carpets and sofa's as they are material and he needs laminate and leather as well and I'm like Ok, ill just go out to the money tree out the back shall i?
Sorry for venting so much